Stephen · @mister_goldfish
234 followers · 1592 posts · Server mastodon.green
MSN

Tomorrow is the Great North Run, and Caroline Quibell will be tackling it with her new hip in memory of her late husband. She and her eldest son are raising money for My Name's Doddie Foundation which funds research into MND/ALS.

msn.com/en-gb/health/other/pen

#goodnews #greatnorthrun #race #fundraising #mnd #als #motorneurone #hipreplacemnt #heroism

Last updated 1 year ago

Hotte · @hotte
1025 followers · 907 posts · Server metalverse.social

I just found out that a dear real-life friend of ours, who was diagnosed with /#ALS about three years ago, is now abound 70% paralyzed, bound to his bed, and unsure if he'll last another year because he's in constant pain and torture.
I've known him more than13 years now, and i've only spent about a month worth of time with him directly. I met him when I played with my Band in Malta on a festival. He was a Reenactor Knight, there with his sword fighting group named FKOR from Ireland...

#mnd

Last updated 1 year ago

Just a little under 2 months from now, I will be proceeding on a 27km (under 17 miles) walk from just outside Kwinana (S32.23419, E115.84290), all the way on up to Canning Bridge (S32.01063, E115.85504), this coming King's Birthday (WA) in order to raise funds for ongoing MND/ALS research.โ€ฉHelp me on my odyssey, so that we can move unceasingly to that closer to that singular day when a cure is eventually discovered, by donating even whatever little you can, or even planning on your own great 27km journey (or whatever else springs to mind, or even both!). If you can, please support me by making a donation to my fundraising page. Every dollar counts and all funds raised go to FightMND who are determined to fund vital MND research and help find a cure for MND, so that noone need suffer or die from this most horrid disease.
โ€ฉFor further details, head on over to: hub.fightmnd.org.au/27-challen

#mnd #als #thedogbombwalkers #27challenge #27on27

Last updated 1 year ago

Auscandoc · @auscandoc
1078 followers · 9938 posts · Server med-mastodon.com

abc.net.au/news/2023-08-24/mot โ€œHer family is one of many in and other towns tormented by the incurable disease, where some researchers estimate the rate of to be five to seven times the national average.

After years of lobbying by the local community and the Member for Murray, Helen Dalton, the state government set aside $2 million in April to investigate a potential .โ€

#griffith #riverina #mnd #cluster

Last updated 1 year ago

Grumpy Penguin · @GrumpyPenguin
196 followers · 2766 posts · Server aus.social

Up very late packing... ๐Ÿงณ

I'll be off the air for two weeks, as I am travelling to Central Australia to participate in a fundraising trek for Victoria

And then travel some more for a few days.

So hopefully I shall have some amazing photos on my return.

In the meantime, it would be wonderful if some of you out there in the Fediverse could donate. The link is below.

Lots of Australians know the Fight MND franchise and their beanies. But did you know that the money goes predominantly into research? And making more beanies!!!!

(They have finally started to provide some donations to state organizations.)

State based organizations like MND Victoria have been around a lot longer, and their core business is to support people with MND and their families. Like us.

Until There is Cure, There is Care

PS A blossom tree from yesterday's walk as a sign-off

mnd.org.au/my-fundraising/1319

#mnd #desert #als #donate

Last updated 1 year ago

Ben O'Mara · @benomara
61 followers · 23 posts · Server mastodon.au

Happy Friday folks! Iโ€™d like to give an extra, big thanks to @fightmnd for funding MND Australia, administered by Perpetual Limited. It is a great opportunity to learn new, enjoyable ways to improve quality of life with and through videogames. @KirstenHarley2 explains: youtube.com/watch?v=5IpU469sEV

#gameonwithmnd #mnd

Last updated 1 year ago

Grumpy Penguin · @GrumpyPenguin
186 followers · 2497 posts · Server aus.social
Kathy Reid · @KathyReid
3608 followers · 2193 posts · Server aus.social

Just a little under 2 months from now, I will be proceeding on a 27km (under 17 miles) walk from just outside Kwinana (S32.23419, E115.84290), all the way on up to Canning Bridge (S32.01063, E115.85504), this coming King's Birthday (WA) in order to raise funds for ongoing MND/ALS research.

Help me on my odyssey, so that we can move unceasingly to that closer to that singular day when a cure is eventually discovered, by donating even whatever little you can, or even planning on your own great 27km journey (or whatever else springs to mind, or even both!). If you can, please support me by making a donation to my fundraising page. Every dollar counts and all funds raised go to FightMND who are determined to fund vital MND research and help find a cure for MND, so that noone need suffer or die from this most horrid disease.

