It's so great to see the seasonal NSPKU News & Views magazine arriving at my doorstep!

Full of little info to catch me up on the PKU world (at least in the UK) as well as as some great PKU recipes!!

If you are in the UK and you'd like this magazine, subscribe to the NSPKU membership here: https://nspku.org/membership/

#NSPKU #PKU #NewsAndViews

This isn't immediately obvious from the site. But #NSPKU members can get ~40% subsidy towards this year's ESPKU conference. Book as normal then get in contact with your order number. Full details here https://nspku.org/37th-e-s-pku-conference-2023-nspku-member-subsidy-details-and-booking-process/
This may help some of those who were on the fence about going because of the cost.
#pku

Booked my tickets for the #NSPKU/ #ESPKU event in October. I'm going to be going for all the days in the

Not going to lie, this time around it's very expensive. I don't blame anyone for not going. However, I've booked and as far as I can see, I can't refund my ticket 🥲

My plan is to try and record events from the event and put it on https://videos.pkutalk.com.

What do folks think about this approach?

Happy #InternationalPKUDay, everybody!

#pku #phenylketonuria #nhs #nspku

Just reading @truthaboutlifewithpku's new blog post, titled "Learning to be Thankful for PKU". It is an *incredibly* humbling blog post about having PKU in a country where support is available.

You can read it here: https://thetruthaboutlifewithpku.home.blog/2023/06/28/learning-to-be-thankful-for-pku/

#pku #phenylketonuria #nhs #nspku #morocco

If you are wondering “what is PKU?”, my good friend @poconnor has wrote a book on just that!!

It's called Living with PKU, and you can get it here: https://pigpen.page/books/ (£15 for paper back, £5 for eBook)

Between June and July, half of the profits go to the NSPKU charity (https://nspku.org) - a charity that does so much for PKU folks!

Please check out the book (and boost these posts)! Thank you!

#phenylketonuria #LivingWithPKU #nspku #books #bookstodon #boost #boostswelcome

I've updated the #NSPKU fundraiser to see if we can raise £750! It will be great to see if we can hit that target for #PKU folks! #charity

Please boost & donate!

https://www.justgiving.com/page/soheb-mahmood-1668673962147?utm_term=4xRy7N6Jv