As a #pku child, I started eating meat, under controlled circumstances, aged 15. By 18, I had returned to a normal diet.
I'm now careering toward 50 and have been off-diet for over 30 years.
Asking fellow PKU-ers if anyone has any recommendations for guidance on returning to a strict low-protein diet in later life?
#pku #phenylketonuria #pkulife #pkutalk
Here’s a fun tip for those who may be new and would like to kept up to date on posts by friends here without having to come back here every day/week/whatever.
If you go to the person’s profile (on the web) and find the empty bell icon and tap it, every time that person posts, you get a notification immediately so you can jump on a conversation quickly with your friends!
#mastodontips #mastodon #pkutalk
Just some lovely #PKUTalk statistics:
* 5 new users
* 11 active users
* 957 interactions
as well as
* 0 reports opened
I know the #PKU community is a small one, but we really are a lovely bunch.
Thanks to all of you who have not only been posting frequently, but actively making this a nice place to be. It's nice to have our little community full of friendly, supportive folks!!
RT @pcublogue
Join us on #Mastodon :)
#PKUtalk #PKU #Phenylketonuria #Phénylcétonurie https://twitter.com/sohebsoheb/status/1620416955328126983
#mastodon #pkutalk #pku #phenylketonuria #phenylcetonurie