Carly Pops 🍓 · @carlwhyz
132 followers · 169 posts · Server aus.social

This is #21 of what I call "Good Juice Day", and the last for 2022.

It's IVIG for this of you who don't know (intra-venous immunoglobulin).

I made cookies 🍪 and rocky road 🍫 for my wonderful 👩‍⚕️👩‍⚕️.
If I could do the same for all the people who donate whole blood or , I would.
THANK YOU if you are one of those superheroes 🦸‍♀️🦸‍♂️
And if you're not but you've considered it, please know that I have a pretty darn awesome life - despite the odds - because of this treatment, and I'm just one person.
Imagine the difference you can make to thousands!
Much love 🤗❤😀

#nurses #plasma #blooddonor #donation #stiffpersonsyndrome #raredisease #ivig #grateful #gratitude #thankyou

Last updated 3 years ago

Michael Stingl · @neurostingl
1710 followers · 52 posts · Server mastodon.social

Interessante kleine Fall-Kontroll-Studie, wo die Gabe von einen deutlichen Effekt bei hatte.

Spannenderweise ohne offensichtliche Indikation anhand festgestellten Autoantikörpern.

Brückenschlag zu gibts auch!

Solche kleinen Studien sind klarerweise keine Aufforderung, jetzt immer mit IvIg zu behandeln - das ist ja auch eine extrem teure Therapie.

Aber es sollte dringend herausgefunden werden, wem ein immunmodulierender Ansatz helfen könnte.

onlinelibrary.wiley.com/doi/10

#ivig #LongCovid #mecfs

Last updated 3 years ago

@hilbolling heb COVID gehad toen ik nog niet wist dat ik + + heb. Ze hebben altijd gezegd dat het was. Pas genezen van na 2 jaar hel & het opstarten van . Beterschap!

#ivig #LongCovid #fibromyalgie #mcas #spad #hypogammaglobulinemie

Last updated 3 years ago

Kim · @kimlango
45 followers · 117 posts · Server mas.to

Microglial synapse elimination in SARS-CoV-2 with overlapping neurodegenerative disease & increased incident risk. Next big question. Is this the same clinical process that causes Neuro dysregulation in and & could improve synaptic function in patients since it improves c/o brain fog in this target group?

nature.com/articles/s41380-022

#MedMastodon #LongCovid #ivig #postviralsyndrome #me

Last updated 3 years ago