RT @CovidCastaways@twitter.com

“Castaways” a docuseries shedding light on Long COVID and the fallout from the COVID Pandemic is set to start filming soon & have its first episodes released in 2023.

COVID Castaways is sponsoring it.

#LongCOVID #pwLC #LC #NotRecovered #Docuseries #COVID #Pandemic #Castaways

🐦🔗: https://twitter.com/CovidCastaways/status/1673508972685402112

📝Nous remercions tous les malades #CovidLong & proches aidants qui ont envoyé cette semaine une carte postale à #StellaKyriakides ( Commissaire EU à la santé) & Margrethe Vestager ( Commissaire EU à la recherche) dans le cadre de la campagne #LetterForLife!

Nous reviendrons vers vous prochainement avec une prochaine action 👊!

#ApresJ20 #CovidLong #LongCovid #NotRecovered

"Not Recovered" - a Long Covid advocacy group - announces a postcard campaign called "Letter for Life."

"Write a postcard to @SKyriakidesEU (Stella Kyriakides) and @GabrielMariya (Mariya Gabriel) to raise awareness about Long Covid, ME/CFS, and associated conditions and call for more research and better care."

This thread (nitter link) has addresses and full set of instructions:

https://nitter.net/Not_Recovered/status/1659868233795616768#m

#LongCovid #MEcfs #NotRecovered #LetterForLife #EU

Fatigue wird schlimmer. Immer noch kein Termin für eine #longCovidAmbulanz in Sicht. Weiter mit Selbstversuchen und „Zähne zusammenbeißen“.
#LongCovid #ADHS #notrecovered

Not gonna update this until I see a significant positive change for most of the channels I list...

1️⃣ #Blender on #PeerTube, their followers are rising.

* TheLinuxExperiment #StillStruggling #DidNotRecover
* Veronica Explains, #StillRecovering.
* More PeerTubers not listed here have also #NotRecovered!

2️⃣ KDE was and is doing good no problem but since it's been 2 months and no new videos I suppose they are very #inactive.

Sadly nobody else is making progress.

#PeerTubeDormant

RT @GeoEduOne
#LongCovidAwareness #LongCovid #LongCovidKids #NotRecovered

Signal boosting for my wife and all others suffering with many times unseen chronic illnesses.

#LongCOVID #mecfsawareness #COVID19 #NotRecovered #ChronicIllness

Shameless plug of a Wall Street Journal article in which my wife was a contributing source (referenced as Ms. Jackson). #LongCOVID #CovidIsNotOver #NotRecovered

https://www.wsj.com/articles/long-covid-is-a-disability-heres-how-to-ask-for-workplace-accommodations-9b63fd90

Shameless plug of a Wall Street Journal article in which my wife was a contributing source (referenced as Ms. Jackson). #LongCOVID #CovidIsNotOver #NotRecovered

https://www.wsj.com/articles/long-covid-is-a-disability-heres-how-to-ask-for-workplace-accommodations-9b63fd90

RT @sibylle_berlin
„Wie ein grosser Tanker, im Blindflug, bei Gegenwind, im Dunkeln“, so beschreibt @ProfSchieffer die Lage.
#Covid #LongCovid #NotReCovered

@Karl_Lauterbach‼️Empfehlenswert ist dieser Vortag‼️@starkwatzinger anzutaggen macht ja gar keinen Sinn🥲 1/4
➡️ https://www.youtube.com/watch?v=IqK2SixsMbw https://twitter.com/sibylle_berlin/status/1628712627055521796

Tag 2, ab dem es mir früh unsagbar schlecht geht.
Muskelschmerzen. Ein Zustand zwischen wach und schlafen, aus dem ich nur schwer raus komme. Muskelschwäche in Händen, Füßen und deren Gelenke.
Und keine Ärztin, an die ich mich vertrauensvoll wenden kann. Zum kotzen.
#longcovid #postcovid #fatigue #notrecovered

I am so tired of people at my place of work looking at me like I’ve grown a third eye because I’m still wearing a facial covering.

It’s honestly a little disheartening and makes me self-conscious whenever I walk into a meeting or worksite or whatever.

I’m still doing it, but it just makes me hate people that much more. I wish I could just go on with my life and pretend that this is all over and stop wearing masks.

All I can picture is all the shit my wife is going through since we were infected. It’s been 818 days since her life was upended by this fucking virus. It’s not over for her. And so it’s not over for me. I don’t want to be the person who maybe brings home a new exotic variant and puts her through this again.

#MaskUp #COVID #CovidIsNotOver #NotRecovered

Wäre zwischen dem ganzen #LongCovid nicht auch noch #ADHS Tja. Dann wäre wohl vieles einfacher. Wo sind diese #Superkräfte wenn man sie mal braucht?
#beStrong #keepUp #stayStrong #GivingUpIsNotAnOption #notRecovered

The latest The nofrills Daily! https://paper.li/nofrills?edition_id=8b093fa0-9f07-11ed-967d-fa163e65ae25 Thanks to @AlinejadMasih@twitter.com @AlMonitor@twitter.com @yunod@twitter.com #longcovid #notrecovered

RT @42soho
Long Covid is affecting college campuses. These are young individuals around my age. These are previously healthy, fully vaccinated individuals. Among 1,400 fully vaccinated students, 36% reported #LongCovid symptoms. #NotRecovered

https://www.sfchronicle.com/health/article/covid-california-virus-updates-17742465.php

From the review:

"[Ryan] Prior notes that the emergence of post-COVID syndromes was not a surprise to people with knowledge of chronic fatigue syndrome (CFS), nor to those who had seen long term sequelae in people infected with the first severe actue respiratory syndrome virus in the early 2000s."

Note: CFS is an older name. ME/CFS is the current name used by NIH and CDC, see https://www.cdc.gov/me-cfs/index.html

3/3

#LongCovid #MEcfs #NotRecovered #Books #BookReview

From the review:

"The data aggregation website Worldometer reports that as of 5 January 2023 there have been more than 666 million cases of COVID-19 and over 6.7 million deaths worldwide. It also reports ~638 million cases as 'recovered' a figure I am sure journalist Ryan prior would dispute."

2/3

#COVID #LongCovid #NotRecovered #Books #BookReview

Science Magazine's book review of The Long Haul by Ryan Prior

"The unrecovered"

"A journalist’s empathetic portrait of COVID-19 'long haulers' sheds light on the realities of postviral illness"

https://www.science.org/doi/10.1126/science.adf7568

I've put some quotes from the review in replies.

1/3

#LongCovid #NotRecovered #MEcfs #Books #BookReview

#MEAwarenessHour
Kurz bevor ich krank wurde, hab ich Wanderschuhe gekauft und mich mega darüber gefreut. Jetzt, ein Jahr später, sind sie immer noch ungetragen und ich habe keine Ahnung, ob ich in diesem Leben nochmal auf einen Berg gehen werde. #NotRecovered

slow, but progress

RT @42soho@twitter.com

“After nine months, an update on the NIH recover study”🧵#LongCovid #notrecovered #fblc

https://www.statnews.com/2022/12/22/after-nine-months-an-update-on-nihs-long-covid-research/

🐦🔗: https://twitter.com/42soho/status/1605996227434160128