@Cassandra I don’t know of many on here who identify as disabled in this way, sadly. #lupus is one, #POTS #EDS #NEIS are some others.
As for personal experience for my lupus, edibles were more effective by far, but the cream reduced some of the local inflammation, no effect on pain level.

[Automatic repost https://twitter.com/dystobot/status/1659643869112287233]

RT @HeartBravoFl: I am sure #EhlersDanlosSyndrome is not helping any of this. I was so embarrassed. My daughter was yelling not to call ems this normal. My normal sucks.#NEIS #Dystonia #Trigeminalneuralgia #OccipitalNeurgia #hemifacialspasms

Cyn dechrau gweithio, rhaid i fi yfed coffi.

#DysguCymraeg :baner: #neis

Massively important poll!! Is groove actually in the heart?! #neis

I'm almost always #neis but not necessarily #tidy

Black metal full of beauty and sorrow. An immensely atmospheric and engaging album #imperiumdekadenz #nowplaying #blackmetal #neis 🤘🏻

https://music.apple.com/gb/album/into-sorrow-evermore/1644922409

Black metal full of beauty and sorrow. An immensely atmospheric and engaging album #imperiumdekadenz #nowplaying #blackmetal #neis

https://music.apple.com/gb/album/into-sorrow-evermore/1644922409

#neis

A rare insight into the work and opinions of one of the great 19th century engineers, published in1825!

Full of seemingly apparent contradictions resulting from uncertainties in a time of profound technological change.

Even better, as its in the public domain you can download a copy free of charge!

Review: 'Description of the Faults or Dykes of the Mineral Basin of South Wales' by George Overton

https://booksontheline.com/?p=2005

#Engineers #BookReview #Wales #Cymru #GeologyRocks #neis

How many times must we call bullshit?! #neis

@ailbhe Me too, in between the pain. And disbelief that this is where we're at in 2023. #neis

Mam bach! Mae rhywun wedi dwgu hanner y tŵr dros nos! Dwi'n gwybod mae concrît yn ddrud, ond rîly! #CraenEccles

Blimey! Someone has stolen half the tower overnight! I know concrete is expensive, but really! #EcclesCrane

#neis

[Automatic repost https://twitter.com/dystobot/status/1626341936008241154]

RT @book_bitchy: #EDS #neisvoid #neis
Has anyone got experience with a large lumbar Tarlov cyst causing leg dysfunction and dystonia like symptoms?
Possible because of big weight loss.

Thank you

I have been very quiet for a while. I have not had enough support worker hours and I have had to do too much. My whole body has been overloaded, particularly my arms. I ended up needing to just lie flat in bed all day, and my arms quit being arms. My migraine flared as well of course, and I have been pretty despairing. It has been a bad time with so much pain and so much skin feeling like it is on fire. #crps #disability #neis #Migraine

Daily panic dropping a tiny pill in between getting it out of the pack and putting it in my mouth - fucking useless hands. Mad scrabble to find it before the cats or kids do.
The one body part that I could still make use of has gone balls up in the last few months. I'm only useful as a doorstop these days. #NEIS

Most inexplicably painful flare up last night. My wrists are strapped up, I'm staggering around like the tin man and I didn't sleep at all.
So that sucks.
#NEIS

Le covid long c'est pas "un peu de fatigue" ou "un peu d'anxiété". C'est invalidant, et ça peut devenir chronique #NEIS
#LongCovid
#apresj20

Another morning, another #migraine 😩

Lately I have been one day up, the next down again. Not sure what is causing this flare but every time I try to return to normal activity/productivity the next day gets worse. My headaches used to be much more cyclical.

More rest I guess! (Also more meds)

Note: this post is not an invitation to provide advice.

#spoonie #NEIS #NEISVoid

RT @chronicallybeee
hey y’all, anyone have any rheumatologist recommendations for the SF bay area/northern california? #neis #neisvoid

If you were one if the kind folk who followed, liked or boosted the #castle #aberystwyth image from #tuesday diolch yn fawr. #bbc #Wales #weather used it this morning! On a bulletin #neis appreciate the shared enjoyment