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Mi Go (teno) · @tenorune
247 followers · 790 posts · Server zirk.us

"Anyone can help by learning about ME/CFS, for example here: me-pedia.org, or over on Sammy's Instagram: instagram.com/m.e_and_more, by supporting research and advocacy organizations like instagram.com/openmedf and instagram.com/meactnet, and engaging with our content to help get as many survey participants as possible!

5/5

#chronicfatiguesyndrome #myalgicencephalomyelitisawareness #mecfsawareness #cfsawareness #meawareness #LongCovid #longcovidawareness

Last updated 2 years ago
Original post

Daniel Norton · @daniel
95 followers · 543 posts · Server mastodon.danielnorton.com

I wish more people (and doctors!) had a better understanding of ME/CFS.

cfsselfhelp.org/library/for-fa

#mecfs #cfs #mecfsawareness #chronicfatigue #invisibleillness #pots

Last updated 2 years ago
Original post

MECFS - Das Monster danach · @mecfsbuch
179 followers · 57 posts · Server social.anoxinon.de

#mecfs #mecfsawareness

Last updated 2 years ago
Original post

Damaris Sieglinde Meyer · @DamarisSieglind
25 followers · 180 posts · Server muenchen.social
Open media

#fiktiontrifftrealitat #mecfs #MyalgischeEnzephalomyelitis #mecfsawareness #mecfswarrior #millionsmissing #chronischesfatiguesyndrom #chronicfatique #PostCovid #postvac #LongCovid #postcovidsyndrom #fatigue #NichtGenesen #belastungsintolleranz #postexertionalmalaise #chronischKrank #wirsindmecfs

Last updated 2 years ago
Original post

BigDogBo · @BigDogBo
183 followers · 1175 posts · Server universeodon.com
Open media

Signal boosting for my wife and all others suffering with many times unseen chronic illnesses.

#LongCovid #mecfsawareness #covid19 #notrecovered #chronicillness

Last updated 2 years ago
Original post

Damaris Sieglinde Meyer · @DamarisSieglind
24 followers · 175 posts · Server muenchen.social
Open media

Challenge von @mecfskalation auf Instagram!
Um in den Fokus zu rücken, den wir, unsere Kinder, Angehörigen, KollegInnen, Freunde benötigen.
Damit wir nicht in der Versenkung verschimmeln.
Seit so laut es geht! 🫂💕💙

#danceformecfs #mecfs #mecfsawareness #mecfswarrior #MyalgischeEnzephalomyelitis

Last updated 3 years ago
Original post

Damaris Sieglinde Meyer · @DamarisSieglind
24 followers · 163 posts · Server muenchen.social
Open media

Erschöpft durch den Tag schwanken und nachts gehen die Lichter an, leider nicht die Discokugeln 🪩💙


#NotRecovered #NichtGenesen #youarenotalone #wirsindmecfs #mecfslife #mecfsfighter #mecfsawareness #mecfswarrior #mecfs #LongCovid #PostCovid #schlafstorungen

Last updated 3 years ago
Original post

Damaris Sieglinde Meyer · @DamarisSieglind
22 followers · 150 posts · Server muenchen.social
Open media

#wirsindmecfs #chronischKrank #postexertionalmalaise #belastungsintolleranz #NichtGenesen #fatigue #postcovidsyndrom #LongCovid #postvac #PostCovid #chronicfatique #chronischesfatiguesyndrom #MyalgischeEnzephalomyelitis #millionsmissing #mecfswarrior #mecfsawareness #mecfs

Last updated 3 years ago
Original post

Adam · @brokenbattery
162 followers · 22 posts · Server mas.to
Open media

Highlights Hannah Davis (Time 100 Next) on CP24 News talking about Long Covid and her recent review article published in Nature.

nature.com/articles/s41579-022

#COVID19 #LongCovid #mecfsawareness #myalgicencephalomyelitis #chronicfatiguesyndrome #pwme #myalgice #cfs #mecfs

Last updated 3 years ago
Original post

Damaris Sieglinde Meyer · @DamarisSieglind
21 followers · 145 posts · Server muenchen.social
Open media

#wirsindmecfs #chronischKrank #postexertionalmalaise #belastungsintolleranz #NichtGenesen #fatigue #postcovidsyndrom #LongCovid #postvac #PostCovid #chronicfatique #chronischesfatiguesyndrom #MyalgischeEnzephalomyelitis #millionsmissing #mecfswarrior #mecfsawareness #mecfs

Last updated 3 years ago
Original post

Damaris Sieglinde Meyer · @DamarisSieglind
21 followers · 142 posts · Server muenchen.social

