Smiling Sloth; Acrylic Portrait of Furry Animal, Gift of Love & Friendship, Artwork, Myasthenia Gravis Mascot, Printable Download File by ColorBySusan on Etsy https://www.etsy.com/listing/1484385426/smiling-sloth-acrylic-portrait-of-furry #giftideas #myastheniagravis #mg #sloths #animals #slow

Engineered T-Cells Shown Safe, Reduce Myasthenia Gravis

Results of a small clinical trial show genetically altered T-cells from patients with myasthenia gravis are well tolerated and reduce symptoms of the disease.

https://sciencebusiness.technewslit.com/?p=44933

#News #Science #Business #MyastheniaGravis #Autoimmune #ClinicalTrial #Biotechnology #Tcells #Autologous

Smiling #sloth Acrylic #portrait of #furry Animal Artwork, LGBTQ Pride Month, Printable Digital Download File by ColorBySusan on Etsy https://www.etsy.com/listing/1484385426/smiling-sloth-acrylic-portrait-of-furry #myastheniagravis #myasthenia_gravis #mascot #myastheniagravisawarenessmonth #MGAwarenessDay #MGawarenessmonth

Smiling #sloth Acrylic #portrait of #furry Animal Artwork, LGBTQ Pride Month, Printable Digital Download File by ColorBySusan on Etsy https://www.etsy.com/listing/1484385426/smiling-sloth-acrylic-portrait-of-furry #myastheniagravis #myasthenia_gravis #mascot #myastheniagravisawarenessmonth #MGAwarenessDay #MGawarenessmonth

Smiling Sloth; Acrylic Portrait of Furry Animal, Father's Day Gift of Love, Artwork, LGBTQ Pride Month, Printable Digital Download File by ColorBySusan on Etsy https://www.etsy.com/listing/1484385426/smiling-sloth-acrylic-portrait-of-furry The sloth is the mascot of Myasthenia Gravis because they represent the slowness of our movements. ❤️ #MyastheniaGravis Awareness Month #autoimmunedisease

Good morning friends. I'm in the hospital with a major #myastheniagravis flare. #autoimmune stuff sucks. I always have a bit of shortness of breath but the last 3-4 days, it's been much worse every time I move a muscle. So.... I'm bored & can't sleep. Would appreciate almost any distraction

Yesterday I had the chance to meet the #MyastheniaGravis patient organisation representatives from all over #Europe. During the meeting, we have discussed the next steps of the creation of a dedicated European MG Awareness Day on 2 June.

🐦🔗: https://n.respublicae.eu/istvan_ujhelyi/status/1621417257241911297

#myastheniagravis #mg is trying to get my attention lately. My balance is pretty sketchy, my vision blurry & hard to keep eyes open. All my muscles tire so quickly...feels like I did an hour of Zumba instead of pull my pants up. Oh, and the lovely shortness of breath #chronicillness

3/6 What I do know, is that this is unbelievably irresponsible and unsafe on multiple levels. My father and I are both #immunocompromised and #HighRisk. This time last year he was in and out of the hospital for infections following a month long ICU stay for an aortic dissection. He has #MyastheniaGravis. His chances with #Covid are not good. Mine are a little bit better. He will definitely die. I will only probably die. But for some reason I am the only one with concerns.
#CovidIsNotOver #MaskUp

I need people to stop saying that the real physical symptoms I’m having are just me imagining them or anxiety. this is why it took almost a decade for me to get a diagnosis.

#chronicillness #myastheniagravis

My journey with myasthenia gravis: a chronic autoimmune disease

Myasthenia gravis is a chronic autoimmune neuromuscular disease that causes weakness in the skeletal muscles, which are responsible for breathing and moving parts of the body, including the arms and legs.

Heather Finlay-Morreale is a pediatrician.

https://youtube.com/shorts/lXaOcmzDG6Q

Listen here: https://kevinmd.com/podcast

#myastheniagravis #muscleweakness #autoimmune #neuromuscular #acetylcholine #myastheniccrisis #breathing

my favorite part about finally getting treatment is that my voice actually works now. I was dealing with so many random vocal issues for years and my lower range was completely gone at some point. maybe recording vocals will be fun again. 😭

#chronicillness #myastheniagravis

it’s so nice and weird to actually have energy again. yesterday I started and finished a project. turns out I wasn’t lazy, unmotivated or unorganized after all.

#chronicillness #myastheniagravis

#disability #chronicillness #myastheniagravis I had a pretty awful experience tonight. I'm wondering if any of you may have had a similar thing happen. I was sitting on a bar-height chair when my sweet stepdaughter swung her legs around & knocked into my knee at the perfect spot to activate a humongous reflex & autonomic response. I felt like I was going to faint as the jolt of electricity ran from my knee into my brain. I became quite nauseous. Took 20 min or so to recover.

Ugh. #myastheniagravis is kicking my behind today. And nothing tastes good. Guacamole...nope. Salsa...nope. Last hope: ice cream!

@willowschwartzwald I have #myastheniagravis and #rheumatoidarthritis

Bei Patienten mit chronischer primärer Immun-#Thrombozytopenie werden häufig Glukokortikoide als Erstlinientherapie eingesetzt. Ein Wirkstoff, der bisher zur Behandlung einer #MyastheniaGravis eingesetzt wird, könnte bald auch ihnen helfen.
http://docc.hk/4uez9p

I live in northwestern #Wisconsin, up by Lake Superior. But lived in southern New Mexico for 20+ years. From one extreme to another. I'm a #disabled occupational therapist. I've been disabled for 14 years & it sux more than I thought it would but less that its potential. I love painting & gardening to distract from #myastheniagravis and #rheumatoidarthritis

to quote #TheWhiteLotus
“I thought I had cancer, but I don’t!”
#myastheniagravis

I’ve basically been living with my partner (in large part due to this stuff), but I’m worried for my father. And come early January, I’m not sure how to easily get out of a family visit, especially in a way that doesn’t cause him further harm.
#CovidIsNotOver #Immunocompromised #RareDisease #WearAMask #MaskUp #COVIDisAirborne #ChronicIllness #Thread #Covid #MyastheniaGravis #AorticDissection