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poconnor · @poconnor
21 followers · 262 posts · Server pkutalk.com
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I'm thinking about supplements, our special drink, medicine... What ever you call it!

I'm changing to a new type & wondering what affects your choice of supplement. Is it just the taste, or how easy it is to get, to take, to carry, etc.?

#pku #livingwithpku #lowprotein #raredisease #pkuproblems #phenylketonuria

Last updated 2 years ago
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poconnor · @poconnor
21 followers · 246 posts · Server pkutalk.com

Supplement, medicine, special drink... I'm thinking about supplements this month.

First up, looking at if we actually manage all of our supplement.

If you have PKU, do you take your supplement every day?

#pku #livingwithpku #adultpku #pcu #pkuproblems #pkucommunity #lowprotein

Last updated 2 years ago
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poconnor · @poconnor
17 followers · 216 posts · Server pkutalk.com
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Watch out folks - hitting a favourite.

Unknowingly paid the same for these in the online shop. Koko have reduced the tub from 500g to 400g with no price change.

also annoying as no longer 3phe per tub

#shrinkflation #pku #livingwithpku #pkuproblems #pkulife #pkuawareness #phenyketonuria

Last updated 2 years ago
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poconnor · @poconnor
14 followers · 174 posts · Server pkutalk.com
Pig Pen - Sapropterin blood genetics test for PKU Phenylketonuria

#sapropterin #livingwithpku #adultpku #pku #kuvan #pkuawareness #pkufitness #pkulife #pkuproblems #pkustrong

Last updated 2 years ago
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PKU Blog | PCU Blog :superpcu: · @pcublogue
16 followers · 310 posts · Server pkutalk.com
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Just shot 4 short videos for .
I was efficient lol

De retour aux vidéos si je veux que Meta arrête de me punir et de réduire la portée de mes messages…

#pku #phenylketonuria #phenylcetonurie #pkuproblems #pkustrong #pkuawareness

Last updated 2 years ago
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