[Automatic repost https://twitter.com/dystobot/status/1652369708660785155]

RT @RareDiseases: Kylee, a patient with dopa-responsive #dystonia with #parkinsonism, describes her 20 year diagnostic odyssey and the trauma of being #misdiagnosed with depression by neurologists.

This #UndiagnosedDay2023, read Kylee's story and words of encouragement: https://t.co/ssIb4KvIC1 https://t.co/FDPyW3fFOt

[Automatic repost https://twitter.com/dystobot/status/1637154448765009920]

RT @JamesRo57175423: @Perry8k @Perry8k bro I was in my mid 20s when I was hit w #Parkinsonism an #Dystonia. I've had to learn how to do everything all over again by your age. You lucky bro. Just a few pops. Lol. Count ya blessings bro. Jajaj jajaja

[Automatic repost https://twitter.com/dystobot/status/1616351147521937410]

RT @CBBM20: Novel insights into the brains of #Parkinson patients:
Basal Ganglia #Atrophy as a Marker for Prodromal X‐linked #Dystonia‐#Parkinsonism by @cbbm20's AG Brüggemann in @ANA_journals!
#cbbmrocks #brain #behavior
https://t.co/KtwGynNqfh

[Automatic repost https://twitter.com/dystobot/status/1608772489491976194]

RT @Life_MDPI: #interesstingpaper @Life_MDPI ➖Transcranial Magnetic Resonance-Guided Focused Ultrasound in X-Linked Dystonia-#Parkinsonism
#Parkinsons
#dystonia
#neurodegenerative
🕸️https://t.co/GMlELO8lFc https://t.co/sJzDZLBuTK

Trying to navigate the paperwork for J's Medicare. He was automatically put on state Medicaid when he got disability, but now he's being transitioned to the federal system.

I hate how opaque all this is, and how difficult it's been made.

Is it any wonder people don't trust insurance companies?

#Medicaid #Medicare #Disability #Parkinsonism

I am a cognitive-neural 🧠 researcher focused on expedited understanding, addressing & info sharing regarding #Parkinson's Disease (#pd), people with Parkinson's (#pwp), pd dementia (#pdd) and pd-like syndromes (#parkinsonism or #psynd). Please share your useful/new pd info & insights. Thank you very much! #introductions