MediPaCe are supporting International Women’s day by providing an introduction to a topic close to our hearts – inequalities in health. Please Read more here:

https://medipace.com/2023/03/07/international-womens-day-2023/

#PatientEngagement #patientInvolvement #patient #equity #Equalhealthcare

Happy International Women's Day 2023! This year’s theme is #EmbraceEquity, so head over to their website to see why Equity isn’t just a nice-to-have, it's a must-have.

https://www.internationalwomensday.com/

#patient #patientInvolvement #internationalwomensday #IWD #equity

“#PatientEngagement is particularly important within the sphere of rare diseases”. Working with organisations like @EURORDIS can help you identify #PatientRepresentatives with required experience & skillset.

🔗 https://www.eurordis.org/patient-engagement-in-medicines-development/

#RareDiseaseDay #SharingResources
#SharingIsCaring

➡️ See also the short list of essential #Guidance we've compiled that can help you get started with your #PatientEngagement journey: https://medipace.com/2023/02/24/patient-engagement/

#RareDiseaseDay #PatientInvolvement #MediPaCe

With #HealthEquity, #Diversity and #Inclusion being top of agenda in healthcare discussions, #Equity for people living with #RareDisease is #EquitableAccess to diagnosis, treatment, health, social care and opportunity.
#DidYouKnow?

#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

#DidYouKnow that 72% of #RareDiseases are genetic whilst the rest are a result of infections, allergies, environmental causes or are #RareCancers?

Support #RareDiseaseDay and join the discussion to raise awareness!

#PatientEngagement #PatientInvolvement #MediPaCe

Did you know, that collectively, the number of people living with a #RareDisease = to the population of the world’s 3rd largest country? 🤯

Support #RareDiseaseDay and join the discussion to raise awareness!

#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Are you interested in reading more about the #experiences of people living with #RareConditions?

Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com

#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Why Advocacy Matters: Chris’ story

A rare condition doesn’t only affect the person living with it, but the family too. We found Chris’ story so insightful. Thanks to Chris and MD Group for sharing.

What’s your experience as a family member of someone living with a rare condition?

https://mdgroup.com/blog/why-patient-advocacy-matters-chriss-story/

#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe

Ahead of #RareDiseaseDay 2023 #MediPaCe is showing support by sharing resources and information about rare diseases and #PatientEngagement to help raise awareness and encourage more #collaboration between the healthcare industry and patient community.

➡ Follow our campaign through our blog page (link below), or our social media channels and join the movement to raise awareness!

https://medipace.com/2023/02/22/rare-disease-day-2023/

#RareDisease #PatientInvolvement #MediPaCe

World Cancer Day: The rural-urban divide

Around the globe there are challenges accessing cancer care due to the distances people have to travel and the modes of travel available to them.

Here's a useful website showing such disparities in the US:
http://bit.ly/3HvlZLb

#patient #patientInvolvement #cancer

The next World Cancer Day Toot looks at poverty & socioeconomic status.

'Children's cancer' write about the prevalence of the condition across the African-American and Hispanic young populations:
http://bit.ly/408dAoc

And this paper explores the reasons behind late diagnosis of cancer in Tanzania:
http://bit.ly/3H3zKiE

#patient #patientInvolvement #cancer

⌚ We have updated the timeline for our 💡 “Digital Health Idea Competition – Developing innovative concepts together with patients” allowing teams more time to generate ideas and concepts.

#digitalhealth #openinnovation #patientinvolvement https://t.co/AokTZpRMfg

https://twitter.com/LBI_DHP/status/1600421677107585024

Hi #Mastodon, we're MediPaCe. A values-driven patient engagement & patient research company.

We've joined mastodon.world because the supportive environment is perfect for patients, healthcare, regulators & companies to share their thoughts and ideas as equals. Routine recognition of patient voices in health & medicines development can only advance if we all talk together.

We would love to create a network with people interested in the area.
#introduction #patientInvolvement #patient

Hi #Mastodon, we're MediPaCe. A values-driven patient engagement & patient research company.

We've joined mastodon.world because the supportive environment is perfect for patients, healthcare, regulators & companies to share their thoughts and ideas as equals. Routine recognition of patient voices in health & medicines development can only advance if we all talk together.

We would love to create a network with people interested in the area.
#introduction #patientInvolvement #patient

Calling for #PatientEngagement community to connect through Mastodon and drive positive change!

Hi Mastodon folks! I'm Chi, passionate about patient engagement & involvement as I do believe it's a must to improve health outcomes for all. Would love to create a network of like-minded people and groups!

In addition, I might post about my dog, DIY, knitting, cooking, nature and things and happenings around me.

#introduction #PatientInvolvement

RT @JudithSafford@twitter.com

Interesting exchanges and great learnings #TalkingScience Thanks to @ScienceEurope@twitter.com and @snsf_ch@twitter.com for organising. #Patientinvolvement in #healthcare #research a step closer! #NothingAboutUsWithoutUs https://twitter.com/scienceeurope/status/1595747873848803328

🐦🔗: https://twitter.com/JudithSafford/status/1595793499475025921

First post on here. Feels pretty much like I'm shouting into an empty room...

For anyone who sees this, I'm interested in:

#patientsafety
#systemsthinking
#safetyscience
#humanfactors
#patientinvolvement

Hope to engage in some calm, and interesting discussion!

First post on here. Feels pretty much like I'm shouting into an empty room...

For anyone who sees this, I'm interested in:

#patientsafety
#systemsthinking
#safetyscience
#humanfactors
#patientinvolvement

Hope to engage in some calm, and interesting discussion!