New research suggests genetic identification for #eHDS -- #MTHFR.
I have known since 2008 that I have this mutation because it caused such difficulty in my sister's pregnancy. To know that this may be the new diagnostic tool for #HypermobileEhlersDanlosSyndrome gives me great hope.
#HSD #Genetics #EhlersDanlosSyndrome #ChronicPain #MyEDSChallenge #MyHSDChallenge #TogetherWeDazzle #ZebraStrong
#EHDS #mthfr #hypermobileEhlersDanlosSyndrome #HSD #genetics #ehlersdanlossyndrome #chronicpain #myedschallenge #myhsdchallenge #togetherwedazzle #zebrastrong
Further, Dysautonomia International uncovered some glaring conflicts of interest (the docs were/are selling related supplements).
So, please take the multiple news articles saying "MTHFR causes hEDS and can be fixed" with a huge grain of salt (or 5000, especially if you have POTS), and slow your roll.
The devil is always in the details.
#MedEd #foamed #hypermobility #fibro #mthfr #NEISvoid
Health #Introduction of my #RareDisease journey. From Emmy-winning Hollywood Producer, to Disabled Gal coming to terms with a life radically changed.
My Health Hashtags:
#TIA
#MCAS
#PTSD
#hEDS
#MTHFR
#Zebra
#Ataxia
#Anxiety
#Spoonie
#Aphasia
#Diabetes
#Disabled
#Allergies
#Orthotics
#ChronicPain
#DoubleVision
#Subluxations
#EhlersDanlos
#Radiculopathy
#CusackProtocol
#MyastheniaGravis
#RheumatoidArthritis
#HemiplegicMigraines
#HistamineIntolerance
#Immunocompromised
#DegenerativeDiscDisease
#introduction #RareDisease #tia #mcas #ptsd #heds #mthfr #zebra #ataxia #anxiety #spoonie #aphasia #diabetes #disabled #allergies #orthotics #chronicpain #doublevision #subluxations #ehlersdanlos #radiculopathy #cusackprotocol #myastheniagravis #rheumatoidarthritis #hemiplegicmigraines #HistamineIntolerance #immunocompromised #degenerativediscdisease