KAOS · @KAOS
382 followers · 7055 posts · Server dragonscave.space

Apart from that, I went to two workshops yesterday. One was about "being your own experts" - communicating with doctors and other medical staff, because it's a common problem that doctors know very little about your or your kid's condition and you need to be very adamant that certain examination will be made or that some things will be done in a different way than with other patients (typical example is that they need to be very careful with narcosis for patients with Achondroplasia, and the patients need extra monitoring).

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Last updated 1 year ago

KAOS · @KAOS
382 followers · 7049 posts · Server dragonscave.space

The kid is happy with his kids group, so we parents can fully focus on what's interesting to us. Yesterday evening, after bringing him to bed, we went to the bar and had many good conversations.

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Last updated 1 year ago

KAOS · @KAOS
382 followers · 7048 posts · Server dragonscave.space

I had plans to write some more, but there's just too much going on here. :dragon_cookie: Yesterday, I was at the opening talk and at the talk with news about the association, and in the evening there were various groups for different diagnoses. We belong to the group for the "rare and unclear" - this time there were about 20 people with about 7 different diagnoses, and we needed to get more chairs!

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Last updated 1 year ago

KAOS · @KAOS
382 followers · 7048 posts · Server dragonscave.space

The event has not even started officially, but we've already met so many people we know. We only attended once before (last year), but we also went to a seminary for "new parents" in 2019 and to two local events.

Also, we already made use of the really nice swimming pool and I was even in the sauna & in the gym for a bit. :dragon_cool:

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Last updated 1 year ago

KAOS · @KAOS
382 followers · 7045 posts · Server dragonscave.space

...and a first look at the loooooong list of participants revealed that @RaulKrauthausen , who'll give the opening talk tomorrow, is going to be here for the rest of the time as well! :dragon_owo:

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Last updated 1 year ago

KAOS · @KAOS
382 followers · 7044 posts · Server dragonscave.space

Just arrived at the big annual event of the German association of short-statured people & their families. \o/ It's gonna be fun!

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Last updated 1 year ago