#MEAction UK and Scotland plan an online photo campaign for Millions Missing

"We want to flood social media with powerful images that show the reality of life with ME and what people are missing, as well as the loss it also means for carers, families, schools and communities, and ask the question #CanYouSeeMENow?"

Two photo categories:

1) Your view with ME

2) Spaces people with ME are missing from

https://www.meaction.net/2023/04/14/join-the-uk-and-scotlands-digital-campaign-this-millionsmissing/

#MEcfs #PwME #May12 #MillionsMissing #UK #Scotland

#MEAction and Body Politic are holding Millions Missing 2023 at the Washington Monument on the National Mall in Washington, DC on May 12th. An art installation and live press conference are planned.

Speaker info coming soon.

RSVP here:

https://www.meaction.net/event/millionsmissing-2023-watch-livestream-of-press-conference/

#MEcfs #LongCovid #Advocacy #MillionsMissing #May12

Message reçu sur la liste de diffusion de @femmesetmaths ...On peut demander un lien pour visionner le film sur "Olga Ladyzhenskaya"produit et dirigé par Ekaterina Eremenko du 1 au 20 mai.
#may12 #12mai #FemmesEtMaths #WomenInMath https://may12.womeninmaths.org/formulaire/request-oal

@mecfs There's also a campaign to contact your MSP via email, details here:

https://www.meaction.net/2023/04/20/meaction-scotlands-plans-for-millionsmissing/

#MEcfs #PwME #May12 #MillionsMissing #UK #Scotland

From #MEAction:

"Join the UK and Scotland’s digital campaign this Millions Missing"

"We want to flood social media with powerful images that show the reality of life with ME and what people are missing, as well as the loss it also means for carers, families, schools and communities, and ask the question #CanYouSeeMENow?"

Two photo categories:

1) Your view with ME

2) Spaces people with ME are missing from

https://www.meaction.net/2023/04/14/join-the-uk-and-scotlands-digital-campaign-this-millionsmissing/

#MEcfs #PwME #May12 #MillionsMissing #UK #Scotland

@mecfs

Continued:

"Activism from home is not a back-up or an alternative to activism- it is the PRIMARY WAY to spread the word.

We need you - as many of you as possible - to join is in posting the week of #MillionsMissing, and taking as many actions as you can safely join in."

https://millionsmissing.meaction.net/activism-from-home/

#MEcfs #LongCovid #PwME #PwLC #MillionsMissing #May12

From #MEAction:

"Million Missing 2023 is 3 weeks away!

Take a look at our Activism From Home Kit & plan how you can join in!

In order to get a greater amplification of these efforts and to get THE MOST press attention for this event, we will need help from those at home."

https://millionsmissing.meaction.net/activism-from-home/

#MEcfs #LongCovid #PwME #PwLC #MillionsMissing #May12

@mecfs @longcovid

@themaskerscomic Great! 😁

I just saw another option. I don't post on twitter any more but I do still go there to find info about ME/CFS and Long Covid.

Encephalogirl (@EncephaloME on twitter) posted:
"I customized one on Zazzle and shipped it straight to you! A great low energy option."

I had no idea Zazzle had pillowcases! Here's one I link found:

https://www.zazzle.com/create_your_own_single_standard_size_pillowcase-256224603975274551

#MillionsMissing #MEAction #BodyPolitic #Pillowcases #May12

From #MEAction:

"Volunteers needed for #MillionsMissing!

What: We need 10 volunteers to take shifts from 9 am - 4 pm on the day of the event

Where: National Mall in Washington, DC

When: May 12th, 2023 from 9 AM - 4 PM Eastern

Contact: Shalida@meaction.net"

#LongCovid #MEcfs #PwME #Advocacy #Volunteer #May12

@skippingmoonrocks

Yes, I forgot about the option to send a picture!

And, of course, you can post images on social media on May 12.

#MillionsMissing #May12

RT @EuroWoMaths
Dear organizers of May12 events in the past, dear friends of the May12 initiative, on May 12 we will celebrate International Women in Mathematics Day. There is still time to submit you event in the May12 website at the link https://may12.womeninmaths.org/node/add/event
#May12 #WomenInMaths #May12WIM

"Submission ideas:

- picture pre-illness and with the illness

- picture of a "good day" and a "bad day"

- picture of adaptive devices you use such as a wheelchair

- picture of shoes you miss wearing

- or simply any picture of yourself

- a poem or picture of a work of art"

#MEcfs #Fibromyalgia #LongCovid #ChronicIllness #May12

From the Bateman Horne Center:

"Email a reflection of your disease experience in the form of a picture/poem/art.

Submissions will go into a video montage for May awareness and be shared at events.

DUE WED MAY 3rd"

email = outreach@batemanhornecenter.org

#MEcfs #Fibromyalgia #LongCovid #ChronicIllness #May12

From #MEAction:

Millions Missing 2023: Watch Livestream of Press Conference

May 12,11:00 am to 12:00 pm Pacific Time

"Join #MEAction in partnership with Body Politic for #MillionsMissing 2023 held at the Washington Monument on the National Mall in Washington, DC on May 12th that will feature an art installation and press conference."

Speaker info coming soon.

RSVP here:

https://www.meaction.net/event/millionsmissing-2023-watch-livestream-of-press-conference/

#MEcfs #LongCovid #Advocacy #May12 #WorldMEDay

@mecfs

One month to go

#May12 #May12th #MyalgicEncephalomyelitis #mecfs #cfs #cfsme #pwme #pwMECFS @mecfs @cfs #ChronicFatigueSyndrome

@mecfs @longcovid

Find the time zone for your area here:

https://www.timeanddate.com/worldclock/fixedtime.html?msg=MillionsMissing+Global+Virtual+Event&iso=20230512T14&p1=179

#MEcfs #LongCovid #MillionsMissing #May12

Reposting this "Save the Date" message from #MEAction:

"Millions Missing virtual event will be held at 11 am PT / 2 pm ET / 7 pm BST on May 12th.

We will have more information about our plans for this year's Millions Missing MAY coming soon, but mark your calendars now for the virtual event!"

#MEcfs #LongCovid #MillionsMissing #May12

@mecfs
@longcovid

#KAPUbar ::: KaBru Jam Session + margit ::: #may12 #KAPULinz
https://www.kapu.or.at/event/2022/05/12/kabru-jam-session-margit