Elaine Anderson · @chipati
251 followers · 1446 posts · Server universeodon.com
Will Rogers · @spozbo
0 followers · 4 posts · Server mastodon.social

Also hi,

I’m a palliative nurse in North Carolina, tending to patients and families as they navigate life & death decisions in a complicated healthcare system. is like hospice: the goal is comfort.

I’m pretty new to . In my first career, I produced storytelling podcasts/events, mentored students and was mentored by great folks, mostly in the Bay Area, CA. I’m still big into .

Other relevant tags:

#palliative #nursing #storytelling #moon #quaker #texan #blm #nerd #introduction

Last updated 2 years ago

Anja Herzog: Nice to meet you! · @anja
12 followers · 18 posts · Server dju.social
Deborah Bayer · @debpoet
11 followers · 29 posts · Server mastodon.social

A dried out rose is the image that accompanies my poem, "Window to the Bay." harmonycommllc.com/window-to-t

#palliative #narrative

Last updated 2 years ago

Annalyte · @annalyte
19 followers · 22 posts · Server mstdn.social

»A key point of distinction was that requests for palliative sedation were understood to stem from a desire not to suffer, whereas requests for assisted dying were about a desire to control. As such, the choice between the two relates not so much to illness conditions or symptoms, but to a person’s character.«

Really informative research about how a person’s character gives orientation to decision-making regarding sedation and assisted dying.

journals.sagepub.com/doi/full/

#sociology #palliative

Last updated 2 years ago

Ze Beps :verified: · @zebepsmd
54 followers · 405 posts · Server mastodon.uno

Un altro dato inquietante è la scarsità non di risorse (che ci sarebbero, e questo meriterebbero discorsi a parte) ma di personale: mancano i medici, gli infermieri, gli psicologi.
Sono andate quasi deserte le sessioni di esami di ammissione per le neonate Scuole di Specialità in (di certo anche per un problema di informazione: quanti neolaureati sapevano della loro istituzione a partire dal prossimo anno accademico?), e anche ai concorsi delle ASL si presentano in pochissimi.

#cure #palliative

Last updated 2 years ago

Ze Beps :verified: · @zebepsmd
54 followers · 404 posts · Server mastodon.uno

Faccio mio l'auspicio della Federazione , ma i progressi nella diffusione della cultura e informazione ad esse relative non bastano.
La Legge 38 del 2010 ha quasi tredici anni ed è inapplicata nella maggior parte del territorio nazionale, dove le Reti di Cure Palliative ancora non esistono o se esistono non sono funzionanti, con tanti - troppi - pazienti e famiglie a non sapere a chi rivolgersi: già questo basterebbe a dare un'idea della portata del problema.

(thread)

#cure #palliative

Last updated 2 years ago

Ze Beps :verified: · @zebepsmd
54 followers · 404 posts · Server mastodon.uno

Faccio mio l'auspicio della Federazione , ma i progressi nella diffusione della cultura e informazione ad essere relativa non bastano.
La Legge 38 del 2010 ha quasi tredici anni ed è inapplicata nella maggior parte del territorio nazionale, dove le Reti di Cure Palliative ancora non esistono o se esistono non sono funzionanti, con tanti - troppi - pazienti e famiglie a non sapere a chi rivolgersi: già questo basterebbe a dare un'idea della portata del problema.

(thread)

#cure #palliative

Last updated 2 years ago

MK Masko, PhD, MT-BC/L · @DrMomMTBC
48 followers · 63 posts · Server universeodon.com

When I go see one of my care team members, he starts each appointment with the question, “How are you living?” As in, what are you doing with your life so you have as few regrets as possible? It’s also an invitation for me to share what I’ve been doing on my bucket list. Our collective goal is for me to live the best life possible given my circumstances. As a hospice and palliative , I think I have an unique appreciation for the care I receive.

#palliative #musictherapist

Last updated 2 years ago

Anja Kroll · @anja
3 followers · 2 posts · Server swiss.social

. aktuell einwohnerrätin in ; berufliche basis seit 1984: ; grösster sportlicher erfolg: ; suscht no: , , care, classic , ,

#neuhier #grune #lenzburg #software #paragliding #yoga #meditation #palliative #guitar #agile #biodiversity #micromobility #velo

Last updated 2 years ago

Jo Elverson · @ElversonJo
74 followers · 67 posts · Server mas.to

Hey team. Looking into literature around Shared Decision-making for in care. My feeling is that this is something we’ve been doing as a specialty for decades but haven’t written much about it since these became the preferred terms. Difficult to search for more nebulous terms though. Are there any key older references that can help?

#palliative #deprescribing #hapm #palliativecare

Last updated 2 years ago

Itamar Medeiros · @designative
230 followers · 747 posts · Server mastodon.social

legend is reportedly no longer responding to . The great Pelé is receiving care after he stopped responding to chemotherapy treatment for theguardian.com/football/2022/

#brazilian #football #chemotherapy #treatment #palliative #colon #cancer

Last updated 2 years ago

UberTumbleweed · @UberTumbleweed
14 followers · 60 posts · Server mstdn.ca

Mom died last night, not long after I bought the bagpipes. I joked she couldn't stand the thought of living with a beginning self-teaching piper.

I mean, who could blame her.

Humour as a coping mechanism is a bigger part of care than it gets credit for, I think.

#palliative

Last updated 2 years ago

UberTumbleweed · @UberTumbleweed
12 followers · 56 posts · Server mstdn.ca

Waiting for mom to die is the worst part of care. She's done. She told me she's done. The doctors prepared her to die before the end of August. Now it's end of November and she's ready.

#palliative

Last updated 2 years ago

KokoJo · @noorkiramat
27 followers · 57 posts · Server mstdn.ca

@UberTumbleweed It's frustrating to hear you've been put in that position. I'd like to believe that either your pharmacist or doctor or SOMEBODY would have thought to tell you about the special Blue Cross coverage for care requirements. Grrr.

#palliative

Last updated 2 years ago

UberTumbleweed · @UberTumbleweed
12 followers · 56 posts · Server mstdn.ca

There is special care Blue Cross coverage in . Regular coverage doesn't cover many palliative

No one told us to apply for that until quite late. So I've now maxed out my credit card with almost $5000 of medicine in two weeks.

#palliative #Alberta #medications

Last updated 2 years ago

Jo Elverson · @ElversonJo
8 followers · 4 posts · Server mas.to

@suzanakm Hi - I’ve just joined and also looking for folk.

#paedspalliative #palliative

Last updated 2 years ago