Want to know what it’s like living with an #invisibledisease? I’m so tired that if it were possible for my toenails to be tired, they would. I opened my tin of coffee this morning and realized I needed to grind more beans for my latte. I nearly cried. So, I opened up @doordash

Another seizure, another tooth gone. Hit my head bad. In hospital, probably for a while now. Guessing I’ll be in EMU soon enough. Neck brace is precautionary until scans come back. This affliction has really heated up since I got Covid. Kinda over it. #epilepsy #seizures #invisibledisease #LongCovid #ineedabreak

Disability accommodations are on my mind today. I'm still learning to think of myself as disabled, because even though a lot of my disease is invisible, I am-by definition of the ADA-disabled, and I have the right to specific accommodations. This was discussed with my boss today in my yearly review. Because if my blood glucose is out of range, it directly impacts my performance and personality, and I need to make sure I am letting her know, so that I can have time to correct and feel better. That's an accommodation I'm entitled to, and it not only betters me, but those I work with. I have this mindset that I don't want to be a problem, or cause trouble for others, but by trying to just muddle through and that's not a good solution - for anyone. #ChronicIllness #InvisibleDisease #T1D #Disabled