Mill_lab · @Mill_lab
453 followers · 413 posts · Server mstdn.socialWelcome to the #Fediverse Michele @mmanion & @PCDFoundation- we are very glad you are here! #RareDisease #PrimaryCiliaryDyskinesia #ciliopathies #PatientAdvocacyGroups #PatientVoice
#patientvoice #patientadvocacygroups #ciliopathies #primaryciliarydyskinesia #raredisease #Fediverse
Mill_lab · @Mill_lab
548 followers · 492 posts · Server mstdn.socialWelcome to the #Fediverse Michele @mmanion & @PCDFoundation- we are very glad you are here! #RareDisease #PrimaryCiliaryDyskinesia #ciliopathies #PatientAdvocacyGroups #PatientVoice
#patientvoice #patientadvocacygroups #ciliopathies #primaryciliarydyskinesia #raredisease #Fediverse
Mill_lab · @Mill_lab
548 followers · 492 posts · Server mstdn.socialWith Twitter's uncertainty & my awesome academic colleagues & #EDI champions #MastadonMigration, I am acutely aware that our #RareDisease community has not made the jump. If we are here and they are there, how do we stay connected?
I see @UsherSyndromeIreland has joined the party on here now: welcome! How do we get more #PatientAdvocacyGroups to do the same and avoid fragementation.
Ideas? #PatientVoice #ciliopathies
#ciliopathies #patientvoice #patientadvocacygroups #raredisease #mastadonmigration #edi