Colin-Roy Hunter · @criquaer
380 followers · 2153 posts · Server mstdn.social
I have signed up to #OpenMedicineFoundation‘s volunteer research-participant register, #StudyME , whereby scientists can locate potential contributors. The sign-up takes approximately five minutes.
I have #SevereME and the last page of text was the most difficult & time-consuming section for me to follow.
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #MECFS
#pwFM #Fibromyalgia
#PVFS #PostViralFatigueSyndrome
#postviralfatiguesyndrome #pvfs #fibromyalgia #pwfm #mecfs #myalgicencephalomyelitis #pwme #MEAwarenessMonth #internationalmeawarenessmonth #SevereME #studyme #openmedicinefoundation
Invest in ME Research · @invest_in_me_research
33 followers · 20 posts · Server mas.to
Thanks to our sponsors for 15th International ME Conference 2023
https://www.investinme.org/IIMEC15-sponsorship.shtml
#IrishMETrust and #OpenMedicineFoundation
#mecfs #MyalgicE #IIMEC15 #MEConferenceWeek2023
#meconferenceweek2023 #iimec15 #myalgice #mecfs #openmedicinefoundation #irishmetrust
Colin-Roy Hunter · @criquaer
224 followers · 1891 posts · Server mastodon.lol
#PwME wondering what the #openmedicinefoundation ( #OMF ) is & does? #HealthRising has written an accessible primer.
“This year it awarded over $5.5 million to 14 projects. With awards ranging for everything from muscle biopsies to neuroinflammation, to precision medicine, to metabolomics, it’s the most diverse #MECFS research packet in existence.”
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
https://www.healthrising.org/blog/2022/12/20/celebrating-open-medicine-foundation-10-years/
#pwme #openmedicinefoundation #omf #healthrising #mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Maya Lindemann, RN · @MayaL
140 followers · 69 posts · Server med-mastodon.com@bookwyrm @annedraya if you’re curious about #mecfs I recommend looking through #meaction & #openmedicinefoundation they have good info and resources.
The key feature is #PostExertionalMalaise #PEM an often delayed worsening of symptoms after any type of exertion. Many doctors still don’t know about #mecfs or are dismissive. Their knowledge base on #PEM is a good indication if they know what they’re dealing with. NO GRADED EXERCISE!
#MedMastodon #chronicillness
#mecfs #meaction #openmedicinefoundation #postexertionalmalaise #pem #MedMastodon #chronicillness