Großer Erfolg am Uniklinikum Erlangen: Ein Patient, der an einer schwerwiegenden Form von #Myositis erkrankt war, konnte vollständig geheilt werden. Dafür wurde erstmals auf eine onkologische Therapie zurückgegriffen. http://docc.hk/2rcj2s

#MYOSITIS

Universitätsklinikum Erlangen the first in the world to use a pioneering new method to successfully treat a patient suffering from myositis

https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(23)00023-5/fulltext

https://www.fau.eu/2023/02/20/news/research/testing-their-strength-car-t-cells-combat-muscle-inflammation/

https://www.fau.de/2023/02/news/wissenschaft/kraeftemessen-car-t-zellen-gegen-muskelentzuendung/

#myositis #muscle #inflammtion
#CAR-T #CART #cell #therapy
#Muskel #Entzuendung #Entzündung
#CAR-T #Zell #Therapie

2022 was weird. It's been a year of massive highs, getting engaged, moving to a new town, seeing my best friend more, doing some incredible days out. But also some crazy, crazy, lows, catching covid, my juvenile Dermatomyositis being triggered into activity by that, losing a tonne of my strength, my mobility, my balance, my independence. Now I'm going into 2023 starting a drug in March and just hoping for progress #Spoonie #myositis #covid19 #disabledUK

This evenings ramblings will be about my various hobbies. My favourite is #crochet I'm not doing as much because of the aforementioned #chronicillness but I'm trying to finish a teddy for my niece for Xmas. I also dabble in other crafts, trying to #learntodraw and looking for something creative I could do without hurting my hands.

I also do #polefitness which uses all my spoons at the moment but totally worth it, exercise is treatment for #myositis and i love it!

Alrighty! So it's midnight and I should be sleeping but I'm #chronicallyDisabled and on prednisolone so sleep doesn't exist. Let's talk about it! I have juvenile Dermatomyositis #jdm , a type of #myositis and these tags are empty atm! I'm #disabledUK so connecting with others would be great! I've also started a PIP application so, you know, support through that arduous process will be good 😊 I'll post more info snippets soon!