Maggie Maybe · @maggiemaybe
328 followers · 2120 posts · Server hear-me.social

@bhawthorne I got from mono not Covid. Back in the spring of 2020 when I started low-dose naltrexone I thought I got myself into . After the first dose I was sleeping through the night, I could get up in the morning and not go immediately back to bed, I didn’t need a nap, just a peaceful relaxation midday sometimes but not full sleep. I was working part time at the time and even though we were in semi lockdown I was still going to work because I worked by myself. So anyway I told my boss I could work both Saturday and Sunday because I thought I could.

Omg hahahhaha NOPE. I was able to do it for four weeks before I crashed so hard I thought I had Covid, I had to do some radical resting to just get back to baseline, and I never got back to the feeling of “remission” I got from LDN even though it is still life changing, I didn’t get back to the level I was at.

I’m just grateful I was able to get back to my new where I can sleep through the night unless I’m in a crash, I don’t have to nap every day but I still have to nap sometimes. The is still totally worth it, I still get about 4 to 6 usable hours a day whereas it was only like 1 to 2 before I tried the LDN, but when I thought I was in remission it was so wonderful I’m so mad I destroyed it for a part-time job.

#mecfs #remission #baseline #ldn

Last updated 1 year ago

Maggie Maybe · @maggiemaybe
312 followers · 1998 posts · Server hear-me.social

@Tweetfiction @Terra But you guys, 0.5 mg of low dose naltrexone has had it growing back so fiercely I’m afraid I’m going to lose my widows peak because my hairline keeps creeping down my forehead. Seriously if I remember to come back to this later after I take a shower and get myself together I will share a picture of all the new growth it’s absolutely amazing. if stopped working for I’m pretty sure I would continue to buy it just for the new growth.

#ldn #mecfs #hair

Last updated 1 year ago

Maggie Maybe · @maggiemaybe
253 followers · 1835 posts · Server hear-me.social

@ahimsa_pdx @TransitBiker I have from and saved my life. I just take 0.5 mg every morning and I saw results after the first dose. I used to only have about 1 to 2 usable hours a day and now I can use more like 4 to 6, but the best part is I sleep through the night now most nights. I used to wake up at four or 5 AM wide awake but completely exhausted, after my first dose of LDN I slept until 9 AM the next day. And I don’t need to nap every day anymore.

But if I skip it for more than a few days those symptoms come right back. And some days it can’t save me and I need to take 10 mg of prednisone or Adderall to make it through the day.

#mecfs #ebv #ldn

Last updated 1 year ago

Rachel aka Ruby · @rubyflames
53 followers · 138 posts · Server kopiti.am

Hey folks, any recommendations for London and Norfolk, UK?
Would like to experience local life, food and culture.

#norfolk #london #ldn #reccs #travel

Last updated 1 year ago

Pascal Garber · @jumplink
18 followers · 139 posts · Server floss.social

🎙️Neue Podcast-Folge von "Lage der Nation"! In der 341 Spezial Interview mit Bundesumweltministerin Steffi Lemke 🌍. Spannende Diskussionen und Einblicke in die aktuellen Umweltthemen erwarten dich, nicht verpassen! 🌳🐦
Link zur Folge: lagedernation.org/podcast/ldn3

#ldn

Last updated 1 year ago

Lukas Fütterer · @lukizzl
170 followers · 42 posts · Server mastodontech.de
ahimsa · @ahimsa_pdx
625 followers · 4816 posts · Server disabled.social

Quote:

“The research funding also provides for a clinical trial using identified pharmacotherapeutic targets and the registered drug, low dose naltrexone (LDN), to be used in a clinical trial for both ME/CFS and Long COVID patients."

#LongCovid #mecfs #research #ldn

Last updated 2 years ago

Tom Kindlon · @tomkindlon
561 followers · 887 posts · Server disabled.social

Good news from Australia:

$6.4 million grant to NCNED &
research program.

Among other things, will allow a trial of low dose naltrexone for &
in Queensland, New South Wales, and Victoria

news.griffith.edu.au/2023/04/1

@mecfs @longcovid @cfs

#mecfs #LongCovid #ldn #lc #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc

Last updated 2 years ago

isaacs · @isaacs
1530 followers · 1969 posts · Server fosstodon.org

I've never been one to "fall" asleep, I always intentionally *go* to sleep. But a few times lately, I've woken up at 2am, all the lights on, netflix still playing, like wtf happened!?

When I describe this to people they're like "Yeah? that's... normal?"

Also, waking up is harder. Like, I don't just wake up and then be awake, there's this whole "waking up" process, where I'm groggy and slow.

Which I'm told is also "normal". I don't prefer these effects.

#actuallyautistic #ldn

Last updated 2 years ago

w4ts0n / Lukas · @w4ts0n
39 followers · 2732 posts · Server nerdculture.de

@vieuxrenard @lagedernation Vielleicht eine mögliche Lösung für das "Keine SEPA für Lage Plus Abo"-Problem: LagePlus Abos über eure Pretix Instanz kaufne zu können (vgl. pretix.eu/about/en/features/pa).

#podcast #lagedernation #ldn

Last updated 2 years ago

Lisa Salinger · @Lisasali
1 followers · 21 posts · Server mindly.social

I started taking 3 days ago for treatment of symptoms. This side effect is not indicated in the literature, but I get so hungry in the afternoons and evenings! I am ready to gnaw on my own fingers. Anyone ever heard of this?

#ldn #LongCovid

Last updated 2 years ago

Forest Hill News · @se23
17 followers · 236 posts · Server social.brainsys.com

RT from London Briefly (@LondonUK_b)

Flat left damaged as six people escape midnight fire in Forest Hill (www.newsshopper.c...)

Six people have escaped a fire in Forest Hill (Image: Newsquest) Six people have escaped a f...

Add your highlights:
briefly.co/anchor/London/story

Original tweet : twitter.com/LondonUK_b/status/

#london #uk #ldn

Last updated 2 years ago

Maggie Maybe · @maggiejk
240 followers · 1971 posts · Server mstdn.social

I hate that if this was three years ago I would be gushing about how nice John is. I hate that because I wrote “I’m not a republican, I believe health and safety regulations exist for a reason” that I have a reason to worry that John is a MAGAt & these are rat poison and not .

#ldn

Last updated 2 years ago

Mike Brondbjerg · @mikebrondbjerg
466 followers · 314 posts · Server vis.social

Further, Further WIP

#ldn #london #dataviz #processing

Last updated 2 years ago

Maggie Maybe · @maggiejk
143 followers · 806 posts · Server mstdn.social

@kims @dangillmor as I get older it seems compounding pharmacies can help me a lot more than medications they make commercials about. is the only thing that has ever helped that comes from the pharmacy. CBDRSO is also amazing & I but that from a dispensary in Maine. And Medicare enjoys that because they don’t pay for any of those things.

#mecfs #ldn

Last updated 2 years ago

Markus · @mbirth
78 followers · 1225 posts · Server mastodon.social
Skaly (They/Them) · @skaly
2572 followers · 513 posts · Server mastodonapp.uk

Londoner??
Comment anything, and you'll get an invitation to an event happening on the 7th of Feb in Central London 😊

#london #ldn #uk #british #england #Londoner #londoners #liveshow #music #musicians #introduction #mastodon #UnitedKingdom

Last updated 2 years ago