Sopite syndrome: motion-induced fatigue, also affects people with vestibular issues. Symptoms include lethargy, sleepiness, brain fog, apathy, depression, irritability, and more.

This is version 4 of my fact sheet. Feedback is appreciated!

#sopitesyndrome #menieres #vestibularmigraines #PPPD #vertigo

https://tinyurl.com/sopitesyndrome

I've been suffering Meniere's disease since 2008. In the beginning I might have a bout once a year and it would only last a day. Starting in May 2011 the ringing started and has never stopped. Starting about a year ago I have balance and dizziness problems a couple times a week. Starting about 3 months ago balance and dizziness problems have become the norm and having a good day once a week is now a treat. This has become a disability. It may be time to sever the nerve.
#menieres #disability

I’ve just been through 5 days of vertigo - once a day for two hours. Sickness, pinned to the floor, deaf in one ear all of it. The ear predates this so had already gone down the ENT’s Menieres path. Lying on the floor thinking about losing my car, job…to see a faint red line tonight, with a cracking headache, for the first time after three years is actually a good thing. I think. Question mark? #vertigo #Menieres #COVID

Any advice out there on how to manage #Menieres disease, beyond just medication? Dietary tips, lifestyle tips, or certain exercises that may help. I'm ok with taking medication, but I don't wish that to be the only solution.

Starting to wonder if I might have Meniere's? Long-term vertigo, up to and including violent vomiting w/sweating, episodes of tinnitus/rushing in ears at different times, (or sometimes one in each!) I also get pressure-pain in short bursts that I'm unsure of relation to, both in ear canal and in head adjacent to ear.

Any feedback, or suggestions of where to look for help? Already consulting with a doctor and have appt w/my rheumatologist.

#Menieres #autoimmune #symptoms

I had my first #Menieres #DropAttack this time 6 days ago, and for the first time since, I feel close to normal again. #Tinnitus is still louder than my baseline, but subsiding compared to yesterday. And I'm on leave until a week-Monday, so I'm looking forward to some real rest.

#Tinnitus in my #Menieres-affected ear continues to be obnoxiously loud.

Cada 7 de febrero se celebra el día mundial del síndrome de Ménière, para dar a conocer esta enfermedad tan incapacitante del oido.

https://somosdisca.es/dia-mundial-del-sindrome-de-meniere/

#enfermedadesraras #meniere #menieresdisease #ménière #ménières #ménières #discapacidad #discapacidadauditiva #disability #disabilities #disca #gentetitanica #Somosdisca #visibilidad #mareos #síndromedeménière #sindromedemeniere #enfermedaddemeniere #Salud

@Steveb yep, I deal with #menieres every day

I'm searching for more info and people with experience of meniere's disease.

Wondering if my fellow #hachyderm citizens (or anyone) has suggestions other than following #neurodivergent (as it doesn't seem an exact intersection).

Also #menieres and #menieresdisease doesn't seem to get a lot of traffic.

Ya know, asking for a friend.

…it seems that my ability to walk reliably in a straight line has - once more - died, in a ditch, covered in petrol, on fire.

#vertigo #menieres

@alceawisteria Oh it certainly does. It stops me falling on the floor and being sick.
However it's not stopped my hearing being wreaked.

I am in the latter stages of #menieres, so the symptoms are pretty much under control, thankfully.

I use bone conduction headphones, such as shokz open run pros, mainly because #menieres has totally fucked my hearing.
The criticism of these type of headphones is poor bass. However I have found if I put the hood up on my hoodie whilst wearing them, it improves the bass response.

#classicalmusic
#ChamberMusic
#BaroqueMusic
#powermetal
#symphonicmetal
#folkmetal

For those who have #menieres how does it affect you from day to day? Does it cause anxiety often? What helps you? I was diagnosed with it a few years ago, and it seems right now I’m having a major flare up. #menieresdisease #vestibular #vertigo

#introduction Hello! I am a #composer #musicologist and #creative technologist. I'm a #Professor and Deputy Director of the Institute for #Digital #Culture at the #University of Leicester, UK. I am #autistic and have severe hearing loss due to #menieres My research interests include #interdisciplinarity #transdisciplinarity and #pataphysics (and I think that is the first time that hashtag has been used here!) My website is https://andrewhugill.com