Erin Conroy · @chargrille
2865 followers · 7033 posts · Server progressives.social

This was the pivotal moment in the US pandemic response, and it came a mere 3 months into Biden's term.

Telling voters that unmasking was a reward for getting vaccinated squandered & ultimately destroyed our collective effort to stop rampant transmission of the virus, thereby speeding up genetic mutation rate & the decay of vaccine effectiveness, & isolating people with medical conditions, trapping them at home indefinitely. It turbocharged our /#LongCOVID crisis.

#pasc

Last updated 1 year ago

Erin Conroy · @chargrille
2595 followers · 6271 posts · Server progressives.social

@karlkatzke

This is so important to point out, yes.

If you are suggesting that it’s probable that those deaths are from /#LongCovid, then I agree, but I would still call them COVID deaths. It’s important to get the public to understand that the actual risks of infection are very much long term and to accurately convey the reality of the virus.

#pasc

Last updated 1 year ago

Erin Conroy · @chargrille
2589 followers · 6141 posts · Server progressives.social

Health damage from COVID infections (aka /#LongCovid) "continues to cause lasting pain and suffering...Scientists believe it’s possible to develop the condition after any infection with the coronavirus."

infections are being contracted all around us, but we're not testing.

If you have any symptoms, test twice (48h after the first test).

If you think you've been exposed, you should test 3x (48h btwn).

Tests often show false negs. Take care.

technologyreview.com/2023/07/0

#pasc #covid

Last updated 1 year ago

elektronaut · @elektronaut
128 followers · 534 posts · Server social.tchncs.de
elektronaut · @elektronaut
126 followers · 521 posts · Server social.tchncs.de
Lucius Annaeus Seneca · @Annaeus
443 followers · 1138 posts · Server mas.to

@RonaldTooTall
Over 900 ICD-10 codes are included in possible clinical presentations of or (Post-Acute Sequelae of COVID-19). These fall into several distinct clusters. It's most likely that PASC isn't a single disorder, and that different treatments will be effective in different subtypes of PASC.

#pasc #LongCovid

Last updated 2 years ago

Retweets of Preeya · @preeyaretweets
10 followers · 18043 posts · Server bigleaf.city

RT @Tinu
I’m so weak today. I feel I need to document this in public.

I want people to see people with . People who can and should be helping.

People who should be treating . So afraid every day.

#LongCovid #myalgicencephalomyelitis #pasc

Last updated 2 years ago

Julie Webgirl - Just Your Luck · @justyourluck
198 followers · 526 posts · Server masto.ai

HEAD'S UP!

Set aside the eggs & bunnies for a min.

Everyone knows at least one person with ...

I want you to ask them how their Long () is doing. And how THEY are doing.

Go ahead. I'll wait.

That may be the first time anyone's asked about it. And on a holiday like , friends & family may be gathering while they stay home, safe & unable to join in, feeling left out with this horrible condition that people seem intent on ignoring... until they get it.

Thanks πŸ©΅πŸ’›πŸ’œ

#longcovid #covid #pasc #easter

Last updated 2 years ago

anarchademic · @emeritrix
317 followers · 1087 posts · Server spore.social

FYI Meeting on Patient-Focused Drug Development for Long COVID
On April 25th, 2023, from 10:00 am to 4:00 pm ET, FDA is conducting a virtual (online only) public meeting on Patient-Focused Drug Development for Long COVID. The public meeting is intended to allow FDA to obtain patient perspectives on the impact of Long COVID or Post Acute Sequalae of SARS-CoV-2 (PASC).

fda.gov/drugs/news-events-huma

#covidisnotover #longcovid #pasc

Last updated 2 years ago

podkaynelives · @podkaynelives
370 followers · 1121 posts · Server universeodon.com

Symptoms today: extreme breathlessness, can't say more than a few words at a time. I got 2 zone minutes just shambling to the bathroom and back. .

But on the plus side: much less pain and discomfort after enduring a week of pain and pain meds!

I've been able to do 15 minutes of very gentle, slow stretches the last two days and I think that's helped the pain.