#wirsindmecfs #chronischKrank #postexertionalmalaise #belastungsintolleranz #NichtGenesen #fatigue #postcovidsyndrom #LongCovid #postvac #PostCovid #chronicfatique #chronischesfatiguesyndrom #MyalgischeEnzephalomyelitis #millionsmissing #mecfswarrior #mecfsawareness #mecfs

Last updated 3 years ago
Original post

Damaris Sieglinde Meyer · @DamarisSieglind
21 followers · 140 posts · Server muenchen.social
Open media

#wirsindmecfs #chronischKrank #postexertionalmalaise #belastungsintolleranz #NichtGenesen #fatigue #postcovidsyndrom #LongCovid #postvac #PostCovid #chronicfatique #chronischesfatiguesyndrom #MyalgischeEnzephalomyelitis #millionsmissing #mecfswarrior #mecfsawareness #mecfs

Last updated 3 years ago
Original post

Tom Kindlon · @tomkindlon
532 followers · 694 posts · Server disabled.social
Open media

(2 minutes)
From @brokenbattery:
Chronic Fatigue Syndrome is a terrible name for a disease. It does not convey the severity or the nature of the condition, it trivialises and stigmatises the illness.

#mecfs #cfs #myalgice #pwme #chronicfatiguesyndrome #MyalgicEncephalomyelitis #mecfsawareness

Last updated 3 years ago
Original post

Valwen 😷🏳️‍🌈 · @valwen
61 followers · 139 posts · Server disabled.social

The (claiming to be) Dutch patient association blocks if you insist on asking them to explain why they go around stating that “ME is Polio”. This is their representation apparently. Silencing patients. Collaborating with the abuse that ME patients have to fight already in the Netherlands. Never question anything (GET or other )!

twitter.com/ME_Vereniging/stat

#me #pwme #mecfs #misinformation #mecfsawareness #patientsrights

Last updated 3 years ago
Original post

Mela · @Mela_mehrdavon
51 followers · 175 posts · Server sueden.social
Open media

RT @FatigatioeV@twitter.com


Neues YouTube-Video mit @Afelia@twitter.com klärt auf über

Wir sind viele und wir geben nicht auf. Als Community kämpfen wir für uns & euch, bis wir unsere Ziele erreicht haben. Lasst uns gemeinsam stark sein!

Zum Video: buff.ly/3AQVhsW

🐦🔗: twitter.com/FatigatioeV/status

#mecfsawareness #mecfs #LongCovid #PostVac

Last updated 3 years ago
Original post

· @Kassandra
34 followers · 384 posts · Server semiosen.de
Open media

RT @FatigatioeV@twitter.com


Neues YouTube-Video mit @Afelia@twitter.com klärt auf über

Wir sind viele und wir geben nicht auf. Als Community kämpfen wir für uns & euch, bis wir unsere Ziele erreicht haben. Lasst uns gemeinsam stark sein!

Zum Video: buff.ly/3AQVhsW

🐦🔗: twitter.com/FatigatioeV/status

#mecfsawareness #mecfs #LongCovid #PostVac

Last updated 3 years ago
Original post

Ingo Heinscher · @IngoHeinscher
15 followers · 53 posts · Server mastodontech.de
Open media

Teuflische Krankheit.
---
RT @FatigatioeV

Neues YouTube-Video mit @Afelia klärt auf über

Wir sind viele und wir geben nicht auf. Als Community kämpfen wir für uns & euch, bis wir unsere Ziele erreicht haben. Lasst uns gemeinsam stark sein!

Zum Video: buff.ly/3AQVhsW


twitter.com/FatigatioeV/status

#mecfsawareness #mecfs #LongCovid #postvac

Last updated 3 years ago
Original post

Adam · @brokenbattery
145 followers · 17 posts · Server mas.to
Open media

Highlights Baroness Brinton speaking at the Long Covid debate in the House of Lords 17 Nov 2022.

- 1 in 22 will have a major cardiac event within 12 months after infection
- 1 in 5 will get Long Covid
- The more often you get Covid the more likely you are to get Long Covid

#COVID19 #LongCovid #mecfsawareness #myalgicencephalomyelitis #chronicfatiguesyndrome #pwme #myalgice #cfs #mecfs

Last updated 3 years ago
Original post

Adam · @brokenbattery
145 followers · 17 posts · Server mas.to
Open media

Highlights Baroness Scott speaking about ME/CFS during the Long Covid debate in the House of Lords 17 Nov 2022

#COVID19 #LongCovid #mecfsawareness #myalgicencephalomyelitis #chronicfatiguesyndrome #pwme #myalgice #cfs #mecfs

Last updated 3 years ago
Original post