#ILDMastodon 🫁 #ILD Community,

Personal reflection on important considerations in #IPF patients:

When a patient is diagnosed with idiopathic pulmonary fibrosis (IPF), the risk assessment, disease stage/severity, and initiation of antifibrotic treatment should not only be based on the percent predicted FVC. There are other important functional parameters (such as DLCO) or factors to be taken into account. 🧵

Dear #ILD community,

I would really appreciate it if you could help us spread this global survey. Thanks in advance 🫁🧬🌎

#ILDMastodon #FollowList

On behalf of the IPF/ILD Respiratory Effectiveness Working Group, I invite you to participate in this global survey to identify characteristics of ILD diagnostic practice (virtual MDTs) in the #PostCOVID era. Project info and survey link below 👇

https://www.regresearchnetwork.org/research-2/global-evaluation-of-the-interstitial-lung-disease-ild-diagnostic-pathway-in-the-post-covid-era/

@LucillaPiccari Hi Lucilla, I'm going to give it a try now, although I'm learning how Mastodon works. At the moment I have included 15 members on the #ILDMastodon list, I hope it can continue to grow as soon as more join Mastodon.
You can see the list below:
@Kaminskimed
@LucillaPiccari
@KerriJohannson
@divcpatel
@AlbertaPHdoc
@WillOldham
@leticiakawano00
@IPFdoc
@EricaFarrand
@jskim8223
@Jeffhorowitz
@jeffsparks
@PhDieude
@PilarRiveraOrtega
@tkulkarni

Dear #ILD community 🫁🧬

I have created the #FollowList #ILDMastodon

By the way, I saw a good tip yesterday: If you’re using an iPhone for Mastodon, you can download an app called Metatext. I am using it and so far so good 🤞🏻

Have a good weekend! 🌎🌍

#ILDMastodon

When Should Genetic Testing Be Used in the Diagnosis of ILD?

Pilar Rivera Ortega, MD · Manchester University NHS Foundation Trust
DISCLOSURES December 16, 2020

Medscape
Pulmonology Decision Point.

https://decisionpoint.medscape.com/pulmonarymedicine/viewarticle/940316?type%3DInterstitial%20Lung%20Disease%26subtype%3DNon-IPF%20Idiopathic%20Interstitial%20Pneumonias%26Diagnosis%20and%20Evaluation%3Dundefined%26Management%3Dundefined%26Non-IPF%20IIP%20Type%3Dundefined