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Tom Kindlon · @tomkindlon
779 followers · 2097 posts · Server disabled.social
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#LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1900 posts · Server mastodon.ie
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#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #LongCovid #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
778 followers · 2084 posts · Server disabled.social

Medically Documenting Disability in / (ME/CFS) Cases (2019)

shorturl.at/hERST

Coauthored by the lawyer who prevailed on the disability case of @brianvastag disability case and a clinician who has done many ME/CFS disability cases

@mecfs

Probably of use to some with @longcovid

#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #myalgice #pwme #mye #me #millionsmissing #cfsme #cfids #LongCovid #pwlc #postcovidsyndrome #lc #PostCovid

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
778 followers · 2083 posts · Server disabled.social

#spoonie #chronicillness #fatigue #fatiguetips #chronicfatigue #chronicfatiguesucks #pacing #rest #resting #mecfs #cfs #myalgice #pwme #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mye #me #millionsmissing #cfsme #LongCovid #pwlc #postcovidsyndrome #lc #PostCovid

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1876 posts · Server mastodon.ie
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September 19

batemanhornecenter.org/event/o

3 PM EDT/8 PM GB & Ireland

Find the time in your time zone here:
timeanddate.com/worldclock/fix

Topic: Let's Talk about What Works

Support Group Format

The first 30-minutes will focus on a predetermined topic followed by a general discussion. Support groups are designed to include people with , , , etc.

@mecfs
@longcovid

#mecfs #fm #LongCovid #myalgicencephalomyelitis #ChronicFatigueSyndrome #cfs #pwme #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2079 posts · Server disabled.social

Induces & Suppresses Peroxisomes in the Brain

shorturl.at/dhmrZ

“The present studies point to a role of persistent neuroinflammation, especially inflammasome activation, and peroxisome biogenesis factor suppression as contributing determinants of the neurological sequelae of -19”

@longcovid @covid @covid19 @novid

#COVID19 #neuroinflammation #covid #LongCovid #pwlc #postcovidsyndrome #lc #PostCovid #COVID_19 #sarscov2 #novid #CovidIsNotOver

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2078 posts · Server disabled.social

2/

“Fecal transplantation from subjects to germ-free mice led to lung inflammation & worse outcomes during pulmonary infection by multidrug-resistant Klebsiella pneumoniae. transplanted mice also exhibited poor cognitive performance. Overall, we show prolonged impacts of infection on the gut microbiota that persist after subjects have cleared the virus”

@longcovid
@covid

#PostCovid #sarscov2 #LongCovid #pwlc #postcovidsyndrome #lc #covidー19 #COVID19 #covid #COVID_19

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2065 posts · Server disabled.social

8/

"It’s discouraging and isolating, especially when you feel that you can’t make plans simply because you do not know that you’ll be able to carry them out."

@chronicillness @spoonies @mecfs @longcovid


#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2060 posts · Server disabled.social

7/

"You may have to start cancelling plans, which can leave you feeling flaky and unreliable, especially when those plans were with someone that saw you on a good day recently."

@chronicillness @spoonies @mecfs @longcovid


#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2059 posts · Server disabled.social

6/

"Fluctuating conditions are also shockingly unpredictable, especially at first, when you don’t know what will trigger a flare or are not yet experienced enough to recognize the warning signs."



@chronicillness @spoonies @mecfs @longcovid

#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2056 posts · Server disabled.social
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New:
Pre-pandemic activity on a / support forum is highly associated with later activity on a support forum for a variety of reasons: A mixed methods study

Free
journals.plos.org/plosone/arti

This is sympathetic

@mecfs
@longcovid

1/

#MyalgicEncephalomyelitis #chronicfatiguesyndrome #LongCovid #mecfs #cfs #pwme #myalgice #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
774 followers · 2033 posts · Server disabled.social

“Trial By Error: Call for Retraction of Cochrane Review from Science For ME; Overview of Viral Persistence in Long ; (US) Senators United on ” by David Tuller DrPH (September 7)

surl.li/kxbew

@mecfs  @longcovid
@covid @covid19

#covid #LongCovid #mecfs #cfs #myalgice #pwme #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #postcovidsyndrome #PostCovid #covidー19 #COVID19 #COVID_19 #sarscov2

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
774 followers · 2033 posts · Server disabled.social
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Medscape have updated their free CDC-funded CPD course on

I never looked in detail at the previous course but this looks quite similar

It can be accessed with free registration.

medscape.org/viewarticle/99577

@mecfs @longcovid

#mecfs #MyalgicEncephalomyelitis #chronicfatiguesyndrome #MedEd #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #MedMastodon

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1848 posts · Server mastodon.ie
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Free, professionally-facilitated online support group

September 12 @ 1:00 pm - 2:00 pm MDT Free
batemanhornecenter.org/event/o

3 PM EDT/8 PM GB and Ireland

Find the time in your time zone here:
timeanddate.com/worldclock/fix

Topic: Strategies for Approaching Treatments

@mecfs
@longcovid

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #LongCovid #pwLC #postcovidsyndrome #PostCovid #postCOVID19

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
774 followers · 2029 posts · Server disabled.social
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From: Bateman Horne Center
@BatemanHorne

Introducing video 6 of the Post-Exertional Malaise series, Neurobiological Changes

👉 View the entire PEM video series: bit.ly/3s4a3us

@mecfs
@longcovid

#PEM #pese #merc #medicaleducation #millionsmissing #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1848 posts · Server mastodon.ie
Open media

#LongCovid #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc #covidlonghaulers #LongHaulers

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
768 followers · 1998 posts · Server disabled.social

Prevalence and Risk Factors of de Novo Widespread Post- Pain in Non-Hospitalized COVID-19 Survivors: A Nation-Wide Exploratory Population-Based Survey

rb.gy/mrmg5

“de novo [=new] widespread was present in 5.3% of non-hospitalized COVID-19 survivors one year after infection (14.4±6.0 months)”

@longcovid
@covid @covid19
@novid

#covid #PostCovid #pain #LongCovid #pwlc #postcovidsyndrome #covidー19 #COVID19 #COVID_19 #sarscov2 #novid #CovidIsNotOver

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
763 followers · 1976 posts · Server disabled.social
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"It's likely you know someone dealing with long COVID"

Excellent 24-minute, August 30 audio interview on NPR with science journalist @edyong209 & co-founder of the Patient-Led Research Collaborative and /ME sufferer

A lot about ME/CFS

npr.org/podcasts/1137012696/th

Also:
wbez.org/stories/the-rundown-w

@longcovid
@covid @covid19
NoVID@chirp.social @mecfs

#LongCovid #pwlc #postcovidsyndrome #PostCovid #covidー19 #COVID19 #covid #COVID_19 #sarscov2 #novid #MyalgicEncephalomyelitis #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
762 followers · 1967 posts · Server disabled.social
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New pre-print from @C_Scheibenbogen team in Germany

"Observational Study of Repeat Immunoadsorption (RIA) in Post-COVID ME/CFS Patients with Elevated Beta-2-Adrenergic Receptor Autoantibodies"

Free fulltext:
medrxiv.org/content/10.1101/20

Exciting to see a biomedical research randomised control trial planned

@longcovid
@mecfs

#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
756 followers · 1948 posts · Server disabled.social

(From March)
Canada’s Minister of Health, announced a $20 million investment from the Canadian Institutes of Health Research (CIHR) to support a pan-Canadian Post COVID-19 Condition Research Network called Long COVID Web

canada.ca/en/public-health/new

@longcovid

@covid @covid19

#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #COVID_19 #sarscov2

Last updated 1 year ago
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