Tom Kindlon · @tomkindlon
774 followers · 2029 posts · Server disabled.socialFrom: Bateman Horne Center
@BatemanHorne
Introducing video 6 of the Post-Exertional Malaise series, Neurobiological Changes
👉 View the entire PEM video series: http://bit.ly/3s4a3us
#PEM #PESE #MERC #MedicalEducation #MillionsMissing @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC
#PEM #pese #merc #medicaleducation #millionsmissing #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc
Tom Kindlon · @tomkindlon
756 followers · 1950 posts · Server disabled.socialBateman Horne Center
In Video 5 of the post-exertional malaise [PEM] series, a study investigating the relationship between a resting state and post-exercise induced PEM shows significant increases in post-exercise ME/CFS brain activity, directly correlated with the number & magnitude of patient reported
https://www.youtube.com/watch?v=nn5W_XaIsUY
#PEM #PESE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #MERC #MedicalEducation #MillionsMissing #LongCOVID @mecfs
#PEM #pese #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice #merc #medicaleducation #millionsmissing #LongCovid
Tom Kindlon · @tomkindlon
744 followers · 1880 posts · Server disabled.social10/
“Rehabilitation programs are often centered on reconditioning & exercising patients under the premise that patients are deconditioned due to illness or injury. But this premise that patients with ME/ #CFS have become deconditioned & increasing activity will restore health is inaccurate & misidentifies the root of the disease.People with #PEM / #PESE require specialized care & providers must screen for & identify who has & who does not have PEM/PESE”@longcovid @mecfs #mecfs
Tom Kindlon · @tomkindlon
735 followers · 1848 posts · Server disabled.social
“I Have ME/CFS or Long COVID; Where do I go from here?” Recent post from the Workwell Foundation
An informative introduction to ME and #longCOVID with emphasis on #PEM / #PESE, the importance of pacing and of avoiding graded exercise therapy.
https://workwellfoundation.org/i-have-me-cfs-or-long-covid-where-do-i-go-from-here/
#PwLC @longcovid @mecfs #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME #PostCovid #PostExertionalMalaise
#LongCovid #PEM #pese #pwlc #mecfs #cfs #myalgice #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwme #PostCovid #postexertionalmalaise
Tom Kindlon · @tomkindlon
717 followers · 1808 posts · Server disabled.social3/
“You might see someone who has PEM [post-exertional malaise] on a good day when they are trying to have a normal life. You’re not going to see them 2 days later when they're crashed & unable to move...that’s 1 of the forces that... hides the reality & scope of these conditions from public understanding."
@longcovid @mecfs #LongCovid #pwlc #pem #pese #pene #PostCovid #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#PwME
#LongCovid #pwlc #PEM #pese #pene #PostCovid #mecfs #cfs #myalgice #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwme
Irish ME/CFS Association · @IrishMECFSAssociation
178 followers · 1554 posts · Server mastodon.ieBateman Horne Center:
Post-Exertional Malaise (PEM/PESE): Clinical Attributes, Part 2 of 7
This video series is intended to review the clinical presentation, scientific underpinnings, and treatment approach for patients with post-exertional malaise (#PEM)/post-exertional symptom exacerbation (#PESE).
#MEcfs #CFS #MyalgicE @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#PwME #longcovid @longcovid
#pem #pese #mecfs #cfs #myalgice #myalgicencephalomyelitis #ChronicFatigueSyndrome #pwme #LongCovid
ahimsa · @ahimsa_pdx
884 followers · 8752 posts · Server disabled.socialReposting this link from the Long Covid Physio group:
https://longcovid.physio/post-exertional-symptom-exacerbation
This web page has a short video (one minute) about PESE (Post Exertional Symptom Exacerbation) also known as PEM (Post Exertional Malaise).
#LongCovid #mecfs #NEISvoid #chronicillness #PEM #pese
ahimsa · @ahimsa_pdx
876 followers · 8600 posts · Server disabled.social
@effies Thanks for the link!
For those who may be interested there's a discussion about this article on the Science for ME forum here:
https://www.s4me.info/threads/ed-yong-what-fatigue-really-means-july-2023.34389/#post-485885
#mecfs #pwme #LongCovid #PEM #pese #science4me
Tom Kindlon · @tomkindlon
667 followers · 1500 posts · Server disabled.social
2/
From a 2-page information sheet, "What is postexertional malaise (#PEM) & postexertional symptom exacerbation (#PESE)?"
https://batemanhornecenter.org/wp-content/uploads/2023/05/What-is-PEM-PESE-05_2023.pdf
#PEM #pese #mecfs #cfs #myalgice #pwme #LongCovid #pwlc
Tom Kindlon · @tomkindlon
660 followers · 1490 posts · Server disabled.socialThe first video in the education series for rehab professionals from the Bateman Horne Center introduces terms, explains the important role of physical and occupational therapists for individuals with ME/CFS and #LongCovid and calls attention to how the medical system has underserved this population.
