Last week "Quality of Life Research" #ISOQOL published 7 articles:
https://link.springer.com/journal/11136/online-first

For example:

#Psychometrics and population reference values for the Hungarian PROMIS-29+2:
https://link.springer.com/article/10.1007/s11136-023-03364-7

Estimating meaningful thresholds for multi-item questionnaires using #IRT:
https://link.springer.com/article/10.1007/s11136-023-03355-8

And to continue previous week's reading on #UTI, a #SysReview of Patient-reported outcome measures:
https://link.springer.com/article/10.1007/s11136-023-03358-5

#HRQL

An #ISOQOL editorial by Caroline Terwee presents a #SysReview offering a conceptual clarification regarding minimal important change estimates:
https://link.springer.com/article/10.1007/s11136-021-02925-y

An important section highlights that not all patients may be classified correctly with this approach. An MIC value refers to the average of a group of patients:
"In clinical practice, the MIC value should therefore be considered a probabilistic value, rather than a deterministic cut-point."

#HRQL #Feedback

A call for Associate Editors to extend the board of 'Quality of Life Research' has opened:
https://www.isoqol.org/call-for-qlr-associate-editors-2023/

We are looking for a range of expertise in #HRQL #ResearchMethods such as clinical trials #RCT, #epidemiology, #HealthServices research, #Psychometrics #SEM #IRT, #PublicHealth & a range of #QualitativeMethods.

#Publishing #Editing #PeerReview

Example analysis of a longitudinal #RCT and case-based simulation study exploring how well a linear mixed model does in cases where treatment and outcome are associated with #DropOut:
https://bmcmedresmethodol.biomedcentral.com/articles/10.1186/s12874-023-01846-3

Not surprisingly: not so well.

Due to its case-based application & step-by-step building of the simulation study, interesting read for anyone using #HRQL or patient-reported outcome measures in their research or practice.

#PROM #ROM #Feedback

A new call for Associate Editors to extend the board of 'Quality of Life Research' has been opened:
https://www.isoqol.org/call-for-qlr-associate-editors-2023/

We are looking for a range of expertise in #HRQL research, for example HIV, injury, musculoskeletal, orthopaedics, rehabilitation, rheumatology & surgery.

#Publishing #Editing #Peerreview

Last week "Quality of Life Research" #ISOQOL published 4 articles:
https://link.springer.com/journal/11136/online-first

For example:

#HRQL in 7 European countries from 9 quarterly waves collected between April 2020 and January 2022 throughout the course of the #COVID19 pandemic:
https://link.springer.com/article/10.1007/s11136-022-03334-5

"Fixed effects regressions showed that in particular occurrence of infection was associated with problems in all #EQ5D dimensions and a reduction in EQ VAS score as well as EQ-5D-5L index."

I was just reminded of this useful #Rstats resource for #HealthEconomics & #HRQL research:
The -eq5d- package
https://cran.r-project.org/web/packages/eq5d/index.html

"Frequently the scores on the five dimensions of the #EQ5D are converted to a single utility index using country specific value sets, which can be used in the clinical and economic evaluation of health care as well as in population health surveys. The eq5d package provides methods to calculate index scores from a subject's dimension scores."

Quality of Life Research's special issue on "Feedback Systems" included a set of papers on #ImplementationScience.

These papers and their development were featured in the #ISOQOL QualityTalk newsletter:
https://www.isoqol.org/implementation-science-exploring-measurement-of-proms-prems-implementation/

Find our editorial for the whole issue here:
https://rdcu.be/c4sZs

#HRQL

Last week "Quality of Life Research" #ISOQOL published 5 articles:
https://link.springer.com/journal/11136/online-first

For example:

Evaluation of the FLU-PRO Plus in a #COVID19 sample:
https://link.springer.com/article/10.1007/s11136-022-03336-3

Life Satisfaction of people living after spinal cord injuries and surviving at 0.5, 1.5, and 10 years later:
https://link.springer.com/article/10.1007/s11136-022-03313-w

#HRQL #Psychometrics

COMET initiative newsletter out:
https://mailchi.mp/422a8e7f2f98/jan2023-6226622

Core outcome sets are an important infrastructure to reduce #ResearchWaste.

Read about research waste in #HRQL research in our most recent special section on that topic (Oct-2022):
https://link.springer.com/journal/11136/volumes-and-issues/31-10

#PrePrint of our editorial:
https://psyarxiv.com/879xp/
(w Claudia Rutherford, Sydney)

#Psychometrics

RT @jrboehnke
Core outcome sets are an important infrastructure to reduce #ResearchWaste.

