Perhaps I lack empathy, but as someone with #MultipleSclerosis, I find stumbling across posts of other people holding pity parties completely repellent. Just yesterday I saw a person whining about how the heat was ruining their life. I get it, and I also understand people need to mourn and to vent... but the relentless negativity just grinds me down. It's happened to you; pick yourself the fuck up and try to move forwards.

Read along with Todd Cerveris as he bikes 620 miles over 2 weeks. This badass raised a combined $6K for the National MS Society and World Bicycle Relief.

https://www.toddcerveris.com/sts2023blog/2023/9/6/day-zero

#BikeTooter #bikes #disability #MS #MultipleSclerosis

My husband is the only one at his work that still masks- so he’s the one who covers shifts for all those who don’t.

Plus he got bumped up to a manager level where he’s salaried now so he doesn’t get paid for it anymore either.

His coworker called out, other is home w/ sick kid.

I stayed up until 2 to keep my kid away for a EEG to rule out focal seizures antincipating him driving.

Todays gonna suck and I might need to Uber-MS fatigue sucks.

#MultipleSclerosis

#Covid

#ImTired

#multiplesclerosis #lifeexpectancy
https://www.mymsteam.com/news/how-multiple-sclerosis-affects-life-expectancy-study-results

Bin ja mal gespannt, was aus meinem GDB Antrag wird. Habe nochmal ein extra Schreiben gemacht, in dem ich meine Probleme im Alltag nochmal verdeutliche. Wurde mir auch empfohlen. Ist ja auch bescheuert. Nur Anhand Arztberichten sowas zu entscheiden. #multiplesclerosis #multiplesklerose

@tomkindlon @chronicillness @spoonies @mecfs @longcovid

My favorite example with fatigue was talking to my husband on the way home from work, telling him how much more energy I had, then halfway home wondering if I could make it home without falling asleep.

A little warning would be nice.

I’ve been on SSDI for years now, still don’t know what I can do tomorrow.

#MultipleSclerosis

A little bit of escapism =

Philip K. Dick, The Divine Invasion for an hour or so… then:

“Rybys Rommey.
'Dying of what?" he said. 'What the hell do you mean?"
Multiple sclerosis.
'You can't die of that. Not these days.' Out here you can.”

Reading it after a Dublin MS Meetup today when we gathered, connected with other MSers and I know my life with MS isn’t *always* so damn tragic 🫶🏾
#MS
#MultipleSclerosis
Check out Dublin Multiple Sclerosis Group on Meetup https://meetu.ps/c/csNn/1792V/a

Potentially good news for people living with MS. Biosimilars are usually more affordable than the original drug.

"The U.S. Food and Drug Administration recently approved Tyruko® (natalizumab-sztn, Sandoz), making it the first biosimilar disease-modifying therapy for adults living with relapsing forms of MS. Tyruko, which is similar to Tysabri, is expected to be made available during the first half of 2024."

https://www.nationalmssociety.org/About-the-Society/News/FDA-Approves-Tyruko%c2%ae,-Biosimilar-to-Tysabri%c2%ae,-for

#MultipleSclerosis #MS #MSchat #disability

I’m in for my 9th Ocrevus infusion and struggling for an original photo. #MSChat #MultipleSclerosis #Ocrevus #Ocreluzimab

No new lesions in my brain for two years running! WOOHOO! Fuck yeah! 🤘🧠😊

#MultipleSclerosis #MRI #MS

Just been texted by my GP to book a flu/covid jab. It's not until October, but at least it's in the diary (plus my natural immunity from infection last month is probably still pretty good).
Stay safe out there. In spite of what you may have heard, there's a lot if it about.

#COVID19 #covid #vaccination #MultipleSclerosis

No new legions on my last scan - woooo!

My sclerosis may be multiple, but they are not currently multiplying!

#MultipleSclerosis

@rchusid Reminds me of other diseases associated with viruses like #MultipleSclerosis and #EpsteinBarrVirus #EBV as once one gets #MS they have it for life. Main reason I don’t want #LongCovid is I have #MS and don’t need any other disease that causes neurological damage.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9362539/

https://www.youtube.com/watch?v=u-Zu8zXugpc WHO Paper: COVID-19 Vaccines Can Induce Multiple Sclerosis #covid #vaccines #who #multiplesclerosis #ms

Impfungen während einer Immuntherapie:
Welche Strategien eignen sich für MS-Patienten? Erste europäische Konsensuserklärung
https://deutsch.medscape.com/artikelansicht/4912807 #MultipleSclerosis #MultipleSklerose #impfung #impfungen #vaccination #vaccinations

A clinical trial is underway testing a new type of therapy its developer says addresses damage to nerve cells associated with a number of neurological disorders.

https://sciencebusiness.technewslit.com/?p=45143

#News #Press #Science #Business #Neuroscience #Neurons #Axons #ALS #NerveDamage #MultipleSclerosis #TraumaticBrainInjury #ClinicalTrial #Therapy #Biotechnology #Chemistry

Med appointment today for #multiplesclerosis. I’m so lucky to have the family medical leave act to back me up for the amount of time I have to take for appointments because of my #MS. How do folks without #FMLA manage? #chronicillness #pwms #familymedicalleave

Summary for laypeople from @MEResearchUK of "Association analysis between symptomology and herpesvirus IgG antibody concentrations in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and multiple sclerosis"

"Are ME/CFS symptoms related to levels of human herpes virus antibodies?"

https://www.meresearch.org.uk/are-me-cfs-symptoms-related-to-levels-of-human-herpes-virus-antibodies/

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #multiplesclerosis multiplesclerosis@a.gup.pe

Coworker who I was supposed to ride in a car with all day tomorrow tested positive for #Covid. Glad she tested before exposing me to that shit. #compromisedimmunesystem #multiplesclerosis

I’m gonna blame walking for miles in the bad air yesterday for my lethargy and exhaustion right now… instead of going into full on panic or assuming it’s a #multiplesclerosis thing. Wish me luck! #aqi #anxietydisorder