ME/CFS Activity Management with a Heart Rate Monitor from Workwell Foundation @4Workwell
https://workwellfoundation.org/wp-content/uploads/2023/01/HRM-Factsheet.pdf
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE @longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC
#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #LongCovid #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc
September 19
https://batemanhornecenter.org/event/online-support-group-55/
3 PM EDT/8 PM GB & Ireland
Find the time in your time zone here:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=September+19+online+support+group&iso=20230919T13&p1=220&ah=1
Topic: Let's Talk about What Works
Support Group Format
The first 30-minutes will focus on a predetermined topic followed by a general discussion. Support groups are designed to include people with #MECFS, #FM, #LongCOVID, etc.
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #PwME @longcovid
#PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC
#mecfs #fm #LongCovid #myalgicencephalomyelitis #ChronicFatigueSyndrome #cfs #pwme #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc
Free, professionally-facilitated online support group
September 12 @ 1:00 pm - 2:00 pm MDT Free
https://batemanhornecenter.org/event/online-support-group-54/
3 PM EDT/8 PM GB and Ireland
Find the time in your time zone here:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=September+12+Online+Support+Group&iso=20230912T13&p1=220&ah=1
Topic: Strategies for Approaching Treatments
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE @longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19
#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #LongCovid #pwLC #postcovidsyndrome #PostCovid #postCOVID19
Saturday, September 16
CAREGIVER SUPPORT CALL (for caregivers of people with ME (myalgic encephalomeylitis), #LongCOVID and associated conditions)
https://www.meaction.net/event/me-caregiver-support-call/2023-09-16/
3:30 PM EDT/8:30 PM in Great Britain & Ireland
Find the time in your time zone:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=September+16+CAREGIVER+SUPPORT+CALL&iso=20230916T1530&p1=179&ah=1
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE @longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
#LongCovid #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc #covidlonghaulers #LongHaulers
#IDMastodon @WHO Clinical management of #COVID19
Living guideline 18 August 2023
https://apps.who.int/iris/rest/bitstreams/1525057/retrieve
Clinical Management of #COVID19 Resources for Health workers
https://www.who.int/teams/health-care-readiness/covid-19
Living Guidance for Clinical Management for #postCOVID19 /#LongCovid :
https://www.who.int/teams/health-care-readiness/post-covid-19-condition
https://www.who.int/teams/health-care-readiness/post-covid-19-condition
#IDMastodon #COVID19 #postCOVID19
#IDMastodon #ViralImmunology #Clinicaltrial The prevalence of organ impairment in #longCOVID patients at 6 & 12 months after initial symptoms and links to clinical presentation. Organ impairment persisted in 59% of 331 individuals out of 536 individuals, followed up at 1 year #postCOVID19 with implications for symptoms, quality of life and longer-term health, signalling the need for prevention and integrated care of LC.
https://journals.sagepub.com/doi/full/10.1177/01410768231154703
#IDMastodon #viralimmunology #clinicaltrial #LongCovid #postCOVID19
✅Asthma and rhinitis were associated with the #postCOVID19 symptom dyspnea, migraine with altered smell and taste, and lower self-rated health with fatigue. post COVID-19 symptoms are common, also among young adults in the general population. Although not life-threatening, it could have a considerable impact on #publichealth due to the high prevalence and long-term symptoms. @Nature
📌 https://www.nature.com/articles/s41598-023-38315-2
#IDMastodon #postCOVID19 symptoms are common, also among young adults in the general population
✅Being bedbound during #COVID19 for 1 week or more was related to an increased risk for #postCOVID19
✅ Symptoms lasting for at least 3 mths after #COVID19 : dyspnea ; fatigue ; altered smell or taste; headache; tachycardia ;cognitive impairment ; numbness ; depression, anxiety or feeling down; Pain (chest pain or muscle , joint pain) ;sleep disorders ; gastrointestinal problems; muscle weakness etc …
#IDMastodon #postCOVID19 #COVID19
‘Post #COVID-19 symptoms are common, also among YOUNG ADULTS’
Most common #symptoms = altered smell & taste (68.8%), dyspnea (33.7%) & fatigue (30.4%)
‘#postCOVID19 could have a considerable impact on #publichealth due to the high prevalence & #long-term symptoms’
#long #publichealth #postCOVID19 #symptoms #COVID
@Nature #CaseReport @tandfonline
Transient Increase in Patient Numbers with “Acute Macular Neuroretinopathy” #postCOVID19
https://www.tandfonline.com/doi/full/10.2147/JIR.S413050
Saturday, July 15 caregiver support call (for caregivers of people with me (mylagic encephalomeylitis), long covid and associated conditions)
https://www.meaction.net/event/me-caregiver-support-call/2023-07-15/
3:30 PM EDT/8:30 PM in Great Britain & Ireland
Find the time in your time zone here:
https://www.meaction.net/event/me-caregiver-support-call/2023-07-15/
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #longhaulers #LongCovid #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 @mecfs @longcovid #SevereME #SevereMECFS
#SevereCFS
#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #myalgice #pwme #LongHaulers #LongCovid #covidlonghaulers #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #severeme #severemecfs #severecfs
From the bird site 🐦
From @tmprowell (MD)
This paper about the impact of #longCovid on language & cognitive function is frankly devastating.
