Kat · @kittywifclaws
1034 followers · 2125 posts · Server hachyderm.io

@Cassandra I don’t know of many on here who identify as disabled in this way, sadly. is one, are some others.
As for personal experience for my lupus, edibles were more effective by far, but the cream reduced some of the local inflammation, no effect on pain level.

#Lupus #pots #eds #neis

Last updated 1 year ago

dystobot · @dystobot
5 followers · 7235 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @HeartBravoFl: I am sure is not helping any of this. I was so embarrassed. My daughter was yelling not to call ems this normal. My normal sucks.

#ehlersdanlossyndrome #neis #dystonia #trigeminalneuralgia #occipitalneurgia #hemifacialspasms

Last updated 1 year ago

Athro Rob · @robriley
124 followers · 1525 posts · Server toot.wales

Cyn dechrau gweithio, rhaid i fi yfed coffi.

:baner:

#neis #dysgucymraeg

Last updated 2 years ago

Massively important poll!! Is groove actually in the heart?!

#neis

Last updated 2 years ago

📷✉️ Morgaine 🖋️🍄 · @Morgaine
134 followers · 639 posts · Server toot.wales

I'm almost always but not necessarily

#tidy #neis

Last updated 2 years ago

Black metal full of beauty and sorrow. An immensely atmospheric and engaging album 🤘🏻

music.apple.com/gb/album/into-

#neis #blackmetal #nowplaying #imperiumdekadenz

Last updated 2 years ago

Black metal full of beauty and sorrow. An immensely atmospheric and engaging album

music.apple.com/gb/album/into-

#neis #blackmetal #nowplaying #imperiumdekadenz

Last updated 2 years ago

#neis

Last updated 2 years ago

Books on the Line · @booksontheline
80 followers · 234 posts · Server toot.wales

A rare insight into the work and opinions of one of the great 19th century engineers, published in1825!

Full of seemingly apparent contradictions resulting from uncertainties in a time of profound technological change.

Even better, as its in the public domain you can download a copy free of charge!

Review: 'Description of the Faults or Dykes of the Mineral Basin of South Wales' by George Overton

booksontheline.com/?p=2005

#neis #geologyrocks #cymru #Wales #bookreview #engineers

Last updated 2 years ago

How many times must we call bullshit?!

#neis

Last updated 2 years ago

Jo Lambert · @JoDavies
96 followers · 185 posts · Server toot.wales

@ailbhe Me too, in between the pain. And disbelief that this is where we're at in 2023.

#neis

Last updated 2 years ago

Sue Archer · @suearcher
235 followers · 1189 posts · Server toot.wales

Mam bach! Mae rhywun wedi dwgu hanner y tŵr dros nos! Dwi'n gwybod mae concrît yn ddrud, ond rîly!

Blimey! Someone has stolen half the tower overnight! I know concrete is expensive, but really!

#neis #ecclescrane #craeneccles

Last updated 2 years ago

dystobot · @dystobot
5 followers · 2655 posts · Server med-mastodon.com

[Automatic repost twitter.com/dystobot/status/16]

RT @book_bitchy:
Has anyone got experience with a large lumbar Tarlov cyst causing leg dysfunction and dystonia like symptoms?
Possible because of big weight loss.

Thank you

#eds #neisvoid #neis

Last updated 2 years ago

Lisa McLennan · @ljmcle
52 followers · 580 posts · Server disabled.social

I have been very quiet for a while. I have not had enough support worker hours and I have had to do too much. My whole body has been overloaded, particularly my arms. I ended up needing to just lie flat in bed all day, and my arms quit being arms. My migraine flared as well of course, and I have been pretty despairing. It has been a bad time with so much pain and so much skin feeling like it is on fire.

#crps #disability #neis #Migraine

Last updated 2 years ago

Allie_Rouge · @Allie_Rouge
9 followers · 95 posts · Server universeodon.com

Daily panic dropping a tiny pill in between getting it out of the pack and putting it in my mouth - fucking useless hands. Mad scrabble to find it before the cats or kids do.
The one body part that I could still make use of has gone balls up in the last few months. I'm only useful as a doorstop these days.

#neis

Last updated 2 years ago

Allie_Rouge · @Allie_Rouge
9 followers · 78 posts · Server universeodon.com

Most inexplicably painful flare up last night. My wrists are strapped up, I'm staggering around like the tin man and I didn't sleep at all.
So that sucks.

#neis

Last updated 2 years ago

Chiara Chiarel · @ChiaraChiarel
107 followers · 263 posts · Server piaille.fr

Le covid long c'est pas "un peu de fatigue" ou "un peu d'anxiété". C'est invalidant, et ça peut devenir chronique

#neis #longcovid #apresj20

Last updated 2 years ago

Erin Fulmer · @erinfulmer
1475 followers · 1633 posts · Server wandering.shop

Another morning, another 😩

Lately I have been one day up, the next down again. Not sure what is causing this flare but every time I try to return to normal activity/productivity the next day gets worse. My headaches used to be much more cyclical.

More rest I guess! (Also more meds)

Note: this post is not an invitation to provide advice.

#migraine #spoonie #neis #NEISvoid

Last updated 2 years ago

JustME · @just_me_gi
248 followers · 197 posts · Server mastodon.cloud

RT @chronicallybeee
hey y’all, anyone have any rheumatologist recommendations for the SF bay area/northern california?

#neis #NEISvoid

Last updated 2 years ago

Wendiihouse · @Wendiihouse
53 followers · 84 posts · Server toot.wales

If you were one if the kind folk who followed, liked or boosted the image from diolch yn fawr. used it this morning! On a bulletin appreciate the shared enjoyment

#neis #weather #Wales #bbc #tuesday #aberystwyth #castle

Last updated 2 years ago