Hiisikoloart · @hiisikoloart
24 followers · 199 posts · Server writing.exchange

Life with is hard enough, but to deal with and demonizing medications for , shit becomes excruciatingly painful.

So my next...few...comics will be dealing with that whole thing I am also making a complaint for because that is my way of processing these emotions.

tapas.io/episode/2929400

#adhd #sexism #transphobia #gaslighting #neglect #medical #idiopathichypersomnia

Last updated 1 year ago

Hiisikoloart · @hiisikoloart
20 followers · 174 posts · Server writing.exchange

A comic about and what it is like to live knowing that no matter how hard you try some stuff will always be forgotten.

tapas.io/episode/2902038

#comics #sleepdisorder #idiopathichypersomnia #memoryloss

Last updated 1 year ago

Hiisikoloart · @hiisikoloart
19 followers · 163 posts · Server writing.exchange

and have a lot in common due to not working properly on us who have IH.

Why is it that many of us feel horrible when it is hot? Nobody knows (yet) but what I do know is that I made a comic about it:

tapas.io/episode/2889911

#autonomicnervoussystem #idiopathichypersomnia #heatexhaustion

Last updated 1 year ago

Hiisikoloart · @hiisikoloart
12 followers · 112 posts · Server writing.exchange
Hiisikoloart · @hiisikoloart
12 followers · 111 posts · Server writing.exchange

I tried to sketch my today but it is so hot I couldn't think how to convey that disabled LGBTQAI+ people are just people and deserve to live in this world free with equal rights and equity....

#comic #idiopathichypersomnia

Last updated 1 year ago

Hiisikoloart · @hiisikoloart
10 followers · 31 posts · Server writing.exchange

I made this for a fellow brain some time ago and it was so fun to incorporate my IH Monster to it as a foe. :P

#characterart #dndplaymat #playmat #digitalart #dnd #idiopathichypersomnia #artcommission

Last updated 1 year ago

Hiisikoloart · @hiisikoloart
10 followers · 30 posts · Server writing.exchange

Some people truly fail to understand a fundamental truth about me and my condition: I am sleepy ALL the time. Not sometimes. Not just after a taxing task. Not only after pushing myself to use my brain noodles.

I have been sleepy EVERY WAKING MOMENT OF MY LIFE and there is no end in sight. I fight sleepiness, which is NOT CUTE, all the time. It just happens to grow when I do Anything at all.

#beyondsleepy #disability #exhausted #tired #sleepy #sleepdisorder #idiopathichypersomnia

Last updated 1 year ago

Hiisikoloart · @hiisikoloart
9 followers · 24 posts · Server writing.exchange

I always waking up starving like those lives I live in my dreams would be real and during each one I forgot to feed myself (like the goblin I am).

It's either that or weird metabomism.
What do you recon, is it or just a fun health thing? :P


#dreaming #sleep #idiopathichypersomnia #vividdreaming

Last updated 1 year ago

Ronnie (they/them) · @RonniesaurusHex
340 followers · 1769 posts · Server disabled.social

@hiisikoloart

It's so different when you're sleeping because you have to.

#idiopathichypersomnia

Last updated 1 year ago

Hiisikoloart · @hiisikoloart
8 followers · 13 posts · Server writing.exchange

I wish my legs didn't refuse to work for 30 minutes to one hour as I try to wake up from my endlessly deep slumber like an ancient cursed creature rising from depths of crypt long forgotten by the humanity...

...it would be nice to just get up sometimes instead.

#mornings #disability #wakingupsucks #sleepdisorder #idiopathichypersomnia

Last updated 1 year ago

Hiisikoloart · @hiisikoloart
7 followers · 11 posts · Server writing.exchange

A lot of people assume that I love taking my daily nap, and in general love sleeping because I sleep so much due to my .

You see...they don't understand how much it sucks to have to sleep so much VS having a CHOISE.

I hate sleeping. I would rather crawl on salt and broken glass for a 1.5hours than nap for that duration because it takes away my life.

#idiopathichypersomnia

Last updated 1 year ago

Ainebet · @ainebet
156 followers · 1313 posts · Server sfba.social

Only a few minutes into listening to The episode of podcast, and I'm already so pleased that they are telling the story of what it's like for those of us who are suffering right now due to a lack of medication. Thank you for telling our stories, @Vox !

megaphone.link/VMP7029960156

#adderallshortage #todayexplained #adhd #idiopathichypersomnia #Adderall #spoonie #chronicillness #neurodivergent

Last updated 2 years ago

Ainebet · @ainebet
154 followers · 1296 posts · Server sfba.social

Skipping two social events today that I'd really love to be going to, in favor of a day of bedrest, because my body demands it. Sometimes self-care is the WORST. ๐Ÿ˜ซ

#spoonie #idiopathichypersomnia #selfcare #SelfCompassion

Last updated 2 years ago

Ainebet · @ainebet
151 followers · 1190 posts · Server sfba.social

@antiaall3s @vickyvdtogt this list of symptoms is extremely similar to my symptoms with . Interesting.

#idiopathichypersomnia

Last updated 2 years ago

Ainebet · @ainebet
144 followers · 994 posts · Server sfba.social

Dreaming of a day in the future when I don't have to be so sleepy, because there's a cure. ๐Ÿ˜ด

#idiopathichypersomnia #beyondsleepy #spoonie #chronicillness #raredisease #sleepySunday

Last updated 2 years ago

Ainebet · @ainebet
139 followers · 906 posts · Server sfba.social

@CrankyCyborg I have and I see you. I hope you find relief soon.

#idiopathichypersomnia

Last updated 2 years ago

Ainebet · @ainebet
106 followers · 625 posts · Server sfba.social

Taking a writing class at the same time as my brain medicine ran out of stock has been... an experience. I think one of the biggest things I'm learning, is that somehow, apparently, can still write when I feel like I am about to fall over from mental and physical exhaustion. ๐Ÿ˜ด

#idiopathichypersomnia #buddywakefield #beyondsleepy #writing #poetry #spoonie #adderallshortage

Last updated 2 years ago

Ainebet · @ainebet
102 followers · 586 posts · Server sfba.social

My apartment smells like soap, and it's a beautiful thing! ๐Ÿงผ I let myself take one precious today so I could have a few to get things done that were piling up. Can't wait for this to be over!!! ๐Ÿ’Š๐Ÿคž

#Adderall #spoons #adderallshortage #spoonie #idiopathichypersomnia #adhd

Last updated 2 years ago

Ainebet · @ainebet
98 followers · 501 posts · Server sfba.social

After 6 days of increasing depression-like side effects (including spontaneous uncontrollable crying episodes) on I've decided to wait for my as long as I have to, till the ends - because feeling unfocused and sleepy is better than feeling depressed. I've heard Strattera is great for some people, but my brain apparently was not a fan.

#strattera #Adderall #adderallshortage #adhd #idiopathichypersomnia

Last updated 2 years ago

Ainebet · @ainebet
94 followers · 436 posts · Server sfba.social

Forced to try a totally different kind of medication for my and due to the . Not excited about it. Dreading it, really. It took me years to figure out a routine that made me feel able to function with my . Love on your friends - a lot of us are struggling right now.

#adhd #idiopathichypersomnia #Adderall #shortage #disabilities #neurodivergent

Last updated 2 years ago