@awaisaftab

Very interesting - thanks for posting.

A bit OT, but would like to mention that Li is toxic at typical doses in ppl w/ multiple system atrophy.

So far I've not come across an explanation, but study of Li toxicity in MSA might lead to a better understanding of disease mechanisms. I suspect there might be a connection with glycine & heme.

https://doi.org/10.1007/s00415-012-6655-7
https://doi.org/10.1177/1049909111434633

#MultipleSystemAtrophy #lithium

@jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.

Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.

I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy

@thepoliticalcat

Thanks. I need to keep all the healthy gray matter I have since I have a form of #Parkinsons #ParkinsonsPlus ( #MultipleSystemAtrophy )

The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me

Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms

I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly

Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon

Re - #Introduction

I'm @paul. On the fowl site I was known as #FeedingTubePaul because I first started tweeting feeding tube awareness videos after getting mine on April 16, 2012, 11 years ago.

My social life & purpose evolved so here I am just Paul

My hashtags are #Parkinsons Plus-#MSA #MultipleSystemAtrophy #Disability #HashtagGames #Jokester #Healthcare, #USpol, #climate, #music, #literature, #movies, #TV, #fedi22 #Ohio #US #Veteran #Banjo #CatsOfMastodon among others.

“rapid eye movement sleep behavior disorder (RBD)... can be associated with neurodegenerative disorders [like] Parkinson’s disease, Lewy body dementia and multiple system atrophy... #alcohol ...can worsen RBD and its effects”

–Lindsay Modglin (reviewed by Seema Khosla, M.D., F.C.C.P., F.A.A.S.M)

https://www.forbes.com/health/body/how-does-alcohol-impact-sleep/

#alcohol #sleepApnea #REMsleepBehaviorDisorder #REMsleepDisturbnce #Dementia #Parkinsons #Neurodegenerative #Disorders #MultipleSystemAtrophy #Health #Wellbeing #longevity

[Automatic repost https://twitter.com/dystobot/status/1634177404150194176]

RT @NeuroAlliance: Optimal clinical pathways for adults with neurological conditions published: others in development. Learn more

https://t.co/4Q8MDvJWRD

#Headache
#FacialPain
#migraine
#ataxia
#parkinsons
#msa
#MultipleSystemAtrophy
#Huntingtonsdisease
#Dystonia

Things are tough right now since my Mum died. It has truly been one thing after another. I hate to ask but anything anyone could spare, would be enormously appreciated. https://revolut.me/michelled13 #multiplesystematrophy #familycaregiver

Things are dire right now since my Mum died. It’s been one thing after another. I hate to ask but a gal has gotta eat! Anything anyone could spare would be enormously appreciated. https://revolut.me/michelled13 #multiplesystematrophy #familycaregiver

I have #ParkinsonsPlus, #MultipleSystemAtrophy ( #MSA ) with severe autonomic dysfunction.

I understand a lot of doctors treating #LongCovid don't understand #dysautonomia's, esp POTS.

Speaking as a long-time sufferer, for #POTS they really should look at using #Pyridostigmine (brand name #Mestinon ).

It has been the best relief I've received in the past decade.

The quality of my life improved after I started taking Mestinon.

Significantly decreased my syncope and pre-syncope.

I’m really struggling right now. It has been one thing after another since my Mum died. I feel so uncomfortable asking but anything anyone could spare would be hugely appreciated. https://revolut.me/michelled13 #multiplesystematrophy #familycaregiver

I’m really struggling right now. It has been one thing after another since my Mum died. I feel so uncomfortable asking but anything anyone could spare would be hugely appreciated. https://revolut.me/michelled13 #multiplesystematrophy #familycaregiver

With huge repairs, Covid/Long Covid & torn ligaments since my Mum died, I’m really struggling right now. I hate to ask but anything anyone could spare would be enormously appreciated. https://revolut.me/michelled13 #multiplesystematrophy #familycaregiver

Repairs, Covid/Long Covid & torn ligaments since my Mum died. I hate to ask but I’m really struggling right now. Anything anyone could spare would be enormously appreciated. https://revolut.me/michelled13 #multiplesystematrophy #familycaregiver

#Sissy assumed her nightly position & purring so loud #CatsOfMastodon

Such a joy & relaxer. It does something for my #health to have such as great nurse like Sissy

This is a Two-fer hashtag toot

For #MedMastodon, the home pharmacy in background is to keep my #autonomic system in check. Nothing major pharmaceutical wise, just things that make you poo and pee, blood pressure medications & meds to keep other automatic things my body doesn't do now working #ParkinsonsPlus #MultipleSystemAtrophy