@longcovid #mecfs @mecfs #cfs #PostExertional #postexertionalmalaise #pem #pese #pene #MyalgicEncephalomyelitis #PostCovid #PostCovid19 #pwlc #pwme
#LongCovid #mecfs #cfs #postexertional #postexertionalmalaise #PEM #pese #pene #MyalgicEncephalomyelitis #PostCovid #PostCovid19 #pwlc #pwme
Irish ME/CFS Association · @IrishMECFSAssociation
155 followers · 1226 posts · Server mastodon.ie
From Bateman Horne Center
@BatemanHorne
Pacing for a dysfunctional metabolic system (pw #PEM/PESE) is a lifestyle strategy for managing exertion and recovery to baseline. It's more nuanced than traditional approaches to energy conservation. Learn more 👉https://bit.ly/3NocsZj
#MECFS #myalgicencephalomyelitis #LongCOVID #PEM #PESE #MedEdMatters @mecfs @longcovid
#MedEdMonday #pem #mecfs #myalgicencephalomyelitis #LongCovid #pese #MedEdMatters
Tom Kindlon · @tomkindlon
634 followers · 1337 posts · Server disabled.social
From Bateman Horne Center
@BatemanHorne
The broken battery metaphor is used to teach healthcare professionals about the physiological mechanisms of PEM/PESE. Check out the "Pacing for PEM/PESE" handout. 👉https://bit.ly/3NocsZj
#MECFS #myalgicencephalomyelitis #LongCOVID #PEM #PESE #MedEdMatters @mecfs @longcovid
#mecfs #MyalgicEncephalomyelitis #LongCovid #PEM #pese #mededmatters
Tom Kindlon · @tomkindlon
593 followers · 1253 posts · Server disabled.socialFrom: Bateman Horne Center "Push/Crash Cycle and Triggers in ME/CFS & #LongCovid"
This handout, part of their medical education series, talks about different triggers for #PEM / #PESE (post-exertional malaise/post-exertional symptom exacerbation) and that repeated PEM/PESE episodes can make patients worse.
https://batemanhornecenter.org/wp-content/uploads/2023/05/Push-Crash-Cycle-05_2023.pdf
@mecfs @longcovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #cfsme #PostCovid
#LongCovid #PEM #pese #mecfs #cfs #pwme #MyalgicEncephalomyelitis #cfsme #PostCovid
ahimsa · @ahimsa_pdx
733 followers · 6986 posts · Server disabled.socialHere's a short video on PEM/PESE from the Long Covid Physio group that I posted recently.
Short quote:
"The cause of post-exertional malaise (PEM) is not fully understood but it's not from deconditioning. PEM is not a psychological disorder and so reconditioning or graded exercise is not appropriate for these patients"
ahimsa · @ahimsa_pdx
733 followers · 6985 posts · Server disabled.socialFrom Bateman Horne Center
(not exact quote - expanded abbreviations, moved hashtags to the end)
"Med Ed Monday - Continued and repeated episodes of PEM are associated with worsened long-term functional capacity for people ME/CFS and Long COVID. This handout explains exertion and the push-crash cycle to medical professionals."
PEM, post-exertional malaise, is also called PESE, post-exertional symptom exacerbation.
https://batemanhornecenter.org/wp-content/uploads/2023/05/Push-Crash-Cycle-05_2023.pdf
#mecfs #LongCovid #PEM #pese #MedEd #batemanhorne
ahimsa · @ahimsa_pdx
717 followers · 6673 posts · Server disabled.social
A very short video (less than a minute) from Long Covid Physio that describes PESE, post-exertional symptom exacerbation (sometimes called PEM, post-exertional malaise).
PESE is common in people who have ME/CFS and/or Long Covid.
https://longcovid.physio/post-exertional-symptom-exacerbation
#LongCovid #mecfs #PEM #pese #longcovidphysio
ahimsa · @ahimsa_pdx
714 followers · 6600 posts · Server disabled.socialI often get questions asking "What is ME/CFS?" so I'm adding a couple of links to this thread:
CDC: https://www.cdc.gov/me-cfs/about/index.html
#mecfs #PEM #pese #cfs #MyalgicEncephalomyelitis
AllQuakes - EMSC · @emsc
703 followers · 35491 posts · Server masto.ai#Earthquake (#sismo) M3.1 strikes 32 km SW of #Pesé (#Panama) 3 min ago. More info: https://www.emsc-csem.org/Earthquake/earthquake.php?id=1256457
#earthquake #sismo #pese #panama
Tom Kindlon · @tomkindlon
543 followers · 783 posts · Server disabled.social8/
““Like, what the hell, body? Seriously? This is what you’re going to get mad about? All I did was blow some notes.” She tries not to be too hard on her body, though. “It’s not deliberately being an asshole to make your life miserable,” she says. “It fights to survive. If you feel like shit right now, it’s because it’s trying.”
@cfs #postexertionalmalaise #pese #PEM #pene #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #PwMEs #cfsme #CFIDS #SEID
#postexertionalmalaise #pese #PEM #pene #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #pwmes #cfsme #cfids #seid
Tom Kindlon · @tomkindlon
540 followers · 734 posts · Server disabled.social
5/
What can trigger post-exertional malaise?
-Physical (activities of daily living, work, exercise)
-Cognitive (reading/writing, long conversations)
-Sensory (loud, repetitive noises, bright or flashing lights)
-Emotional (challenging interactions, tragic events)
- Hormonal changes (e.g. changes during the menstrual cycle)
- Environmental (proximity to allergens, changes in weather, seasonal changes, temperature changes)
@longcovid @mecfs #MEcfs #CFS #PwME #MEeps #LongCovid #PwLC #PEM #PESE
#mecfs #cfs #pwme #meeps #LongCovid #pwlc #PEM #pese