Medically Documenting Disability in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (ME/CFS) Cases (2019)
Coauthored by the lawyer who prevailed on the disability case of @brianvastag disability case and a clinician who has done many ME/CFS disability cases
@mecfs #MEcfs #CFS #MyalgicE #PwME #MyE #ME #millionsmissing #CFSME #CFIDS
Probably of use to some with #LongCovid @longcovid
#PwLC #PostCovidSyndrome #LC #postcovid
#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #myalgice #pwme #mye #me #millionsmissing #cfsme #cfids #LongCovid #pwlc #postcovidsyndrome #lc #PostCovid
“What Does It Mean to Really, Truly Rest?” (December 2022)
https://www.self.com/story/what-does-rest-mean
#spoonie @spoonies #chronicillness @chronicillness #fatigue #fatiguetips #chronicfatigue #chronicfatiguesucks #pacing #rest #resting @mecfs #MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyE #ME #millionsmissing #CFSME @longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #postcovid
#spoonie #chronicillness #fatigue #fatiguetips #chronicfatigue #chronicfatiguesucks #pacing #rest #resting #mecfs #cfs #myalgice #pwme #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mye #me #millionsmissing #cfsme #LongCovid #pwlc #postcovidsyndrome #lc #PostCovid
The journalist who put this together did their best to touch on a lot of information, but this is only an into to doctors & researchers getting together--finally--to discuss what's going on with people who have #LongCovid (LC19), or any persistent symptom infection.
I see overlaps with #ME/CFA, persistent #Lyme, #EBV & others. Note--there is no cure for LC19 or any of these conditions. There are things that improve quality of life--if you can find folk who believe you.
https://www.npr.org/sections/health-shots/2023/09/09/1198342040/long-covid-causes-treatment-research
UK ME Association Advertising Standards: Chrysalis Effect cannot claim ME/CFS recovery!
"The ME Association had made a complaint to the Advertising Standards Authority (ASA) relating to recovery claims made by the Chrysalis Effect Ltd. on its website in regard to ME/CFS. The ASA issued its ruling yesterday, and upheld the complaint."
@mecfs
#MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyE #ME
#mecfs #cfs #myalgice #pwme #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mye #me
Canada - Quebec INESSS, the body in charge of medical guidelines and recommendations, published a set of documents in April 2023 for the clinical management of ME/CFS. There are three surveys (in French) asking for feedback on the three main documents.
#sfc #Syndromedefatiguechronique #encephalomyelitemyalgique #em @mecfs
#MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MyE #ME #millionsmissing #CFSME #CFIDS
#sfc #syndromedefatiguechronique #encephalomyelitemyalgique #em #mecfs #cfs #myalgice #pwme #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mye #me #millionsmissing #cfsme #cfids
Published today : Deep Dive Into My If’s
4. If you need to choose between the heart and the brain, what would you choose?
I’ll take the brain any day. It works on logic and intelligence. The heart on the other hand is a pesky little thing, full of pain, betrayal and complicated emotions.
Please click the link to read the full piece and leave your comments below. I look forward to hearing from you.
#TomGauld speaks to my soul!
#Me!
via his latest post:
https://myjetpack.tumblr.com/post/727972254871420928/my-cartoon-for-this-weeks-guardian-books
Example of brainfog: Me reading post in my Home thread and thinking "I like that post. I should follow that person. Let me go check their bio." Then realizing it is my Home feed. I follow these people.
Then immediately repeat the process 2 more times.
#NEISvoid #brainfog #me #chronicillness
You can read more about me on my LinkedIn page https://www.linkedin.com/in/lucianghinda
Or find our more detailed testimonials at https://ghinda.com/recommendations.html
Or can see how I think about technical problems by reading my technical blog at allaboutcoding.ghinda.com
https://herbalremedies.one/how-to-treat-fibromyalgia/ Fibromyalgia can steal your joy in life and cause brain fog, and even depression. Discover the causes, symptoms and Natural Treatment for Fibromyalgia, Chronic Fatigue Syndrome and Myalgic Encephalomyelitis. This Natural Holistic Treatment that works to reverse the cause of it for good so your symptoms go away permanently. #fibromyalgia #cfs #chronicfatigue #ME #autoimmune
#fibromyalgia #cfs #chronicfatigue #me #Autoimmune