The absolute #worst thing about having #LongQTSyndrome is that you can't take any over-the-counter medications for things like an upset stomach.

Today, I'm reminded of that while my body decides it hates me. At the same time, dehydration is VERY dangerous if you have LQTS because reduced electrolytes can screw with your heart pacing.

Guess I'm chugging extra water and electrolytes today.

#NotFeelingWell

https://www.washingtonpost.com/health/2023/01/14/fainting-spells-cardiac-mystery/
Living with symptoms of Long QT, blackouts, and endless poor diagnosis. #longqtsyndrome

As someone with #longqtsyndrome, a medical condition which causes irregular heart rhythms, I must admit the first thing I thought about #DamarHamlin’s collapse was that it might be cardiac related.

I don’t know more other than just now finding out that indeed, an AED was used to stabilize him.

It’s maybe a good idea to become familiar with an AED. I carry one with me when I’m traveling away from home.

Save a life.

https://youtu.be/S8O1vWQKwpM

It’s weird that every night I take these two little pills that literally save my life (although they also make working out less fun because they act like speed limits for my heart).

Thank you, science. I was born one year after this drug was invented…and because of it, I hope to live for many more years. #nadolol #longqtsyndrome #lqts

Oh, and get this, thanks to science we also know that my family appears to have an as yet unconfirmed genetic variant that’s maybe causing our LQTS. Neat!

@stavvers as someone who both loves coffee* and has #longqtsyndrome #lqts, I am already getting heart palpitations reading this. In fact, I’m pretty sure it would kill me. We once had someone ask for an 8-shot coffee.**

*my cardiologist is aware and while he’d rather I don’t have lots of caffeine we have an agreement about one coffee a day, made at home.

**yes, I once too worked at a Starbucks while at college, 20 years ago. It was in the square mile of London.

Last night’s #borg #startrek upload to Unimatrix0 was a success.

#longqtsyndrome #lqts #heart #implantedlooprrcorder #ILR

The worst thing about #longqtsyndrome is that you get the worst circulation in the winter. I’m so cold I’ve taken to putting my hands on the stove…