RT @MassMECFS
@nihgov is seeking self-nominations of #pwME, people with a family history of #MECFS, caregivers/care partners for people with ME/CFS, or ME/CFS #PatientAdvocates to serve on the new ME/CFS Research Roadmap Working Group.  Learn more: https://www.ninds.nih.gov/about-ninds/who-we-are/advisory-council/nandsc-mecfs-research-roadmap-working-group

Congress directed HHS to make sure patients get their test results as soon as they’re available. How should patients get bad news?

#Doctors say that patients are now receiving news about test results from patient portals before they have a chance to explain them. But #patientadvocates, and HHS, say patients should, and can, decide when they want their results.

https://www.politico.com/news/2023/01/09/doctors-test-results-patients-00076843?_hsmi=240892595&_hsenc=p2ANqtz-883gaEVa4NYRl5WnSqjuKAOlVEXqh6q3pVVA2B4enr_1jjP1GF7EMUy5USKAKt8SGeOt4LJ98pysNOZLQXjHrrNZ_Gcw

#healthcare

Uniting for a better healthcare system: How patients, doctors, and advocates can make a difference

As patient advocates, we play a crucial role in the healthcare system by providing support and guidance to patients and their families.

Murray Keith Wadsworth is a patient advocate and author of Prostate Cancer: Sheep of Wolf?

https://youtube.com/shorts/NQRBGVY2zvE

Listen here: https://kevinmd.com/podcast

#patientadvocates #healthcareadvocacy #unitingforbetterhealthcare #patientsupport

Uniting for a better healthcare system: How patients, doctors, and advocates can make a difference

As patient advocates, we play a crucial role in the healthcare system by providing support and guidance to patients and their families.

Murray Keith Wadsworth is a patient advocate and author of Prostate Cancer: Sheep of Wolf?

https://youtube.com/shorts/NQRBGVY2zvE

Link in bio or visit kevinmd.com/podcast

#patientadvocates #healthcareadvocacy #unitingforbetterhealthcare #patientsupport

Breaking down barriers to healthcare for every child

As patient advocates, it's our responsibility to speak up and demand change in a healthcare system that often fails to serve kids from marginalized communities.

Jeffrey Shahidullah is a pediatric psychologist.

https://youtube.com/shorts/6VfkfW6bBgU

Listen here:
https://kevinmd.com/podcast

#patientadvocates #healthcarejustice #equityinhealth #demandchange #marginalizedcommunities #racialdisparities #economicdisparities #primarycare #justhealthcare

#medmastodon and #patientadvocates Does self-advocation, by nature, involve interruption?

@kdeutsch same. Looking to connect with fellow #patientadvocates here.

Happy #Thanksgiving2022

Thankful to find supportive network on Mastodon. Lots of amazing #MedMastodon and #sciencemastodon posters.

Looking to find other #patientadvocates #cancercare