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𝓖𝓲𝓪 𝓜𝓸𝓻𝓪 (she/her) · @giamora
488 followers · 838 posts · Server mastodon.green

My deepest sympathies to the loved ones of , whose far-too-soon passing illuminates how and are dismissed by medical professionals the world around.

nzherald.co.nz/nz/stephanie-as

While I have a less lethal form of than Aston, I have experienced firsthand the shock, surprise, and denial that my symptoms elicit from providers. Without greater awareness about this rare disorder, more women will suffer and die.

#stephanieaston #womenspain #invisibleillness #EDS #womenshealth #hEDS #hypermobility

Last updated 2 years ago
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Jeannette Ho · @Jeannho
192 followers · 3032 posts · Server glammr.us

"Hidden Barriers: The Experience of Academic Librarians and Archivists with Invisible Illnesses and/or Disabilities"

Interesting article in this month's issue of College & Research Libraries: crl.acrl.org/index.php/crl/art

#disability #hiddendisability #hiddenillness #invisibleillness #invisibledisability #librarians #diversity #archivists

Last updated 2 years ago
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W_Dräger 🦉 · @Cosmic_owls
136 followers · 976 posts · Server toot.lgbt

On days like today, I’m fortunate I make my own hours at work. My is absolutely debilitating and I’m stuck in bed.

#pain #invisibleillness #chronicpain #chronicillness

Last updated 2 years ago
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Allyson Shaw · @AllysonShaw
648 followers · 615 posts · Server wandering.shop

#accessibility #inclusion #disabledartists #DisabledWriters #disabledvoices #invisibleillness #disabledactivism #DisabledArtist #disabledcreator #disabilityinclusion #disability #writingcommunity #calltoaction

Last updated 2 years ago
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Reena Holzmann · @reena_holzmann
0 followers · 6 posts · Server me.dm
Medium - To everyone feeling invisible - this is for you | Medium

#mentalhealth #invisibleillness #loneliness #sadness #depression #support

Last updated 2 years ago
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Daniel Norton · @daniel
95 followers · 543 posts · Server mastodon.danielnorton.com

I wish more people (and doctors!) had a better understanding of ME/CFS.

cfsselfhelp.org/library/for-fa

#mecfs #cfs #mecfsawareness #chronicfatigue #invisibleillness #pots

Last updated 2 years ago
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Grace Tay · @gktaydesigns
10 followers · 16 posts · Server me.dm
Open media

#medium #wellness #spoonie #chronicillness #invisibleillness #doctor #health #baking #makingbread #selfadvocacy

Last updated 2 years ago
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Schmani · @Schmani
1 followers · 12 posts · Server norden.social

Doch kein Kollege oder Freund sieht es oder kann es verstehen geschweige denn nachvollziehen.
Ich bin 6 Jahre lang falsch diagnostiziert worden. Ich habe vor 3 Wochen die richtige Diagnose erhalten. Vorher hieß es immer, es sei psychosomatisch.
Liebe Ärzte. Seid doch so gut und nehmt eure Patienten ernst und gräbt auch mal an ungewöhnlichen Stellen.

#medibubble #erkrankung #invisibleillness #verzweiflung #schmerzen #hoffnung

Last updated 2 years ago
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Chris King 🏴󠁧󠁢󠁷󠁬󠁳󠁿 · @Brenin42
109 followers · 489 posts · Server toot.wales

I'm loving that the app now auto updates BG readings every minute.

I didn't know how I'd do without 3rd party app's widgets but all good so far: just set alerts in the Libre app.

There is a bug with Android where 'do not disturb' disables high/low alarms, despite correct permissions being set in the app to override DND.

#libre #diabetes #typeonediabetic #t1diabetic #t1d #welshdiabetic #welsh #invisibleillness #autoimmune

Last updated 2 years ago
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Anna-Elizabeth · @AnnaElizabeth
4 followers · 29 posts · Server tooters.org

#disabled #accessibility #adhd #autism #ocd #ptsd #bipolar #depression #invisibleillness

Last updated 2 years ago
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Ammi Embry · @ammi
24 followers · 36 posts · Server dcae.fyi

Why do I mask?

I stubbed my toe today and now that whole side of my body hurts. What do you think a cold does?

