S Fraser · @sfscotland
232 followers · 2245 posts · Server mastodon.scot

@Ziagrrrl Thanks for writing this. I suffer from , a type of vertigo. I frequently have to deal with those physical symptoms (although thankfully not the 'Alice in Wonderland' effects. I don't think people realise just how debilitating it can be, your article covered that extremely well.

#menieresdisease

Last updated 1 year ago

Steve B · @Steveb
290 followers · 1985 posts · Server mastodon.ie

For the first time in months my Ménière's disease is back with a vengeance this afternoon. It’s been creeping up on me for about a week now, but since I’ve learnt to manage it now, it hasn’t really gotten bad for over a year. Today though it just wanted to show itself big time and remind me that it’s in charge.

So it’s early to bed and hope it settles tomorrow, as I’ve some busy days in the garden ahead getting it ready for my youngests graduation party on Thursday.

#menieresdisease

Last updated 1 year ago

It is I, Paul. · @pauledevans
109 followers · 696 posts · Server mastodon.social

The is easing, but my is obnoxiously loud this morning. Sounds like a hairdryer…

#vertigo #tinnitus #menieresdisease

Last updated 1 year ago

It is I, Paul. · @pauledevans
109 followers · 696 posts · Server mastodon.social

A reflection: I’m the wrong side of the frustrations I’m going to accumulate, so I can’t fully appreciate what not driving will do to my life; I’m yet to fall and do myself harm; I’m yet to pause before doing something, fearful that an unannounced may derail my plans entirely.

Instead, I feel hope.

I’m going to beat , and I’ll be so much more than it’s stolen from me; because it’s forced me to consider who I am, and find value in my foundations.

#dropattack #menieresdisease

Last updated 1 year ago

It is I, Paul. · @pauledevans
109 followers · 696 posts · Server mastodon.social

I earned a new Meniere’s merit badge today: First Drop Attack! 🙌

I was half way down the stairs when it happens, fell into the wall, and managed to get to the bottom without harming myself. For the minority of sufferers that experience them, they often manifest in the later stages. So on the upside, I may be close to being through this thing; the downside is that I can’t now drive for a while.

#menieresdisease #vestibulardysfunction #dropattack #chronicillness

Last updated 1 year ago

Somosdisca · @Somosdisca
8 followers · 12 posts · Server masto.es
Mark Kilby · @mkilby
166 followers · 515 posts · Server hachyderm.io

I'm searching for more info and people with experience of meniere's disease.

Wondering if my fellow citizens (or anyone) has suggestions other than following (as it doesn't seem an exact intersection).

Also and doesn't seem to get a lot of traffic.

Ya know, asking for a friend.

#hachyderm #neurodivergent #menieres #menieresdisease

Last updated 2 years ago

Justin ✅ · @shearsjt
23 followers · 182 posts · Server mastodon.social

For those who have how does it affect you from day to day? Does it cause anxiety often? What helps you? I was diagnosed with it a few years ago, and it seems right now I’m having a major flare up.

#menieres #menieresdisease #vestibular #vertigo

Last updated 2 years ago

Steve B · @Steveb
92 followers · 475 posts · Server mastodon.ie

My good old is being particularly nasty to me today. It's not gone full throttle. It's just messing my head up just enough to make everything take twice as long. And I'm now exhausted.

Bastard.

#menieresdisease

Last updated 2 years ago

It is I, Paul. · @pauledevans
62 followers · 231 posts · Server mastodon.social

I live with a chronic condition called .
It’s an I’ll-understood condition, but the layperson’s explanation is that the balance organ in my left ear is dying. In the last ~7 years, I’ve gone on that side, manage some level of daily, and live with a commensurate amount of and brain fog. It’s also invisible.
I don’t look ill or disabled, but I’m both.
Today has been rough.

#menieresdisease #deaf #vertigo #chronicfatigue

Last updated 2 years ago

It is I, Paul. · @pauledevans
106 followers · 514 posts · Server mastodon.social

I live with a chronic condition called .
It’s an ill-understood condition, but the layperson’s explanation is that the balance organ in my left ear is dying. In the last ~7 years, I’ve gone on that side, manage some level of daily, and live with a commensurate amount of and brain fog. It’s also invisible.
I don’t look ill or disabled, but I’m both.
Today has been rough.

#menieresdisease #deaf #vertigo #chronicfatigue

Last updated 2 years ago

HannahCrazyhawk · @HannahCrazyhawk
81 followers · 83 posts · Server universeodon.com

(Part 2). I'm and hard of hearing. I battle , , , , , , and . I'm a multiple and Survivor. Despite my agony, my urge to photograph, study, and narrate the world around me continues to be my driving force.

I love , , , , , , and hot baths.

Here's where I sell my fine art:
www.hannahcrazyhawk.com

#intro #autistic #trigeminalneuralgia #hidradenitissuppurativa #menieresdisease #rheumatoidarthritis #cptsd #eds #erythromelalgia #tbi #sepsis #startrek #physics #botany #cosmology #astrophysics #Reading

Last updated 2 years ago