#nvld ate some of my words at dinner tonight with the damn mouth dyspraxia. I'm never gonna eat used to that

Playing #Sekiro as someone who has #NVLD / #dyspraxia is certainly… something.

The accessibility tools that would help are fairly minor and wouldn't alter the difficulty overmuch, but that's not how these games work, generally.

Meanwhile, I can do this, I've done things like it, but it is going to take some serious practice to get this style down.

#amwriting, and my #NVLD is in the way of me verbalizing the things I'm trying to say. And to think, I'm exploring a career in the written word.

It's also funny that I have this Word Challenge as an inherent part of how my brain works, yet I love to read and write.

I'm telling you, none of them tests make any sense. Diagnose yourself 😂

Feeling somewhat better about #nvld today. Just trying to enrich myself with words more than sound these days. The audio fidelity in podcasts is too much sometimes.

Anyone else who is NVLD?

#NVLD
#ActuallyNVLD
I identify with autistics, I am seen as autistic but Auditory>Visual.

After spending years reading about #ADHD and #ASD, I'm finally taking the time to read about my #NVLD.

I'm upset I never knew this shit, so I could get support.

I'm upset about the zeitgeist of the place.

I'm upset. Just, generally upset.

The ableism is out to play in my head. Because I both want to be around people, and simply cannot comprehend them.

Shit sucks.

NVLD: Part 3 https://nyssashobbithole.com/main/nvld-part-3/
#nvld #nonverballearningdisorder #nld

Why are folk mocking people for being upset Twitter doesn't work. It had been better-built than the Fediverse, especially cause you can't even QRT here. QRTs are how I make friends. #nd #nvld

#ASD / #NVLD diagnoses, #BadFriends, and #PoliticalPTSD https://nyssashobbithole.com/main/diagnosis-nd-badfriends-politicalptsd/

@mmedada I’m 34 and I’ve been seeing a therapist for about 4 years now. I started seeing him for anxiety and depression, but within a year I started to realize that I might be living with undiagnosed #ADHD or #NVLD (or both). I asked about getting an assessment, but my therapist felt there wasn’t a real benefit to it — he worked with my physician to get me a prescription to help me treat the symptoms, and that’s been a huge help.

#NVLD: Part 2
https://nyssashobbithole.com/main/nvld-part-2/
#NLD #nonverballearningdisorder

@bjornlarssen OH MOOD

I’m #NVLD. We are known for being hyperverbal. Seems helpful, but yes and no? I did win writing awards in school, but the amount of effort that went into it was apparently not normal.

I remember my freshman composition professor in college reacting with stunned disbelief when he said a paper I’d written for a very challenging assignment was excellent, and I responded by saying that it had taken me around 100 hours to write. I’d calculated. Except he didn’t seem to disbelieve me, he just seemed to be wondering how that was possible. He didn’t treat it like it was good, or fine as long as the resulting writing was good. He didn’t even try to explain it away as a different problem like time management, as if there would have been any assignment to turn in if I hadn’t had a painfully tight grip on my time management. That really stuck with me. No one had ever believed me before, and acted like it was still a problem if the result was good writing.

It is a problem, and continues to be a problem even with all the ways I’ve learned to work around it. There’s a limit to how much I can afford to manage it without just having to shut myself up unless I have an undetermined amount of time that adds up to enough. Even in the much less polished efforts of a post, that’s always a factor. If I run out of focus or time or energy before I have something I want to post, that may be the end of it. It’s pretty frustrating sometimes.

I know I could cut this down and rework it to be more directly on topic. In fact, I already have several times. I’m done inside and running short on time anyway, regardless of whether the post is as clear and direct as I’d like.

In conclusion, I feel you. Me too.

I’m interested in finding out about developments in NVLD (nonverbal learning disorder) research and understanding. I’m in favor of rethinking the name, as it does tend to make people think that I’m saying I am nonverbal. That’s very confusing, as I’m quite noticeably hyperverbal. It’s supposed to mean that the disability does not affect verbal skills, but that’s not the notion it’s giving people.

