MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
“#PatientEngagement is particularly important within the sphere of rare diseases”. Working with organisations like @EURORDIS can help you identify #PatientRepresentatives with required experience & skillset.
🔗 https://www.eurordis.org/patient-engagement-in-medicines-development/
#RareDiseaseDay #SharingResources
#SharingIsCaring
➡️ See also the short list of essential #Guidance we've compiled that can help you get started with your #PatientEngagement journey: https://medipace.com/2023/02/24/patient-engagement/
#PatientEngagement #patientrepresentatives #rarediseaseday #sharingresources #sharingiscaring #guidance #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
With #HealthEquity, #Diversity and #Inclusion being top of agenda in healthcare discussions, #Equity for people living with #RareDisease is #EquitableAccess to diagnosis, treatment, health, social care and opportunity.
#DidYouKnow?
#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#healthequity #diversity #inclusion #equity #RareDisease #equitableaccess #didyouknow #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
#DidYouKnow that 72% of #RareDiseases are genetic whilst the rest are a result of infections, allergies, environmental causes or are #RareCancers?
Support #RareDiseaseDay and join the discussion to raise awareness!
#didyouknow #rarediseases #rarecancers #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
Did you know, that collectively, the number of people living with a #RareDisease = to the population of the world’s 3rd largest country? 🤯
Support #RareDiseaseDay and join the discussion to raise awareness!
#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#RareDisease #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.worldAre you interested in reading more about the #experiences of people living with #RareConditions?
Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com
#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#Experiences #rareconditions #familyperspectives #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
Why Advocacy Matters: Chris’ story
A rare condition doesn’t only affect the person living with it, but the family too. We found Chris’ story so insightful. Thanks to Chris and MD Group for sharing.
What’s your experience as a family member of someone living with a rare condition?
https://mdgroup.com/blog/why-patient-advocacy-matters-chriss-story/
#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#familyperspectives #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
Ahead of #RareDiseaseDay 2023 #MediPaCe is showing support by sharing resources and information about rare diseases and #PatientEngagement to help raise awareness and encourage more #collaboration between the healthcare industry and patient community.
➡ Follow our campaign through our blog page (link below), or our social media channels and join the movement to raise awareness!
#rarediseaseday #medipace #PatientEngagement #collaboration #RareDisease #patientinvolvement