Recently started carbidopa-levodopa (#levocarb) to treat #dystonia, a common comorbidity with #EhlersDanlosSyndome. I am cautiously optimistic for my chronic #MuscleSpasms, #Cramping, and #AbnormalMovement. While I don't have obvious #Myoclonic movements like #Parkinson patients, my #neurologist who's a movement disorder specialist said that based on my symptoms and since I have #hEDS, we're treating as if I have dystonia. Started week 2; he said should expect results in 3 weeks #FingersCrossed

Worst part about attending any event away from home....

I don't drink enough during the day. I'm short 3 22 oz. glasses of water for the day, which means that it's highly likely I'll get an early morning rise-and-shine call from muscle cramps. Yuck.

It's hard to believe when I THINK about it, but I normally consume 6 of these glasses of water every day...before 11 pm. No way can I drink 3 in the next hour before my witching hour arrives!
#SeniorLife #Water #Dehydration #MuscleSpasms

Welp have a interview today but idk how tf this is gonna go with my neck being screwed up like it is and still waiting on the mri to be scheduled. I'm down to a relaxer and otcs and neither are doing anything for the neck.... I think surgery #2 might be inevitable at this point....

#pain #anxiety #mybodysucksass #musclespasms #neckpain

What you need to know about the Stiff Person Syndrome

https://www.dw.com/en/what-you-need-to-know-about-the-stiff-person-syndrome/a-64044186?maca=en-dipa_news_mstdn-34613-xml-mrss

#CelineDion #neurologicaldisease #autoimmune #StiffPersonSyndrome #SPS #musclespasms