A couple examples of how affected individuals fared when confronted with photos of objects & asked to name them. Lots of struggling & pauses. #MedTwitter
https://www.sciencedirect.com/science/article/pii/S2949903823000015
@LongCovid #PwLC #cognitivepsych #brainfog #PostCovid #postCOVID19 #postcovidconditon #CovidLong
#LongCovid #medtwitter #pwLC #cognitivepsych #brainfog #PostCovid #postCOVID19 #postcovidconditon #CovidLong
#IDMastodon #cardiomastodon #Longcovid New onset of #hypertension was detected in 32.3% of patients at one-year follow-up #postCOVID19 recovery. Severe inflammation at the time of admission and severe CT severity score were associated with the development of new onset of hypertension on follow-up.
📌 https://www.sciencedirect.com/science/article/pii/S0019483223001037
📌 https://www.sciencedirect.com/journal/indian-heart-journal
#IDMastodon #cardiomastodon #LongCovid #hypertension #postCOVID19
#IDMastodon expression of #SARSCoV2 cellular entry-relevant receptors in taste buds & salivary glands, 🦠 induced deficiency in zinc that is essential to maintain normality of taste perception & saliva secretion. Given the long-term oral sequelae, hospital discharge is not the end of the disease, therefore careful attention should be continuously paid to oral conditions of #postCOVID19 or #LongCovid patients.
#IDMastodon #SarsCoV2 #postCOVID19 #LongCovid
🧵
13 slides from “Don’t push harder, stop rest pace” by Emerge Australia’s nurses Laura Allen and Camille Williams:
https://www.emerge.org.au/wp-content/uploads/2023/05/2023-Final-Awarness-week-2023-Dont-push-harder-stop-rest-pace1.pptx
Recording of talk is available here:
https://www.emerge.org.au/me-cfs-awareness-week-2023/
#MyalgicEncephalomyelitis #PwME #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE @mecfs @cfs #longhaulers #LongCovid #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC @longcovid
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#myalgicencephalomyelitis #pwme #ChronicFatigueSyndrome #mecfs #cfs #myalgice #LongHaulers #LongCovid #covidlonghaulers #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc
Thursday June 15 Lunch & Learn – Virtual Event
https://batemanhornecenter.org/event/lunch-learn-virtual-event-40/
1:30 PM ET/6:30 PM in Great Britain & Ireland
Find the time in your time zone here:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=June+15+online+event&iso=20230615T1130&p1=220&ah=2
Presentation Topic: “The Things I’ve Learned and the Ways I’ve Grown With This Condition”
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME @mecfs @cfs #longhaulers #LongCovid #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC @longcovid
#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #myalgice #pwme #LongHaulers #LongCovid #covidlonghaulers #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc
Free, professionally-facilitated online support group on Tuesday, June 20
Topic: When the Patient is the Caregiver
https://batemanhornecenter.org/event/online-support-group-49/
3 PM EST/8 PM in Great Britain & Ireland
Find the time in your time zone here:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=June+20+online+support+group&iso=20230620T13&p1=220&ah=1
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME @mecfs @cfs #longhaulers #LongCovid #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC @longcovid
#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #myalgice #pwme #LongHaulers #LongCovid #covidlonghaulers #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc
ME/CFS-like illness following COVID-19 slides: https://www.cdc.gov/me-cfs/pdfs/21-sec-call-may-17-2023-skarbinski-mec-fs-after-covid-508.pdf
Page 12:
Burden of ME/CFS-like illness after COVID-19 might be very large
United States
258,327,312 adults ×50% had COVID-19 ×1 in 200 with ME/CFS-like illness after COVID-19 = 673,985 (95% confidence interval 177,985-1,169,886)
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME @mecfs @cfs #longhaulers #LongCovid #Covidlonghaulers #PwLC #PostCovidSyndrome @longcovid #postcovid19 #LC
#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #myalgice #pwme #LongHaulers #LongCovid #covidlonghaulers #pwLC #postcovidsyndrome #postCOVID19 #lc
Tuesday, June 13
Free, professionally-facilitated online support group
https://batemanhornecenter.org/event/online-support-group-48/
Topic: Pain & Sleep Hacks
3 PM EST/8 PM in GB & Ireland
Find the time in your time zone here:
https://timeanddate.com/worldclock/fixedtime.html?msg=Tuesday%2C+June+13+Online+Support+Group&iso=20230613T13&p1=220&ah=1
#MEcfs #CFS #PwME #Fibromyalgia #Fibro #FMS #FM @mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longhaulers #LongCovid #Covidlonghaulers #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC @longcovid
#mecfs #cfs #pwme #fibromyalgia #fibro #fms #fm #myalgicencephalomyelitis #ChronicFatigueSyndrome #LongHaulers #LongCovid #covidlonghaulers #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc
Risk Factors Associated With #PostCOVID19 Condition: A Systematic Review and Meta-analysis | Infectious Diseases | JAMA Internal Medicine | JAMA Network https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/2802877 “This systematic review and meta-analysis found that female sex, older age, higher body mass index, smoking, preexisting comorbidities, and previous hospitalization or ICU admission were risk factors significantly associated with developing #PCC, and that #SARSCoV2 #vaccination with 2 doses was associated with lower risk”
#postCOVID19 #pcc #SarsCoV2 #vaccination