Check out the #Roundup of our #RareDiseaseDay campaign here:
https://medipace.com/2023/02/22/rare-disease-day-2023/

Topics include:
- #FamilyPerspectives & #PatientStories
- #PatientEngagement
- #OvercomingChallenges

Special thanks to our network, colleagues and Ines and Nick for sharing your thoughts!

This past Saturday, a few of our members had the pleasure of watching "Eloquent" at Music Box Theater in Chicago! Thank you to our members who helped make this happen! It's certainly a unique experience to watch the film in a theater and visit with Dr. Awad!
If anyone is interested in planning a similar event, you can reach out to lindsay@alliancetocure.org
#EloquentMovie #Documentary #CavernousMalformation #PatientStories #Eloquent #Film #RareDisease

[Automatic repost https://twitter.com/dystobot/status/1605956442451746818]

RT @FixelInstitute: #PatientStories #DystoniaAwareness #FacesOfFixel

ℹ️ Are you a patient at the @FixelInstitute and would like to share your patient story with us? DM us and someone from our team will be in touch.

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