RT @halesj126
Celebrating the last day of with my 💉💉

Many patients with and require regular infusions to keep their disease in remission, including me 🙋🏻‍♀️

Follow @CrohnsColitisFn to learn more about and help make

💩

#ibdtwitter #ibdvisible #IBD #uc #crohns #infusionselfie #ccawarenessweek

Last updated 3 years ago

Joshua · @airjoshb
6 followers · 17 posts · Server mastodon.social

A friend gave this pin to me yesterday as I head towards my 20th surgery in 10 yrs. IBD isn’t a degenerative disease or a terminal illness, but can bring you to the brink over and over. If you have Crohn’s or UC, this is for you 💪🧘‍♂️🥷

#crohnsandcolitisawarenessweek #ibdvisible

Last updated 3 years ago

Haley Mertens · @halesj126
11 followers · 22 posts · Server med-mastodon.com

Celebrating the last day of with my 💉💉

Many patients with and require regular infusions to keep their disease in remission, including me 🙋🏻‍♀️

Follow @CrohnsColitisFn@twitter.com to learn more about and help make

💩

#ccawarenessweek #infusionselfie #Crohns #uc #IBD #ibdvisible #ibdtwitter

Last updated 3 years ago

Sarah May :orangewine: · @sarahmayg
117 followers · 310 posts · Server epicure.social

Day 6 of , I skipped days 4 and 5 because I had a fun intestinal flu which has triggered a flare-up. I feel like shit. Crohn's Disease affects my mental health because it is difficult to live with chronic pain, sometimes I say to myself, 'I don't want to live like this.' Because it's not just the intestinal pain, it's the arthritis and the exhaustion. I was thinking about going back to uni for a Master's degree and wonder if it is even possible. Anyway this disease sucks and there is no cure and I am at a higher risk of colon cancer. Apparently this intestinal flu is going around so I am not looking forward to people saying, 'I had intestinal flu for 2 days, now I know how you feel.' You don't. You get to go on with your normal life. I don't. Also assisted suicide is not legal in Italy and thanks to the Vatican it probably never will be.

#ccawarenessweek #crohnsdisease #ibdvisible

Last updated 3 years ago

Sarah May :orangewine: · @sarahmayg
115 followers · 299 posts · Server epicure.social

Day 4 of Let's talk about diet. If you have Crohn's or Colitis I highly suggest starting with an elimination diet to see what are your triggers. 90% of the time it's going to be dairy, high fat animal products. But everyone is different. For me, eating a high fiber diet with no animal fat or protein has been best. And variety is key. It's not just oatmeal and some psyllium in the morning. The more variety of plants one eats, the healthier the gut biome. When I started eating like this, it seemed counterintuitive to eat MORE fiber, but it has been a lifechanger. Read 'Fiber Fueled'

One thing that always bugs me is when people without IBD give me dietary suggestions, or judge me for enjoying wine or a coffee. Please don't make suggestions, we are already aware of whatever 'study' you read about in Vogue or USA Today. We read the medical journal. Don't mansplain my disease to me, also don't suggest a gluten-free diet.

#ccawarenessweek #crohnsdisease #ibdvisible #fiberfueled

Last updated 3 years ago

GIdietitian · @GIdietitian
29 followers · 37 posts · Server mstdn.science

RT @IBD_Nutrition
Individuals with IBD are at risk for nutritional deficiencies bc of⬇️nutrient intake, malabsorption,⬆️energy expenditure, and/or⬆️losses.

For we want to provide information on common micronutrient deficiencies.

Today we'll review: Zinc✨

#ccawarenessweek #ibdvisible

Last updated 3 years ago

GIdietitian · @GIdietitian
29 followers · 37 posts · Server mstdn.science

RT @CrohnsColitisFn
Did you know that the Foundation has over 200 support groups for patients and their caregivers? Make on day three of by connecting with people who can support you in your IBD journey. Learn more about how to find support: bit.ly/3XR9zDz

#IBD #ibdvisible #ccawarenessweek

Last updated 3 years ago

GIdietitian · @GIdietitian
29 followers · 37 posts · Server mstdn.science

RT @IBD_Nutrition
Individuals with IBD are at risk for nutritional deficiencies bc of⬇️nutrient intake, malabsorption,⬆️energy expenditure, and/or⬆️losses.

For we want to provide information on common micronutrient deficiencies.

Today we'll review Vitamin B12✨

#ccawarenessweek #ibdvisible

Last updated 3 years ago

LoriPlung · @LoriPlung
29 followers · 37 posts · Server mstdn.science

Today is Day 3 of Crohn's and Colitis Awareness Week!

