Moby MicroDick · @Moby_MicroDick
105 followers · 140 posts · Server piaille.fr

Les daron-nes qui mettez vos gosses en colonie de vacances, c'est quoi votre prise en compte du COVID ?! 😬 Parce que mis à part décider ouvertement du risque maximum au niveau contamination/s…
🌶️ On rappelle le contexte : 1 enfant sur 6 présente des symptômes persistants de COVID 3 mois après l'infection, et donc des dommages cliniques sur le long cours, dont (vous savez tous les petits organes qui déconnent en vasculaire, pédiatre à répétition… 😒).

#longcovidkid

Last updated 2 years ago

Tom Kindlon · @tomkindlon
564 followers · 915 posts · Server disabled.social

Trial by Error by David Tuller Professors Crawley, Chalder & Colleagues Investigate Paediatric Long Covid in Yet Another Study with a Stupid Acronym:

“The CLoCK study is only the latest example of questionable work connected to this bunch. It seems largely based on long-held but unproven assumptions that unexplained symptoms are mainly caused by psychosocial factors"

bit.ly/41to1mC

@longcovid

#LongCovid #PostCovid #PostCovid19 #CovidLong #covidlongkids #longcovidkid

Last updated 2 years ago

Tom Kindlon · @tomkindlon
555 followers · 864 posts · Server disabled.social

Article from Germany on children, ME/CFS and research on treatment approaches as pacing and relaxation techniques.

bit.ly/3GJJ3oI

“ME/CFS stands for / . It is considered the most severe form of

“In adults, scientists assume that Corona has at least doubled the number of patients with []”

@longcovid

#LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #PostCovid #cfs #longcovidkid #LongCovidKids #CovidLong #covidlongkids #mecfs #cfsme #pwme #pwmes #cfids #pwlc #lc

Last updated 2 years ago

Tom Kindlon · @tomkindlon
541 followers · 752 posts · Server disabled.social

"The overwhelming response has just been complete shock that children can be so badly affected and yet more is not being done to help them." Stacey Poole ITV News correspondent

"We are seeing a similar severity to what we saw with some post viral illnesses before " - Dr Emma Parish - Consultant at a Long Covid Paediatric clinic.

Full ITV Meridian segment (~8 mins) on in children broadcast yesterday.
youtube.com/watch?v=jrCEGETpdF

@longcovid

#covid #LongCovid #longcovidkid #pwlc #mecfs #cfs #pwme

Last updated 2 years ago

Tom Kindlon · @tomkindlon
541 followers · 751 posts · Server disabled.social

ITV Meridian Facebook discussion - Stacey Poole interviewing Binita Kane about in Children.

Full interview (43 mins)
fb.watch/jz7dg2hLBL/

"Illness post viruses is not new its been around for decades we've got a condition called ... its been a very neglected area of research."

@longcovid

#LongCovid #mecfs #chronicfatiguesyndrome #MyalgicEncephalomyelitis #longcovidkid #LongHaulers #covidlonghaulers #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 2 years ago

Tom Kindlon · @tomkindlon
541 followers · 748 posts · Server disabled.social
Cynthia Adinig · @CynthiaAdinig
0 followers · 2 posts · Server disabled.social

Hello to all my fellow Long Covid and advocacy orgs and advocates here. Brief intro. I'm a black long covid advocate from the first wave and mom of a genius long Covid kid. Still recovering. POTS, MCAS, EDS, and who knows what else. I'm always fighting the good fight in disability and equity often with just my keyboard. I'm knee-deep in policy, legislation, research and writing. Feel free to follow me.

#mecfs #longcovid19 #longcovidkid #longhauler

Last updated 3 years ago

Heike · @will_ins_Gruene
81 followers · 74 posts · Server medibubble.org

"Kalea hat damals erneut Corona bekommen. Sie konnte danach für drei Monate nicht mehr allein laufen, wurde ein Pflegefall, bis heute ist das so geblieben. Und jetzt? Willkommen in dem Chaos der Ämter ..."

Ein ganz wichtiger Beitrag, der hoffentlich der breiten Öffentlichkeit klar macht, dass auch Kinder und Jugendliche an erkranken und die schwere neuroimmunologische Erkrankung entwickeln können.

@mecfs_de


m.focus.de/gesundheit/coronavi

#LongCovid #mecfs #COVID19 #longcovidkid

Last updated 3 years ago