Today I'm taking it easy with the family and resting up before the work week starts again tomorrow.

Hope everyone has a great day!





#brainfog #spoonies #chronicpain #pasc #fibromyalgia #alttext

Last updated 2 years ago

mayday · @mad_mayday
292 followers · 822 posts · Server spore.social

Anyway, please sign this petition.

"In March 2022, the U.S. Government Accountability Office estimated that 23 million Americans had developed Long COVID. Nearly a year later, studies suggest that number could be as high as 41 million. Yet there is no cure or treatment available."

actionnetwork.org/letters/help

#longcovid #longhauler #pasc #artist #brokeashell

Last updated 2 years ago

mayday · @mad_mayday
292 followers · 822 posts · Server spore.social

it is hard to think or do anything. I wait for doctor's appointments, I wait to hear about my long covid clinic referral, I'm broke and dependent on my spouse, my medical history is too limited to apply for aid.

I take vitamins, monitor blood pressure, go outside every day to get a little sun and move small things around in the yard, and try to read and paint, but mostly sleep. It got easier for a little bit, but now it is more difficult.

#longcovid #longhauler #pasc #artist #brokeashell

Last updated 2 years ago

elektronaut · @elektronaut
114 followers · 458 posts · Server social.tchncs.de
elektronaut · @elektronaut
112 followers · 452 posts · Server social.tchncs.de

Combining L-Arginine with vitamin C improves long-COVID symptoms: The LINCOLN Survey - PMC

ncbi.nlm.nih.gov/pmc/articles/

#LongCovid #pasc

Last updated 2 years ago

There's no content warning on this as I believe it is necessary information for everyone.

I'm extremely tired of people who know me, and who don't, asking me if, or straight up affirming, I'm "getting better".

That I can walk 3 years after a SARS-CoV-2 "mild" infection as much as I did before doesn't mean I'm better.

It means I've learnt to walk while having fever, joint pain, migraine, hemorrhages, abdominal pain, dizziness, nausea, and more.

No one with has been cured of it as yet.

#pasc

Last updated 2 years ago

mayday · @mad_mayday
292 followers · 822 posts · Server spore.social

"Long COVID poses unprecedented risks for the country that could rival the Great Depression. According to David Cutler, an economist at Harvard University, Long COVID could cost the economy $3.7 trillion in lost wages, increased medical expenses, and reduced quality of life. In 2023, up to 4 million Americans between 18 and 65 are missing from the workplace due to Long COVID."

actionnetwork.org/letters/help

#longcovid #longhauler #pasc #petition

Last updated 2 years ago

mayday · @mad_mayday
292 followers · 822 posts · Server spore.social

"As a large and ever-growing international community, we feel government is not meeting the needs of this crisis."

Spread this around to all your long covid pals and the people who love and support them.


actionnetwork.org/letters/help

#longcovid #longhauler #covid #pasc #petition

Last updated 2 years ago

mayday · @mad_mayday
292 followers · 822 posts · Server spore.social

I just wrote the @LongCovidAP
letter "Help End the Long COVID Crisis" to send to government β€” Write one here:

actionnetwork.org/letters/help

#longcovid #longhauler #pasc #petition

Last updated 2 years ago

Balthasar Reuter · @reuterbal
114 followers · 71 posts · Server mast.hpc.social

here I come. I'm travelling to Davos!

After Covid-caused plan changes for the last three years, I'm hopeful this will be my first in-person conference.

#pasc23 #pasc

Last updated 2 years ago

Ended up in the ER yesterday choking; low oxygen levels. 3rd time this year, 2nd for this, the first ER of the year was because of persistent & worrying heart issues. + plenty more problems.

3 years after an extremely "mild" case that's developed into full-blown disabling PASC -- for which there is no treatment, no cure or protection, even if vaccinated of having had COVID before.

Was the picture of fit & healthy until this.

en.wikipedia.org/wiki/Long_COV

Just a reminder for y'all.

#pasc

Last updated 2 years ago