“#PatientEngagement is particularly important within the sphere of rare diseases”. Working with organisations like @EURORDIS can help you identify #PatientRepresentatives with required experience & skillset.

🔗 https://www.eurordis.org/patient-engagement-in-medicines-development/

#RareDiseaseDay #SharingResources
#SharingIsCaring

➡️ See also the short list of essential #Guidance we've compiled that can help you get started with your #PatientEngagement journey: https://medipace.com/2023/02/24/patient-engagement/

#RareDiseaseDay #PatientInvolvement #MediPaCe