I like the idea of the name “visual-spatial learning disorder”, but I do have an issue. Trying to look it up is not going well. I keep running into this same comically awful quote and just have to stop:

“‘NVLD is a huge and hidden public health burden,’ said Jeffrey Lieberman, Chair of Psychiatry at the Columbia University Vagelos College of Physicians and Surgeons and Director of the New York State Psychiatric Institute. ‘This important work might never have come to light if not for the support of dedicated advocate [sic] and their philanthropic support. We hope that these findings raise awareness of the disorder and lead to an understanding of its neurobiology and better treatments’”

Burden. Yep. Haven’t heard that one before like, all of the time from everywhere, though usually implied because most people would at least hesitate to come out and say it?? Thanks, Jeffrey, for using your influence to say the quiet part out loud so we can be understood as an explicit public health burden, secretly sucking the resources from society like needy vampires.

The research is now framed not in terms of understanding and helping people with the disorder because we’re human beings who deserve to have dignity and control of our lives, but because we are a burden on society. Shit, dude, wtf are you even doing. I’m not feeling especially inclined to give him the benefit of the doubt that maybe it was taken out of context. It would have to be one hell of a context, like up until that sentence he was talking about radically rethinking the medicalization of neurodivergence but stopped there to talk about how things stand under the current system, which seems Unlikely.

Especially since he then goes on to talk about how great advocates and philanthropists are. Advocates are fantastic, that much is true. But they never belong in a higher priority place in the conversation than people who actually have the disorder.

Nothing about us without us.

#nvld #ableism

@futurebird @JorgeStolfi
I have #NVLD, so this works well with how my brain works, YMMV, but I have often seen people get _stuck_ on the symbols and language and it helps to go through the process of breaking it down.

Instead of seeing "GIANT EQUATION OF DOOM" you deconstruct it: "the value of this function at an arbitrary point in a positive closed area is equal to one over two pi i times the closed integral over that region of z over z minus that point"

The real possibility that there are people out there who have NVLD but are diagnosed with ADHD is very much hitting me right now. The signs of the two are easily similar enough for this confusion to be possible. I would probably have an ADHD diagnosis myself if I’d seen a doctor who wasn’t as familiar with NVLD.

And in some ways, I ache for that. If I were just a little bit misdiagnosed, all the medications and most of the accommodations would be the same, but I would have a community. But that’s not really what I want. I want the community desperately, but not under a less accurate name.

I grieve for what I might have if not for the lack of NVLD awareness, in the medical field and in general.

Where are you, my hyperverbal siblings? It’s so lonely without you.

#NVLD #ADHD #neurodiversity

#NVLD means I’m perpetually lost in space and time, clattering noisily in disjointed bits through the regular cycles of life, often found collapsed from exhaustion in places and postures deemed inhospitable, rarely entirely present. I don’t know how to extract myself in full, or whether I want to, or if I could.

I do know that the literal act of getting lost invites the metaphorical so firmly that very little short of total exhaustion can deny it. Lost becomes transported, enraptured and carried away, such that you wouldn’t recognize the signposts even if you could spare them a thought, because everything looks different from here. The currents are inevitable, always pulling. If you have the energy to ride instead of drift, they are flow.

I can’t show people what the world looks like when you’re a splintered creature cohering only in the center of a sufficiently powerful current, but I can certainly tell them about it. By definition, I tend to have a lot of words.

#neurodiversity

Nobody had heard of my learning disability until Will Smith hit Chris Rock, and then suddenly so many people had entire articles of bold assertions about how we literally can’t interpret any visual information I guess, which would have been way funnier if it were not connected to an assault, and now I only wonder if any of those people still remember ever seeing the letters #NVLD together in that order anymore.

NVLD: Part 1 https://nyssashobbithole.com/main/nvld-part-1/
#nvld
#learningdisorder

Liebe #Medibubble,

wenn man vermutlich #NonVerbalLearningDisorder (kurz: #NVLD) hat und eine Diagnostik als Erwachsener machen lassen möchte, wer wäre da Expertin oder Experte in D/AT/CH (gerne auch Privatpraxen)? 👨‍⚕️ 👩‍⚕️

Bedankt! :heart_fire:

👉 Info:
https://en.wikipedia.org/wiki/Nonverbal_learning_disorder

#Psychologie
#mentaleGesundheit
#Frage
#Psychiater
#Psychiaterin
#Neurologie
#Autismus

@Elleon_Sound I followed you. My daughter & I both have #NVLD