Is Fatigue in a Community-based #LongHaulCOVID Cohort ME?

https://atsjournals.org/doi/abs/10.1164/ajrccm-conference.2023.207.1_MeetingAbstracts.A4907

ME Criteria used odd: Fatigue + "2 more of following: MOCA <26, ECOG [physical functioning] >2, or new sleep disturbance"

MOCA tests cognitive impairment but usually self-report sufficient.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #longhaulers #LongCovid #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC @longcovid @mecfs @cfs

#covidstudies #longcovid #longhaulers #longhaulcovid #covidtransmission #oculartransmission #N95s

I cannot stress enough how much #truvada for #longcovid #longcovidnz #persistentcovid is helping. And in such a short period of time as well. Absolutely nuts. If you are a #longhaulcovid person I highly recommend giving it a go. Covid is airborne HIV.

For the rest of you. If you haven't had it yet I highly recommend you up your masking game. Don't catch this virus. Immunity debt isn't real.

recent studies have come out that up to 4 MILLION people are out of work and disabled by Long COVID JUST IN THE US. There’s absolutely nothing normal about life today, nor we will never go back to that, it’s physically impossible. Those people are just gone. So many people disabled. And maybe if people would stop trying to force that and accept that things are different, 2/ #LongCovid #covid #COVID19 #PASC #longhaulcovid #LongCovid #covid19 #mask #masking #masks #WearYourDamnMask #wearyourmask

Question for my fellow longhaulers: does alcohol make you feel better or worse?
#LongCovid #Longhauler #LonghaulCovid #Covid19

It seems a few things help me to improve my symptoms. #Bananas, #greekyougurt, #corn, #sharpcheddar, #probiotic, #multivitamin, #orangejuice, #bcomplex and #weighted items (e.g. blankets, hoodies, etc). Of course water, sleep and warmth is great too. This isn't some cure, these are just things I notice I feel better or really good. Thank fuck for that. #LongCovid #LongHaulCovid

Yikes. Ok. Found some info that CoQ10 inhibits blood thinning medication. That's not great for #LongCovid #longhaulcovid #persistentcovid
I will need to do further reading to see if #nattokinaise can be taken with it. I'm seeing a lot of benefits from the fatigue aspect of LC with CoQ10, but the risk of clotting with LC is an issue on top of now further issue of clotting with the #CoQ10 supplement.

It seems no matter what supplement I find there is some downside to them that would affect the symptoms of LC in some other way. So getting around these issues is a whole thing. I need to let myself get into another rabbit hole and study hard on this. Try find a solution

Anyone experiencing the cold and heat differently now? Does it register at all? Somewhat? Are there body parts/areas more or less sensitive? Are the sensations new or slightly changed compared to before you got sick? Is it difficult to tell between feeling temperatures or other sensations and feeling sick? Flare in symptoms? Just wondering. #LongCovid #LongHaul #LongHauler #LongHaulCovid

Yup... I was left to die. I still haven't received any help or treatment. Fuck all of you who acted like I'm invisible. You're about to find out what it feels like. 🖕#longcovid #covidlonghauler #chronicillness #longhauler #longhaulcovid #disabilityawareness
https://www.tiktok.com/t/ZTRxvUUH1/