Read about research waste in #HRQL research in our most recent special section on that topic (Oct-2022):
https://link.springer.com/journal/11136/volumes-and-issues/31-10

#PrePrint of our (@claudia_ruthers) editorial:
https://psyarxiv.com/879xp/ https://twitter.com/COMETinitiative/status/1618647936535085058

Last week "Quality of Life Research" published 3 articles:
https://link.springer.com/journal/11136/online-first

For example:
A #SysReview aggregating 76 studies on the current use of the EORTC QLQ-NMIBC24 and QLQ-BLM30 questionnaires for the assessment of health-related quality of life in bladder cancer patients:
https://rdcu.be/c3WNv

One conclusion is that that studies assessing the validity and reliability of both modules in large patient cohorts remain scarce.

#HRQL #Psychometrics

Last week "Quality of Life Research" published 6 articles:
https://link.springer.com/journal/11136/online-first

For example:
Reflections on the use of telePRO methods (patients fill in PRO data at a distance) with data on 24 different patient groups 12 of the first 19 ICD chapters [AmbuFlex, part of the public hospital organization in the Region Central Denmark]
https://link.springer.com/article/10.1007/s11136-022-03322-9

Continuing our interest in #Feedback& #RoutineOutcomeMonitoring in #HRQL research & practice, see special issue: https://rdcu.be/c3sKo

January issue of
Quality of Life Research:
https://link.springer.com/journal/11136/volumes-and-issues/32-1

24 papers on a range of clinical & research #HRQL topics. For example:

#SysReview, Effectiveness of respiratory muscle training in internal and central nervous system disorders:
https://link.springer.com/article/10.1007/s11136-022-03133-y

#SysReview, measurement properties of outcome measures in adult patients with ankle fractures:
https://link.springer.com/article/10.1007/s11136-022-03166-3

HRQL outcomes experienced by children born very & extremely preterm at 5yrs of age:
https://link.springer.com/article/10.1007/s11136-022-03217-9

Abstract submission deadlines looming:

15th January:
54th International Annual Meeting of the Society for #PsychotherapyResearch, Dublin!
https://www.psychotherapyresearch.org/page/spr2023

17th January:
Workshop proposals and symposium abstracts for the 30th Annual Conference of the International Society for Quality of Life Research!
https://www.isoqol.org/events/30th-annual-conference/abstract-information/
#HRQL #HealthEconomics

#Conference

Forwarding for the organisers:

7th UK Patient Reported Outcome Measures (PROMs) Research Conference
"PROMs Across the Lifespan"

22.06.2023
University of Sheffield
£50 (not-for-profit conference)

Call for papers open until
07.02.2023 -- 11:59pm

More information:
https://www.sheffield.ac.uk/scharr/7th-uk-patient-reported-outcome-measures-proms-research-conference-proms-across-lifespan

#HRQL #Psychometrics #Conference

One of the most cited items in "Quality of Life Research" in 2022 reported a cross-sectional, population-based study investigating the #MentalHealth & social health of children/adolescents during COVID-19 lockdown:
https://link.springer.com/article/10.1007/s11136-021-02861-x

#HRQL #Epidemiology

One of the most cited items in "Quality of Life Research" in 2022 was about developing the "COnsensus-based Standards for the selection of health status Measurement INstruments" (COSMIN) reporting guideline:
https://rdcu.be/c2oqQ

It is based on a literature review of recommendations and 3 Delphi rounds achieved consensus on a set of 71 items for inclusion.

#HRQL #Psychometrics

Already widely shared, but this article from the BMJ Christmas issue has a lot of content we have been discussing in our editorial board meetings:
https://www.bmj.com/content/379/bmj-2022-072883

Great teaching resource & training for #PeerReview-ers!

Especially relevant in my view for #HRQL researchers & practitioners:

"Carefully account for missing data"

"Do not dichotomise continuous variables"

"Consider accounting for clustering"

"Carefully consider the variable selection approach"

#NightshiftEditor #HRQL

Already widely shared, but this article from the BMJ Christmas issue has a lot of content we have been discussing in our editorial board meetings:
https://www.bmj.com/content/379/bmj-2022-072883

Submissions to QLR are screened for good use of reporting guidelines.

Our #HRQL #ResearchWaste special issue touches on a number of these issues:
https://psyarxiv.com/879xp/

eg. research questions:
https://rdcu.be/c2nJv

and appropriate sample size planning:
https://rdcu.be/c2nJy

#NightshiftEditor