A friend shared this with me while we chatted about experiencing early Alzheimer's & MS ... 🤯

#HangInThere #LivingWithMS #alzheimerscare #disabilityjoy

Earnest post, asking if/how mastodon #MS peeps have noticed meditational practices helping #livingwithMS ? Anyone here spiritually practicing Buddhism or any other tradition? Or building their own spiritually unique practice & mythologies?

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Background:
I'm new here & with MS. Several years of mysterious symptoms that escalated just 4 months ago. Rn only have GP support/access & on a long wait list for Neuro appt for diagnosis process. It's a mind-blowing soul-crushing state of limbo as a lone migrant w no family support.

I first noticed that I would lose balance during Tai chi, veer sideways when taking nature walks in 2019. Now I've stopped doing Tai Chi at the parks & only do restorative yoga in my room. I used to join Sufi chanting/head-banging & whirling but I'm home bound & get dizzy when I try it at home lols

Breathing is my only doorway atm. I'm doing Prayanam & incorporating spiritual elements from my heritage, chanting & having a dialogue w all the elements in me.

Awareness, being Just-Is, having unobstructed flow have helped me to stay sane.. I'm noticing the traffic inside the circuitry and I observe tightness, freezing, woodening, firing & much more.

Being Neurodivergent, I grew up absorbing so much for example a quiet room in a library is noisy to me. I hear & feel a lot. It was the 80s, growing up in the global south, i had no choice but to cultivate some peace in a noisy world. I went within.

Not having medical support, the same practice that helped me cope w cPTSD & Autism is also helping me with MS.

The hardest struggle for me is balancing the philosophical/spiritual aspect that I am not my body when my body really demands my advocacy..

Being mindful & meditative is effortless but the traffic/flow that rushes through my system is heavy & I'm exhausted.

I turn to poetry, philosophy, a confluence of science and Non-Dual spirituality from various traditions in my heritage. Adrienne Maree Brown & the Emergent Strategy movement have fueled me too. Recently found Sophie Strand's work bridging self constructed mythology, philosophy and disability.

I'd love to hear how others are finding practices that helps them face the abyss ✨🕳️

#multiplesclerosis
#mschat
#spoonies
#buddhism #esoteric #mysticism #sufism #spirituality #philosophy #sophiestrand #adriennemareebrown

Mijn ontbijt de komende dagen. #livingwithms #Methylprednisolon #schub #relapse