#mask #covid #eds #chronicfatigue #invisibleillness

Last updated 2 years ago
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donkey jess · @adonkumentary
290 followers · 415 posts · Server ohai.social
Open media

I've tried to find words for what it's like living w : the combination of fatigue & burnout to the guilt of feeling like a burden to everyone you know being an overwhelming place to exist. As I'm anxiously waiting for some lab/test results, I'm reminded of a story I wrote a couple years ago.

>> adonkumentary.com/2021/05/30/s <<

There's more I'd like to write but I'm out of space. Would love to know your thoughts 🖤🖤

Love, Jess

#chronicillness #invisibleillness #spoonie #donkey #minidonkey #asstodon

Last updated 2 years ago
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Sam Kelly · @samkellyfitness
0 followers · 1 posts · Server mas.to

Recently joined here and trying to navigate a new platform. I'm interested in and

#cats #invisibleillness #unseendisability #streetparking #fitness #phdchat

Last updated 2 years ago
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Fussy Geek Wares · @FussyGeekWares
52 followers · 110 posts · Server mastodon.art
Open media

I created this t-shirt using one of my pin designs, so I could help spread the word of &

April is Adenomyosis Awareness Month, the lesser known sister illness to Endo.

Having an angry uterus is more than just difficult periods. It can be a debilitating illness and is definitely an invisible one.

#invisibleillness #endowarrior #adenowarrior #adenoapril2023 #chronicallyill #chronicpain #adenomyosis #endometriosis #angryuterus

Last updated 2 years ago
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Carrie 🌏 My Several Worlds · @carriekellenberger
67 followers · 46 posts · Server mindly.social
Open media

Gearing up for April and some HUGE announcements.

I might be a legit world-class weakling because of disabling arthritis, but I promise I am one of the toughest chicks you'll ever know!

🏷






#lifewithpain #itsnotjustarthritis #chronicillness #chronicpain #axSpA #spoonie #sickselfie #spondyloarthritis #mychroniclife #AnkylosingSpondylitis #stillsick #fibromyalgia #mecfs #invisibleillness #disability #butyoudontlooksick #arthritis #DisabilityAwareness #chronicallyfabulous

Last updated 2 years ago
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Joecephus · @Joecephus
45 followers · 2544 posts · Server liberdon.com
Open media

It's my Infusion day. The doctor's office is the only place I wear my face muzzle.

#granulomatosiswithpolyangiitis #wegenersgranulomatosis #wegenerswarrior #autoimmunedisease #invisibleillness #rituximab

Last updated 2 years ago
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瑠璃玉薊(songbird) · @ruriazami
34 followers · 742 posts · Server songbird.cloud
Hello, My Fighters! -IgA天疱瘡、難病とともに暮らす- - 英語の病気コミュニティで使われているハッシュタグ４個 - Hello, My Fighters! -IgA天疱瘡、難病とともに暮らす-

英語の病気コミュニティで使われているハッシュタグ４個

>
>
>
>,

hellomyfighters.com/entry/hash

#chronicillness #invisibleillness #spoonie #〇〇warrior #〇〇fighter

Last updated 2 years ago
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Evie 🏳️‍⚧️🏳️‍🌈⚢💍♾ · @SleepyCatten
1526 followers · 425 posts · Server cultofshiv.wtf
Open media

I saw this artwork post by "Screw Consciousness" on Tumblr a couple of weeks ago.

tumblr.com/screwconsciousnessb

Holy DAMN did it hit me right in the feels for all the lovely people in my life who suffer with chronic pain 🥺

#chronicpain #invisibleillness #spoonie #DigitalArt

Last updated 3 years ago
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Jess For A Laugh · @meeple
24 followers · 13 posts · Server mstdn.games

#chronicillness #invisibleillness #mentalhealth #prochoice #hashing #h3 #barfleet #followfriday #followbackfriday

Last updated 3 years ago
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Nei Thunder · @nei
118 followers · 1 posts · Server lgbtqia.space

Hmmmm, most about me is in my profile. I live in . I have , so I spend most of my time . I like a few games, and , , , various , and comic based shows.

My header pic is two goofy young cats, one brown tabby, the other white, and they’re cuddled together with their mouths open and tongues sideways, looking like they’re goofing off. My avatar pic is a long-haired tabby, wearing a brown toque and orange booties, sitting like a person.

#canada #invisibleillness #online #nature #historical #supernatural #drag

Last updated 3 years ago
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