onFOSS · @onfoss
24 followers · 3 posts · Server fosstodon.org

It is time for our next open-source-only gaming event! It will take place Saturday September 23rd, starting at 12:00UTC.

We have two newcomers this time, and with .

We will also have a tournament with a prize!

Finally, we will also play and , so that will be a lot of fun.

See also our news post at onfoss.org/news/2023/08/27/Nex

#hypersomnia #fteqw #librequake #supertuxkart #bzflag #lix

Last updated 1 year ago

signerinkbeast · @signerinkbeast
7 followers · 241 posts · Server disabled.social

I try to keep shenanigans with sleep to a minimum. I live with , w/o narcolepsy, and . But I still do things against wherever my free-running circadian rhythm is, because life just requires that sometimes for better or worse. Yesterday I finished a book called "Our Woman in Moscow". Today I stayed up late for errands. Sleep has been a bit shit this week & my body punishes me with the muscles aches you get after exercise, but you feel it all over, esp. in joints.

#n24 #cataplexy #hypersomnia

Last updated 1 year ago

Fighting Eviction‼️😰😭 · @Hare
239 followers · 3082 posts · Server kolektiva.social

Having a rough health week.

Or longer?

The worse the health struggles and amount of symptoms, the easier it is to lose time.

I know many of y'all can relate. 😓

#NEISvoid #spoonie #eds #scolisis #cfs #ibs #IH #hypersomnia #IdiopathicHypersomnia #cptsd #trauma #Migraine #chronicpain #LongCovid #COVIDlonghauler

Last updated 1 year ago

Paying down $2000 Rent Debt 😰 · @Hare
220 followers · 2740 posts · Server kolektiva.social

Currently recovering from a bad IH episode.

Finally a bit regulated after over 3 hours, but still not great.

Much love, we’ll try to update our kofi soon as health allows and post it here.

Stay safe, y’all rock! 💗✨

#IH #IdiopathicHypersomnia #hypersomnia #sleepDisorder #NEISvoid

Last updated 1 year ago

Mark Patterson, MD, PhD · @Mitdoc
719 followers · 477 posts · Server med-mastodon.com

I'm attending the Foundation conference in , raising awareness about . Lots of interested attendees.

#hypersomnia #indianapolis #narcolepsy

Last updated 1 year ago

LoloStud · @LoloStud
1 followers · 1 posts · Server pnw.zone
Hare is Hungry 😟 · @Hare
150 followers · 1554 posts · Server kolektiva.social

Struggling so badly to stay awake, I hate this!!! 😤

#hypersomnia

Last updated 2 years ago

Hare is Safe! 🌸 · @Hare
120 followers · 878 posts · Server kolektiva.social

I feel absolutely terrible, and no amount of sleep is enough. 😩

#LongCovid #hypersomnia #cfs

Last updated 2 years ago

Bob Jamieson · @bobjmsn
570 followers · 6905 posts · Server mastodon.scot
Mark Patterson, MD, PhD · @Mitdoc
613 followers · 346 posts · Server med-mastodon.com

@ainebet That can be a difficult diagnosis, with few approved treatment options. Are you familiar with the Foundation? They are a great resource and hold an annual meeting on June.
hypersomniafoundation.org/

#hypersomnia

Last updated 2 years ago

a pox, how delightful, a pox · @poxeclipse
56 followers · 226 posts · Server mastodon.lol

@vanillafreesex I could quote this entire post and believe it was myself that wrote it! You took the words out of my mouth. So tired... It took finding a Sleep Doctor and trying a CPAP for a year before they'd give me meds to keep me awake. I do have , but they discovered I also have . I do NOT get restful sleep, ever. It's been a very long time since that happened. After working with this Doc for a year, they gave the Rx. My Psychiatrist would not

#sleepapnea #hypersomnia

Last updated 2 years ago

Mark Patterson, MD, PhD · @Mitdoc
171 followers · 69 posts · Server med-mastodon.com