I've chosen to make IBD visible by sharing a photo of the completion of my 10-hour TPN infusion.

TPN stands for total parenteral nutrition. It supplies me with all the nutrients my body doesn't absorb due to my short gut. It keeps me hydrated and feeling well.

This is how I gratefully begin every day!
IBD Can't Stop Me!!!!


#ccawarenessweek #ibdvisible #crohnsdisease #tpn #shortbowelsyndrome #grateful #Gastrodon #IBDdon

Last updated 3 years ago

LoriPlung · @LoriPlung
28 followers · 36 posts · Server mstdn.science

Today is day two of Crohn’s and Colitis Awareness Week.

I'm proud to support and advocate for my fellow IBD Warriors and make IBD VISIBLE!

Who’s with me?

#IBD #ibdvisible #Gastrodon #IBDdon #crohns #UlcerativeColitis #ibdwarriors #ccawarenessweek

Last updated 3 years ago

GIdietitian · @GIdietitian
29 followers · 37 posts · Server mstdn.science

RT @CrohnsColitisFn
For every day of , there is a new way for you to make ! Join us Dec. 1 - 7 as we raise awareness of and and advance our mission to find cures and improve the lives of people living with . bit.ly/3g2iLiV

#ccawarenessweek #ibdvisible #crohnsdisease #UlcerativeColitis #IBD

Last updated 3 years ago

Haley Mertens · @halesj126
10 followers · 15 posts · Server med-mastodon.com

It’s officially and I’m making ‼️

👉 @CrohnsColitisFn@twitter.com @CCfdnWisconsin@twitter.com

#ccawarenessweek #ibdvisible #GITwitter #ibdtwitter #WomenInGI

Last updated 3 years ago

Sarah May :orangewine: · @sarahmayg
109 followers · 271 posts · Server epicure.social

It's IBD awareness week and this is
I was diagnosed with in 1999, but had symptoms for four years prior. My (It's very common in medicine) prescribed Prozac to me for years when I would go in with symptoms like explosive bloody diarrhea, extreme abdominal pain, arthritis, and long term fevers. He diagnosed me with 'hysteria' and depression. I almost died of sepsis when I went to the ER in the worst pain of my life with a perforated bowel. If he had just referred me to a GI I may have had better treatment and an earlier diagnosis. There are millions of us living with an and but it doesn't define me. I am still a person who happens to live with an uncurable disease that impacts my life every day. Over the next week I plan to share my story to raise awareness.

#myibdstory #crohnsdisease #misognistdoctor #invisibledisability #chronicpain #ccawarenessweek #ibdvisible

Last updated 3 years ago

Haley Mertens · @halesj126
10 followers · 10 posts · Server med-mastodon.com

RT @CrohnsColitisFn@twitter.com

For every day of , there is a new way for you to make ! Join us Dec. 1 - 7 as we raise awareness of and and advance our mission to find cures and improve the lives of people living with . bit.ly/3g2iLiV

🐦🔗: twitter.com/CrohnsColitisFn/st

#ccawarenessweek #ibdvisible #crohnsdisease #UlcerativeColitis #IBD

Last updated 3 years ago

LoriPlung · @LoriPlung
19 followers · 25 posts · Server mstdn.science

It’s that time of the year again!

Crohn’s and Colitis Awareness Week
12/1 to 12/7

Let’s make and help all feel seen and heard!

#ibdvisible #ibdwarriors #Gastrodon #IBD #crohns #UlcerativeColitis

Last updated 3 years ago

shannon harvey · @shanharves
37 followers · 3 posts · Server mastodon.au

Hi 👋🏻 I’m a researcher, mostly on relationships and family violence. I lead a research team for a nfp and am about to start my PhD at UNSW, interrogating the gender binary in FV policy and practice.

I’m disabled, bi+ and genderqueer, and a White settler in “Australia.” I’m a parent of a small child. That stuff informs how I think, but also, identity shifts.

#introduction #research #socialpolicy #health #disabled #chronicillness #ibdvisible #queer #gender #trans #phd #codesign

Last updated 3 years ago

· @burgertron
6 followers · 353 posts · Server mastodon.sdf.org

RT @geerlingguy@twitter.com

You Only Have Crohn's Once made it to the top 100 LeanPub books for the past week! leanpub.com/you-only-have-croh — it's my slightly-irreverent take on IBD and Crohn's Disease.

🐦🔗: twitter.com/geerlingguy/status

#ibdvisible #ibd #crohns #ostomy #ostomyawareness

Last updated 3 years ago