This is an amazing cause and an amazing run. My son was diagnosed with KLS in 2017 and I completely understand the motivation. #RareDisease #KleineLevinSyndrome https://www.portugalresident.com/charity-run-from-london-to-paris-in-aid-of-kls/

We met the chronic fatigue clinic in June 2021 and talked about possible sleep conditions, #KleineLevinSyndrome, #Non24 Sleep/Wake Disorder. It was dismissed as anxiety. They could not see the impact and severity in a 60 min meeting. 7/11