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Tom Kindlon · @tomkindlon

534 followers · 720 posts · Server disabled.social

Open media

New from the US:
"Small Fibre Polyneuropathy As a Therapeutic Target for Patients with #InterstitialCystitis/#BladderPainSyndrome"

Free:
https://www.auajournals.org/doi/abs/10.1097/JU.0000000000003229.02

"SFPN is common in patients with IC/BPS & is significantly associated with concomitant diagnoses of #chronicfatiguesyndrome & diabetes mellitus"

#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME #MEeps

#interstitialcystitis #chronicfatiguesyndrome #MyalgicEncephalomyelitis #mecfs #cfs #myalgice #pwme #meeps

Last updated 1 year ago

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NomadicNerd (StoleUrSweetroll) · @NomadicNerd

90 followers · 483 posts · Server mindly.social

@bear_lab apparently I’m the only one on here with #InterstitialCystitis :(

#interstitialcystitis

Last updated 2 years ago

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NomadicNerd (StoleUrSweetroll) · @NomadicNerd

75 followers · 404 posts · Server mindly.social

Having a bad flare up day and I haven’t even eaten anything that’s a known trigger that I can think of. I guess I was sitting too long yesterday playing ps5? Idk. So annoying. I hate pain #IBS #InterstitialCystitis

#ibs #interstitialcystitis

Last updated 2 years ago

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Nellie Aurora · @nellie

9 followers · 18 posts · Server toot.community

My specific disabilities are #dysautonomia, #ChronicFatigue, #ChronicPain, and #MentalIllness.
Diagnoses: #mecfs, #fibromyalgia, #epilepsy, #InterstitialCystitis, #endometriosis, #psoriasis, #PsoriaticArthritis, #MajorDepressiveDisorder, #PanicDisorder and suspected #LongCOVID.

#Dysautonomia #chronicfatigue #chronicpain #mentalillness #mecfs #Fibromyalgia #epilepsy #interstitialcystitis #endometriosis #psoriasis #psoriaticarthritis #majordepressivedisorder #panicDisorder #LongCovid

Last updated 2 years ago

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BeingMe420 · @BeingMe420

19 followers · 96 posts · Server disabled.social

It’s hard to get a script for opioids & when you do, you have to worry about insurance & the pharmacy dictating over doctors’ literal orders. No one deserves this torture. I have #IntractablePain from #hEDS, #DegenerativeDiscDisease, #RhumatoidArthritis #osteoarthritis #InterstitialCystitis, #PCOS, #endometriosis & still finding more things. I can’t even get a script for tramodol, which was very effective for me in the past…& technically isn’t an opioid. I’m only offered non FDA (4

#intractablepain #heds #degenerativediscdisease #rhumatoidarthritis #osteoarthritis #interstitialcystitis #pcos #endometriosis

Last updated 2 years ago

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Andy. Be like Bucky. MASK UP! · @AndyRatchick

5 followers · 1 posts · Server neurodifferent.me

My #introduction post: I'm #Autistic & was diagnosed with "hyperactivity" before #ADHD existed in the DSM. I self-diagnosed in my 20s, back in the early 2000s, but only got an official diagnosis (privately, as the NHS in my area was useless for AFAB adults) in January 2020. In addition, I'm #dyspraxic and #dyscalculic too.

I'm #disabled and #ChronicallyIll - my main diagnoses are #PoTs , #CentralSleepApnea , #Endometriosis , #InterstitialCystitis and #HidradenitisSuppurativa (among others).

As well as being #ActuallyAutistic , I'm an #atheist , a #humanist and #demisexual , #bisexual and #nonbinary .

I love the #Marvel character #TheWinterSoldier and the actor Sebastian Stan, #Rats , #knitting , #crochet , #tunisiancrochet, #writing and anything #medicine or #scientific . #Learning is definitely a #spin (and clearly I love hashtags too 😂).

If I say something that seems off, please just ask me to clarify. I always try to say exactly what I mean, but that doesn't always translate in reality.

#introduction #Autistic #adhd #Dyspraxic #dyscalculic #disabled #ChronicallyIll #POTS #CentralSleepApnea #endometriosis #interstitialcystitis #hidradenitissuppurativa #actuallyautistic #atheist #humanist #demisexual #bisexual #nonbinary #marvel #TheWinterSoldier #rats #knitting #crochet #tunisianCrochet #writing #medicine #scientific #learning #spin

Last updated 2 years ago

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EAU · @uroweb

0 followers · 1 posts · Server med-mastodon.com

Hello Urology people! We have moved and are now under medics ☺️

We are here to listen and share for #Urology #ProstateCancer #BladderCancer #KidneyCancer #PenileCancer #TesticularCancer #UTUC #RCC #Urolithiasis #KidneyStones #Endourology #OAB #Incontinence #InterstitialCystitis #PedUro #KidneyTransplant #UroUTI #UroBPH #ReconstructiveUrology #UroTrauma #PeyroniesDisease #ErectileDysfunction #Andrology #LUTS #Priapism #Infertility #PelvicFloor #RenalTrauma #SexualMedicine #UroSoMe

#urology #ProstateCancer #bladdercancer #KidneyCancer #penilecancer #testicularcancer #utuc #rcc #urolithiasis #kidneystones #endourology #oab #incontinence #interstitialcystitis #peduro #kidneytransplant #urouti #urobph #reconstructiveurology #urotrauma #peyroniesdisease #erectiledysfunction #andrology #luts #priapism #infertility #pelvicfloor #renaltrauma #sexualmedicine #UroSoMe

Last updated 2 years ago

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Ashley sloth · @Ashleysloth

1 followers · 2 posts · Server disabled.social

Been trying to think of a good #introduction post. I'm Ashley, 42 year old they/them, a leftist that leans anarchist, my health issues are #fibromyalgia #InterstitialCystitis #agoraphobia #depression #anxietydisorder
Hobbies are horror movies, classic movies (without making excuses for the bad) silent film (same as before.) I miss being able to read books, my brain just won't focus.