[Automatic repost https://twitter.com/dystobot/status/1652369708660785155]

RT @RareDiseases: Kylee, a patient with dopa-responsive #dystonia with #parkinsonism, describes her 20 year diagnostic odyssey and the trauma of being #misdiagnosed with depression by neurologists.

This #UndiagnosedDay2023, read Kylee's story and words of encouragement: https://t.co/ssIb4KvIC1 https://t.co/FDPyW3fFOt

And if she does have that condition — which she’s likely had since her teenage years, just #misdiagnosed as something else (see previous toot about not #believing people have #mental #health problems, not believing #women about their own health, and not believing women about mental health in particular) — it will be a #struggle to get a #prescription for the most likely drug to treat it.

Received a second opinion from my new rheumatologist recently. Turns out I don't have fibromyalgia. It's been a serious autoimmune condition effecting many of my organs and I've been misdiagnosed my entire adult life. 🤦‍♀️ Was prescribed hydroxychloroquine for now. Very much looking forward to the results of a proper diagnosis and new treatment options. Photo of my hiking shoe tags to remind me to hike at my own pace and ability level. #misdiagnosed #health #autoimmune #disability

Article from a British journalist about the realities of living with Long Covid -- and knowing it's likely to be a 'life sentence.'

#LongCovid #lingering #illness #misunderstood #misdiagnosed #health #loss

https://news.sky.com/story/how-long-covid-ruined-my-life-from-crushing-fatigue-to-brain-fog-12744444