RT @beth_morton
I posted this over on IG and am too tired to repost it all here, but the is link ⬇️.

These tips apply to all types of research and conditions, so share widely. #MigraineChat #NEISvoid

/2
https://www.instagram.com/p/CouzsCyO5ly/?igshid=YmMyMTA2M2Y=

@jahleesu
Emgality has been similar for me.

My migraine has been permanent since mid-2017. I had to stop Botox in 2019 as my CRPS started sensitising the injection sites, and with only oral meds things were bad for a while.

Finally Emgality went on the Australian Pharmaceutical Benefit Scheme so I could afford it. It has brought my baseline migraine down a few levels, and made flares less likely and not as extreme or long-lasting. But it is not the magic solution for me!

#migrainechat

A statistic of my #migraine last year.
194 in total. Cool cool cool.

In March I started Aimovig. You can see a wonderful placebo effect there, that unfortunately didn't last long 😬😜 (but it made the migraines less severe. Before I was like a 6 to 7 daily, now they're like 3 to 5, so that's a win still 👍)

I'm gonna try to get botox in 2023, because I've tried everything else that's avaliable in Germany, a lot of the meds even twice or thrive in the last 20 years.

#migrainechat

Jueves 19 de enero, de 17 a 19 horas, #seminario web HIGHLIGHTS de #Cefaleas de la LXXIV Reunión Anual de la #SEN (Sociedad Española de Neurología).

Regístrate en la escuelaSEN y asiste en directo
👉
https://www.escuelasen.es/hl-cefaleas-2023
#RASEN22 #Neurologia
#migrainechat

Sometimes it’s hard to know what’s a prodrome until after the fact: two days of fatigue, chills, and malaise segued today into a fully blown #migraine. I dosed myself with Imigrane (nasal sumatriptan), naproxen, and an hour and a half later am feeling wiped out but the headache pain is gone. Always grateful when the triptans do what they are supposed to. #migrainechat

Jealousy is a natural part of #ChronicIllness. For me, it can happen when others…
- have access to treatments I don’t
- have success with a treatment that I didn’t
- have greater support systems than I do
- are achieving things I likely never will
This wasn’t easy to admit, but I want to validate others’ who feel the same.
#MigraineChat #NEISvoid

Got me up early for this one! 
Neurologist’s office visit! Time for nerve blocks. Thank you for fitting me into your insane schedule Dr Ward 🫶🏽💉🩺😭♥️ #disabled #diabledsocial #migrainelife #migrainechat

For anyone in the #NEISvoid with (diagnosed or suspected) #headache conditions, not just #migraine, please know the #MigraineChat Discord server would love to have you while things get sorted in the new Void server. I mean, we’d love to have you anyway, but especially now. 💜
The link is under my “About” tab.
@neisvoid @migrainechatgroup

I have had a migraine hanging around since Thursday. I have taken lots of meds which will ease it up for a while but I just can’t get it to leave for good.

Any and all suggestions welcome.

#migraine #migrainechat

Wondering where and if any my fellow #migrainechat folk are?
#migraine

Wondering where and if any my fellow #migrainechat folk are?
#migraine

@Laniebird91 #ChronicMigraine here! I'm trying rebuild the #MigraineChat community on here, so if you might find that helpful feel free to follow me, the hashtag or the @migrainechatgroup. 💜

@lstbutifulgrl Hi! I'm trying rebuild the #MigraineChat community on here, so if you might find that helpful feel free to follow me, the hashtag or the @migrainechatgroup. 💜

You can also follow the #MigraineChat hashtag. At least on desktop Mastodon, once you search a hashtag, you can then click the follow icon to see future posts.

Like many, I'm new here. So I'm testing ways to make #MigraineChat work best on Mastodon.

The purpose of MigraineChat has been to provide space to get #migraine-related advice -or- to vent without receiving advice. In this way, it mirrors the #NEISvoid.

I believe you have two options for tagging your migraine posts:
- include @migrainechat to tag me (this account) so I can boost and/or
- tag the group I made @migrainechatgroup and follow it to see posts of others who use the tag, too.

The Coliberation Lab, run by Rua M. Williams at Purdue University, is recruiting participants for a short 10-minute survey about how photosensitive users navigate potentially dangerous flashing graphics on social media. 18+ & US residents

bit.ly/GRAPHICATTACC

#Research #photosensitivty #migraine #migrainechat #NEISvoid

How do Mastodon #groups work? I set one up for #MigraineChat @migrainechat@a.gup.pe and joined with my own two profiles (this one and another). Are followers automatically subscribed? Do groups work just by @ ing them to boost posts (like a hashtag)?
@migrainechat

TIA! Signed, a newbie

Hi friends! I migrated my original #MigraineChat account to a new instance, so you may see me - or see me follow you - twice. I'm not sure what MigraineChat will look like on this site. If you know me from the Bird Site, you know it was a monthly chat about all things #migraine. In addition, the #MigraineChat hashtag was a way to flag/boost questions about migraine (diagnosed or not) to others for solicited advice or support. In that way, it operates a lot like the #NEISvoid.

I’ve found a few people through their #introduction posts, so….

Hello! I’m Beth. I have a #PhD in/was working as an #education #researcher (i.e., doing #ProgramEvalution in #K12 & #HigherEducation). Then #ChronicIllness #disabled me, specifically chronic #migraine. I moved back to #Vermont w/my fluffy #cat sidekick.

I do #freelance #research & #advocacy work now, & moderate #MigraineChat spaces (see links under my About).

Other interests: #books, #tv, #movies, #baking, #cooking, #gardening.

You can use the #MigraineChat hashtag the rest of the month if you have questions for the #migraine community or just need support.

Thanks for entertaining my experiment and inaugural toot chat. Please feel free to add your responses anytime!