For further details, head on over to: hub.fightmnd.org.au/27-challen

#mnd #als #fightmnd #27challenge #27on27

Last updated 1 year ago

Rich Stein (he/him) · @RichStein
401 followers · 3723 posts · Server econtwitter.net

From Nov. '22; still relevant. Interesting questions/thoughts โ€” "Twitter, and the : I Have Questions" sogrady.org/2022/11/13/twitter

I saw it posted by @rabbinathan whose post discusses funding/economic issues (babka.social/@rabbinathan/1105). Blog author @sogrady discusses more. [NB: Search challenges on Mastodon often bug me, but it was pretty easy to find O'Grady in the fediverse. He's got a fun blog, too, & mentions the Association โ€” โ€” so ๐Ÿ‘ als.org/]

#mastodon #fediverse #ALS #mnd #ela #sla

Last updated 1 year ago

Just a little under 3 months from now, until I undertake a 27km (under 17 miles) walk from just outside Kwinana (S32.23419, E115.84290), all the way on up to Canning bridge (S32.01063, E115.85504), this coming King's Birthday (that's Septmber 25 to all you eastern staters ;). This one long stoat for a long stoat, is all in order to raise funds for ongoing MND research.

Help me on my odyssey, so that we can move unceasingly to that closer to that singular day when a cure is eventually discovered, by donating even whatever little you can, or planning about your own great 27km journey (or whatever springs to mind (or even both!), so that noone need suffer or die from this most horrid illness.

For further details, head on over to: hub.fightmnd.org.au/27-challen

#mnd #als #fightmnd #27challenge #27on27

Last updated 1 year ago

A measly 10c donation for a $19.20 pork chop?

Fuck in the ear with a razor sharp penis. Just give all your donations towards research directly.

#coles #mnd

Last updated 1 year ago

AusSMC · @AusSMC
172 followers · 626 posts · Server aus.social

๐Ÿงฌ๐Ÿ”ฌTreatments for motor neuron disease (MND) are a step closer after @UQ_News say they identified a new drug target ๐Ÿง ๐Ÿ’ช Read more on Scimex: scimex.org/newsfeed/motorneuro ๐Ÿ“ฐ

#mnd #neuroscience #research

Last updated 2 years ago

Simon · @PardonInParis
1 followers · 8 posts · Server mastodonapp.uk
Rich Stein · @RichStein
264 followers · 2127 posts · Server econtwitter.net

So much in this article:

โ€œUnless the president of the United States would declare 's a national emergency โ€ฆ that, Iโ€™ve been told, is the only way this could be done.โ€ โ€” Alberto Ascherio

"Scientist who uncovered likely leading cause of MS (i.e., Epstein-Barr infection) wants to tackle next" statnews.com/2023/03/16/albert

#Alzheimer #ALS #mnd #ela #sla #EBV

Last updated 2 years ago

Rich Stein · @RichStein
236 followers · 1869 posts · Server econtwitter.net

It's Mom's birthday today, in addition to the 3rd anniversary of pandemic lockdowns around here. Mom died seven years ago. Also my in-laws' 60th anniversary. Mom died the day after my folks' 60th anniversary, of (same miserable disease, different languages). Dad was holding her hand. Don't tell me willpower isn't a real force.

Had a small celebration with my in-laws last night.

Life *is* complicated. Feeling it all, right now.

#ALS #mnd #ela #sla

Last updated 2 years ago

· @morningskendi
6 followers · 57 posts · Server mastodon.social

Good morning mastodons!. My father suffers from amyotrophic lateral sclerosis and I search the net for software for people with this disease that I can teach him how to use to communicate before it gets worse and harder to learn. There are quite a few and I don't know which is the least complicated or the best. Some guidance would be helpful, thanks๐Ÿค—

#als #ela #sla #mnd

Last updated 2 years ago

Ben O'Mara · @benomara
61 followers · 23 posts · Server mastodon.au

Great to see this story out at MND Australia about barriers to the for people living with and what can help make the NDIS easier to access. mndaustralia.org.au/articles/w

#ndis #mnd

Last updated 2 years ago

Rich Stein · @RichStein
155 followers · 1041 posts · Server econtwitter.net

@beaveinflow True words. Thanks for sharing. โ€” different initials, different countries, same awful disease โ€” is terrible. Let's hope for progress on treatments soon.

#ALS #mnd #ela #sla

Last updated 2 years ago

Rich Stein · @RichStein
139 followers · 916 posts · Server econtwitter.net

@sdkstl Thanks for putting this here. Raw, honest writing.

I used to post about (same awful disease as abbreviated in several different languages) on the other site. Have not found quite the same community here โ€” yet. It will happen.

#ALS #mnd #ela #sla

Last updated 2 years ago