#endtb #patientsnotpatents

John Green helped boost the #PatientsNotPatents movement with his considerable and dedicated audience, but let’s also recognize the young women who spearheaded the movement and who experienced the impact of bedaquiline firsthand.

https://health-e.org.za/2019/02/13/two-women-fight-big-pharma-and-the-worlds-deadliest-disease-2/

!! 😊 #patientsnotpatents https://www.stoptb.org/news/global-drug-facility-update-access-to-bedaquiline

#jnj #PatientsNotPatents #Bedaquiline
an important update worth celebrating
https://www.stoptb.org/news/global-drug-facility-update-access-to-bedaquiline

not a full release of the patent but stoptb has been granted license to produce generics of bedaquiline. judging by the timing I would say the social media outrage was the difference.

to everyone who devoted their attention:
thank you. thank you. thank you.

I won’t have as much time on Masto today as I have the last few days but since I know my #PatientsNotPatents posts have gained a lot of attention, I think it’s important to post this update: GENERIC BEDAQUILINE WILL BE AVAILABLE WORLDWIDE!!!

It’s not a full release of their patent but it IS amazing news for those suffering from MDR-TB in impoverished countries and it WILL save many hundreds of thousands of lives. J&J did the right thing and we should celebrate that!

https://www.stoptb.org/news/global-drug-facility-update-access-to-bedaquiline

The #StopTB partnership released a statement this morning saying #JohnsonAndJohnson has allowed them to produce generic #bedaquiline and make it available in most developing countries, even in those where the secondary patent is still in effect.

While J&J haven’t released their own statement yet, and this isn’t a complete dropping of their patent, this is a huge step forward in ending TB and deserves to be celebrated.

#PatientsNotPatents #tubercolosis #EndTB

https://www.stoptb.org/news/global-drug-facility-update-access-to-bedaquiline

"Following lengthy negotiations, Johnson & Johnson has granted Stop TB Partnership´s Global Drug Facility`s licenses that enbable Global Drug Facility (GDF) to tender, procure, and supply generic versions of SIRTURO® (bedaquiline) for the majority of low-and middle-income countries, including countries where patents remain in effect."

Wow. 😮

https://www.stoptb.org/news/global-drug-facility-update-access-to-bedaquiline
#tuberculosis #PatientsNotPatents

I think I have about 50K impressions across the tweets I’ve sent about #PatientsNotPatents over the last 2 days. 😳

I’m proud of us. Don’t let up until/unless they do the right thing. #PatientsNotPatents

Johnson & Johnson is planning to extend patents with a legal loophole to squeeze more money out of developing countries whose populations are suffering from a disease easily treatable. It's a disgrace for our species that #Tuberculosis has not yet been eradicated even though that's very possible if we say #PatientsNotPatents. https://m.youtube.com/watch?v=tMhgw5SW0h4

My meme contributions (ft. My current fixation)

#PatientsNotPatents

Either Johnson & Johnson's ethics reporting tool has been taken down, or we broke it with too much traffic.

https://secure.ethicspoint.com/domain/media/en/gui/28704/report.html

#PatientsNotPatents

What really gets me about JNJ saying ‘the most significant barrier to TB treatment access is being undiagnosed’ is that it completely ignores the fact that not everyone diagnosed with TB gets treatment because, get this, the treatment is too expensive #patientsnotpatents #JNJ #bedaquiline #tuberculosis

I will be boycotting Johnson & Johnson until they agree to stop immorally evergreening their patent on bedaquiline, causing millions to die of treatable #tuberculosis. #PatientsNotPatents

Image from: https://dailyinfographic.com/johnson-and-johnson-brands

#JNJ is actively going against a recommendation of PIH given in 2020 by attempting to extend the patent of #Bedaquiline. this drug saves lives.

https://doi.org/10.1164/rccm.202001-0135OC
#PatientsNotPatents

Y’know, releasing the patent on bedaquiline would be a great PR move for J&J. It might even help them quiet down the whole “our baby powder gave you cancer” thing. #PatientsNotPatents

Public money (OUR money) paid for more than half of the cost of developing bedaquiline. Surely, the public’s voice should count when deciding whether hundreds of thousands of people should die so Johnson & Johnson can make more money. #PatientsNotPatents

Oof. Not the right response, J&J. #PatientsNotPatents

Reposting of John and Hank’s tweets regarding #PatientsNotPatents will resume as unlisted replies to this post! A few of these are left over from yesterday but the rest are from today.

my mother used to say "life sucks and then you die"

except if you're #JNJ and have the opportunity to allow people to continue to suck you NEED TO TAKE THAT OPPORTUNITY.

they've recouped their portion of the investment over the 20 year patent on #Bedaquiline as a treatment for #Tuberculosis and #MDRTB. when the patent expires, it's time for the drug to be produced generically at a lower cost to create higher availability and save hundreds of thousands of lives.

#PatientsNotPatents